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May 26-Jun 01

Week of May 26-Jun 01

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This week has been a week. Its hard for me to do this without crying.

We headed to Milwaukee on Tuesday to stay so we could get to scans early Wednesday morning. After someone pulled the fire alarm and pretending he was housekeeping, we finally got a couple hours of sleep. Me and Hads went to her scans which started at 615am. After 4 hours of being in imaging we were able to go back to hotel where Hads slept for a few hours, and Lily and I got to just rest and take a break. We decided that we wanted to sit outside for dinner, so we went to Wicked Hop, had a few appetizers and then got a call from Dr. Ryan. He reviewed Hadley's scans with me. I, for some reason had a feeling things weren't going to be good, but I was hoping for the best. After talking with Ryan, i sat with Lily and Hadley, we cried, did face masks and had a good night. I needed support from Kev, he was at home holding down the fort with our animals. Rori, luckily is in good hands with her new BFF Emmett, and the Dalhke's. At about 12am I texted Kev and told him I needed him, and he got in the car and drove to Milwaukee to be with us. 
Hadleys scans weren't what we wanted.
Her CT scan of her chest hasn't changed. Unfortunately her MRI and PET scan have changed. In January her PET scan showed that radiation did something to her tumor, it made it necrotic which is good and the response we want. It also didn't show any other enhancing lesions. The scan yesterday showed that the area that was necrotic is full of cancer again, and her tumor is changing shape, which used to be a triangle is now a solid circle. It's growing, and has spread to a lymph node into her sinuses. 
Myself, Hads, Lily and Kev were at the appointment today. Hadley hasn't cried in front of her doctors ever. Today she did. They told her that her tumor, and cancer is not curable. She has failed chemo and radiation. The tumor continues to grow, and spread. 
She fractured her foot on Sunday by just stepping outside in the garage, thought she rolled her ankle. But it ended up being a fracture. We are seeing ortho tomorrow. She's also been having trouble with her ears, which we got suctioned today to help with hearing and pressure. She needs this before we go to Destin next week. 
So with all of that being said. Our options right now, are clinical trials, palliative chemo or do nothing and let her live her best life. Hadley's comment today was "we do clinical trials". Hads is tough, we all know that. Angie talked today about clinical trials. They are not giving up and are hopeful for clinical trials. She mentioned Texas Childrens Hospital, St. Jude and University of Minnesota. Hadley's first comment was, "ive never been to Texas, but I want to go to Buc-ees." So whatever we need to do, we will do. 
We will continue to fight for our girl.

We are going on a family vacation on June 15th, and are so excited, and hope Hads can swim and have a blast.

When we get home, Kev will be having surgery on July 2nd, where we will spend a couple nights at Froedtert. We hope that no other treatment will be needed but we will take it all on if we need to. We are the BAKER'S!!!
We thank all of you for your continued support. We appreciate you all more than you know.
#hopeforhadley
#fuckcancer

Also-we will be having a Baker Bash on August 17th in lieu of Hadley's birthday, Rori's birthday and Kevin's newly diagnosed cancer. We are closing our street, having food trucks, ice clouds, kick ball, pickle ball, and much more!! Stay tuned for more details.

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