Journal entry by Elaine Barr —
Hi, everyone:
We just got back from 2 months of sunshine and warm weather in Palm Desert on Sunday! 😎 We enjoyed some golf with friends and I even played pickle ball! On Tuesday, I had a pulmonary function test, chest X-ray, and met with a pulmonologist at the U of MN, and then had blood tests and met with Dr. Maakaron. The results were all good! In fact, Dr. Maakaron said I can stop taking 3 of my meds, reduce the dosage of another and start tapering off my Tacrolimus!
I got my first booster shot yesterday (because I had monoclonal antibody treatment in late December), and Dr. Maakaron wants me to get the Evusheld shot in 3-4 weeks to give me added protection from Covid. He doesn’t need to see me until September for my 2-year “rebirthday” check-up, and my next bone marrow biopsy will be 1 year after my last one! 😁 😁 I will still have blood tests every 3 months, but I can live with that.
Life is getting back to normal! 🎉🎉🎉🎉
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