Eddie’s Story

Site created on March 17, 2019

UPDATE: Eddie is undergoing rehab at Capistrano Beach Care Center. Please email cow.a.sherry@gmail.com if you would like to visit.
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On February 21, 2019, Eddie suffered a hemorrhagic stroke caused by hypertension. It ruptured small arteries primarily on the left side of his brain. His coordination, speech, and temperature regulation may be compromised. Shortly after being admitted to the ER, small tubes were inserted in each side of his brain to drain the blood. Six days after the stroke, the left tube was removed. By this time, Eddie had developed pneumonia as well as multiple blood clots in his arms and legs. An IVC filter was implanted on the 28th to capture blood clots traveling from his legs. At this point, we were told by the doctor that Eddie’s life was no longer in danger. On day 10 in the ICU, Eddie was finally extubated and started uttering some words in a raspy voice. The following day, the doctor removed the right tube from his brain. Eddie was able to say few sentences and brushed his teeth with his left hand with assistance. By the end of the day, however, his responsiveness was weak. It turned out that there was more bleeding that took place. Essentially, he had suffered another stroke. Eddie was trembling, non-communicative and running a fever for a couple of days. However, two days of EEG records and numerous tests showed there were no signs of seizure nor infections. After sixteen days in the ICU, Eddie had finally graduated to the PCSU (Progressive Care Stroke Unit). By this time, his pneumonia had gotten better, and he was able to move his left limbs slightly and nod. Eddie was able to recognize his wife, form short sentences, and move his left limbs. But for the most part, he was very drowsy during the day and more alert during night. After about a week in the PCSU, Eddie was able to sit on a wheelchair and his appetite had increased. He has shown many signs of recovery, including humming to his favorite songs. However, there is still a long way to go.  In March 18th, Eddie will be given a higher dose of blood thinner through his IV to prevent the blood clots in his arms from traveling to his lungs. It is a risky procedure since it could result in more bleeding in his brain. If all goes well, Eddie will be monitored for few more days in the PCSU, then be transferred into a Skilled Nursing Facility, where he’ll be receiving more rehab services. It’s been a tumultuous journey so far and yet this is only the beginning. We have a long way towards recovery. We are truly blessed to receive so much support. We kindly ask that you would continue to keep Eddie in your thoughts and prayers. If it’s not too much to ask, we would love to receive your close-up photos of you/ your family so we could compile an album or poser for Eddie to look at. Please email to: cow.a.sherry@gmail.com (mailto:cow.a.sherry@gmail.com). Thank you in advance.

Newest Update

Journal entry by Judy Kawashiri

I feel as though I had traded my husband (without my children's consent) for a handicapped six years old who likes to play poker and chess, and is a backseat driver who likes to argue every now and then.

Physically, he has made big progress considering he had suffered two major strokes within two weeks period. I'm thankful for the doctors and the hospital staff for saving Eddie's life. And I'm aware that his situation could be a lot worse. I understand it's never a continuous progress, but the recovery process has been frustrating.

During the 30 min drive enroute to the hospital whenever we hit the red light, I'd ask Eddie the question, "What is the date today?". He struggles and can't get it right without looking at his clipboard. We practice few times and he finally gets it, only to lose it 5 minutes later. I'm told that somehow getting the date right is one of the hardest thing for stroke patients to master. 

For his morning and night routine, we prepared a list of things to do with a post-it marker just so that he can track himself. Yet he still struggles to follow. He gets confused and sometimes tries to put toothpaste on the comb, or he would put hand soap on his toothbrush. None of which he use to do few months back. 

The good news is that on Monday, we were told by the hematologist that despite of the fact that the minor clots still remain in his calf and arm, Eddie could be off of Coumadin (blood thinner medication) and that the IVC filter could be removed. Being on Coumadin was too restrictive. I couldn't give him many healthy foods since they'll affect the INR number. I could now upgrade his nutritional supplements and look into other treatments aside from physical, occupational and speech therapies.

I decided to get a QEEG test (brain map) done on Eddie's brain.  The results would be out in few weeks. 

Eddie is scheduled to have a lumbar puncture done next week to see if implanting a Shunt could help him. We also took care of his gingivitis issue. For a while, I had to endure sleeping with him with his dragon breath, snoring and frequent trips to the bathroom at night. Thank goodness those issues are gone!

My boys have been very helpful. We've been taking turns caring for Eddie, going to doctor visits and therapy sessions, and doing household chores. Eddie participates in drying the dishes, folding the laundry, sweeping the yard and doing gardening. It's been such a blessing to have Eddie's sister helping us once a week for half a day.

Thank you so much for all of your support and prayers!

 
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