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May 19-25

This Week

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Everyone is at home and in their own beds! (Except Grayson who is on a pallet on our floor...gonna have to break this habit soon enough 😋).  It feels surreal to be home and to have Elliott back to his little self.
Tomorrow we go for our first of many followups, to Dr.Guyton, Elliott's regular pediatrician.  Friday we follow up with the opthimologist.  Then Tuesday we will meet with Dr.Shroer, the genetic/metabolic specialist.  Between all of the appointments, medications/vitamins and special diet, things will be busier than we are used to. But, that is a small price to pay to have our boy back.  We will figure it out.
So....this will be the last of my nightly updates *for now*.  As we continue to learn more,  I will post some here and there.  Thanks again (I really can't say it enough) to all who cheered us on through this crazy and unexpected journey.  We will be forever grateful.

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