Jason’s Story

Site created on March 14, 2021

In order to try and provide updates a little more efficiently we decided to start this caring bridge page as a way for all those who want to follow our dad’s progress to stay connected. We appreciate each and every one of your prayers, love, and support.

Briefly, our dad began developing flu like symptoms in the beginning of March. They subsided for about 3 days, so he thought he was on the mend. They returned on Saturday March 6th. He went to get labs drawn that following Monday to ensure it wasn’t Covid, however we had low suspicion because he had recently received his second dose of the Moderna vaccine and had very little exposure risk. His covid test was negative, but other labs were a little off. They decided to just watch his symptoms and he was supposed to see his Dr. on Monday the 15th. Over the course of the week his symptoms continued to worsen, he became more lethargic, to the point my mom had to call 911 on Friday morning, March 12th.

He was taken to the emergency room at Mile Bluff Hospital in Mauston, WI. They were unable to determine what was going on. After quite a bit of advocating to get him transferred that night, he arrived at Meriter ICU in Madison, WI at 4 am on Saturday March 13th.

Since being at Meriter he has had extensive work-ups. There are some things we know, and other things they are still trying to figure out. We know he has Streptococcus Group G bacteria in his blood stream that also entered his spinal fluid. We don’t know the source of this infection yet, but it has impacted many of his body systems.

Brain- He has many tiny infarcts (strokes) on his brain MRI. Likely as a secondary injury from this overwhelming infection.  He was originally very disoriented and confused. He was hard to arouse and asleep most of the time. He seems to be making small gains in his orientation and being able to carry on brief conversations, but still very tired and confused at times. We have seen glimmers of his personality with some witty responses and jokes he has made to his care team.

Lungs/Breathing- He has required some respiratory support in the form of nasal canula and bipap to prevent his oxygen saturations from dipping too low.

Heart- His medical team is continuing to look closer at his heart as a potential site of infection. He has a more invasive echo today (3/16) to see if there is evidence of infection. He will get sedated for this study. He is on some medications to support his heart function.

GI- He has develop GI bleeding, so GI doctors will hopefully see him today (3/16) and he will likely need more scopes of his upper and lower GI tract to see what is causing the bleeding.

Joints/mobility- His right knee is very inflamed. The team could not aspirate any fluid from his knee, so they think he is having an arthritis flare up in that knee from the infection, but they will continue to watch it very closely.  In general, he is very weak.

Kidneys- His kidney labs were showing acute injury. They are monitoring them closely and they are trending in the right direction. Unfortunately, one of the antibiotics he needs to be on can be very hard on the kidneys so his labs will be closely monitored.  

We thank all who have reached out and offered support. In the short term we are doing ok. Our mom is staying with me (Laura) in Waunakee. The hospital only allows one person to visit per day, so as of now only our mom has been able to visit. The medical team is including me over speaker phone for important conversations so that has been very helpful. We continue to pray for more answers. We are trying to take each day as it comes, as we don’t know what all of this will mean long term.

Newest Update

Journal entry by Laura Konkol

It has been quite some time since I posted an update, but wanted to share some of the recent encouraging news for dad, since so many of you have followed along his journey. 

Dad has stayed out of the hospital and the emergency room for almost two months now! Over this time he is gaining strength and his mobility is improving. He has graduated from in home PT, and just has in home nursing visits.

He has a really great primary care provider keeping tabs on his day to day health and labs. He's had lots of blood count issues and medication tweaking, and we are so grateful for how close things are being monitored and the adjustments that have been made. All the appointments and pokes are worth it to make progress. 

In addition he sees an infectious disease Dr. helping to treat his fungal infection (blastomycosis). His infection levels are almost undetectable at this point, and we found out today that the masses in his lungs have shrunk in size on his CT scan. This make us believe those masses were related to the fungal infection and should continue to improve with his antifungal medication. This is such encouraging news!

He had a recent invasive echo and his cardiac function has also improved considerably. All my parents effort watching sodium and diet as well as continuing to work on mobility and activity have really helped. This extended warm fall means lots of walks outside each day. 

My dad's kidneys continue to heal as well and his labs are stable.

We could not be more thrilled about the stability, recovery and healing that has occurred over past couple of months. Most providers cannot believe what he has all been through, and are equally in awe of how well he is doing now. 

He often says he doesn't have a choice, but he and my mom have worked very hard to keep him as healthy as possible and do all the things they can do to help him get stronger each day.

They also found a new twin home in Sun Prairie that they are purchasing and moving into in early November. This is an exciting step to transition from the apartment to a permanent home. 

We have so much to be grateful for and truly believe your prayers, love, and support helped get my dad to this point. We pray for continued healing and strength, and hopefully my dad is in a boat fishing come Spring:)

 

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Jason Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Jason's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top