Elaine’s Story

Site created on January 26, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

On January 25th, 2020, I was diagnosed with AML (Acute Myeloid Leukemia).  This was one year to the day after my husband, Denny was diagnosed with a malignant tumor in his sinus cavity!  Fortunately, his cancer is in remission and he completed his treatments last year.  We knew nothing about AML, but quickly learned that it will be a marathon (not a short race) to achieve remission and a possible cure.  This site is a record of my journey.

Newest Update

Journal entry by Elaine Barr

Hi, everyone:

I had a one-month checkup today at the Mayo Clinic - blood tests, and meetings with the Pharmacist, Nurse Practitioner, Fellow Doctor (in training) and Dr. Alkhateeb.

The blood test results were all good and I told them that I am feeling great!  Dr. Alkhateeb said I should just stay on the same meds and keep doing what I’m doing.  I will start getting my childhood vaccinations again (they were wiped out with my transplant), and I can have my first annual dental appointment again since 2019.  This is progress! 

I will have another phlebotomy (“blood letting”) in a few weeks at Methodist Hospital to reduce my iron levels) and another bone marrow biopsy, chest CT scan, and pulmonary function test at Mayo in late May or early June.

I have had both Moderna vaccination shots two weeks ago, so I was able to celebrate my Dad’s 96th birthday yesterday and hug him and my family for the first time in over a year!  🤗 ❤️ I have also played and walked 9 holes of golf five times (about 3 miles each) and walked 18 holes last Saturday (about 6 miles).  My golf game sucks but I’m just happy to be back out there with my friends after missing all of last year!  It’s so nice to feel “normal” again! 😁 Hope springs eternal for the future (a quote from The Magnificent Caregiver)!

Patients and caregivers love hearing from you; add a comment to show your support.
Help Elaine Stay Connected to Family and Friends

A $30 donation to CaringBridge powers Elaine's site for one month. Will you make a gift to help ensure that this site stays online for them and for you?

Show Your Support

See the Ways to Help page to get even more involved.