It's been a little while, so here's a quick update:

On 12/12/2023, the colonoscopy went well. They biopsied a polypoid near the scar from where they removed the "beast," and the results came back negative – fantastic news!

Fast forward to 1/21/24, and the scans with contrast came back clear. And on 2/1/24, the Signatera ctDNA test, which looks for circulating tumor DNA in my blood, also came back negative! I asked if this means I'm in the "no evidence of disease" category, and the response was positive. While I'm not officially declared cancer-free, being NED (no evidence of disease) is the best news!

I'm grateful for the Signatera test, as it helps monitor things that might go undetected with scans. Currently, the plan is to continue scans every 3 months along with the new blood test. I'll stay on the Nivo until at least September, and then we'll re-evaluate.

Big shoutout to my Mucosal Melanoma online group – they've been a great support. Since there's not a ton of literature on mucosal melanoma, we're navigating this together. Most patients are on maintenance immunotherapy for 24 months, so I'll keep an eye on the research and what top hospitals like MD Anderson and Mayo Clinic recommend.

For now, it's just monthly blood draws, infusions, and quarterly scans & Signatera. The side effects from the Nivo are annoying but manageable. All in all, it's a win! Thanks for all the support!