Elaine’s Story

Site created on January 26, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

On January 25th, 2020, I was diagnosed with AML (Acute Myeloid Leukemia).  This was one year to the day after my husband, Denny was diagnosed with a malignant tumor in his sinus cavity!  Fortunately, his cancer is in remission and he completed his treatments last year.  We knew nothing about AML, but quickly learned that it will be a marathon (not a short race) to achieve remission and a possible cure.  This site is a record of my journey.

Newest Update

Journal entry by Elaine Barr

Hi, everyone:

We just got back from 2 months of sunshine and warm weather in Palm Desert on Sunday! 😎 We enjoyed some golf with friends and I even played pickle ball! On Tuesday, I had a pulmonary function test, chest X-ray, and met with a pulmonologist at the U of MN, and then had blood tests and met with Dr. Maakaron.  The results were all good!  In fact, Dr. Maakaron said I can stop taking 3 of my meds, reduce the dosage of another and start tapering off my Tacrolimus!  

I got my first booster shot yesterday (because I had monoclonal antibody treatment in late December), and Dr. Maakaron wants me to get the Evusheld shot in 3-4 weeks to give me added protection from Covid.  He doesn’t need to see me until September for my 2-year “rebirthday” check-up, and my next bone marrow biopsy will be 1 year after my last one! 😁 😁 I will still have blood tests every 3 months, but I can live with that.

Life is getting back to normal! 🎉🎉🎉🎉

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