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May 12-18

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Wow!! It really has been a while since I’ve written! My sweet friend, Fran told me she gets worried when she doesn’t see an update, so I apologize to any of you who might be worrying. I was trying to hold out till we got Dan’s latest bone marrow biopsy and that FINALLY happened when we saw Dr Mulroney earlier this week.

We are so very excited to tell you Dan’s biopsy was clean!! He is also now at 95% engraftment, but his chimerism count is only at 76%. If you remember, I previously explained that a chimera is a person who has cells from 2 different sources. The ultimate goal, of course, is to be at 100%. Mulroney said it could be several reasons for that…..a.) that he’s still on Tacro (the anti-rejection med) and b.) he’s still on 15 mg of Prednisone/day (down from his original 90 mg to remedy the GVHD 😳). He’s being weened off both; not sure how long that will take. At that time, she’ll also consider taking out his PICC line that has been in for 8 months. 

Dan continues to deal with his Foot Drop. It’s annoying, not painful. Again, drs aren’t sure if it’s a result of chemo or a pinched nerve behind his knee. He started PT and they’re confident he’ll get back his range of motion.

Another positive thing is that we only have to be at Moores Cancer’s infusion room once a week now to do labs and meet with Mulroney. That’s a huge step!

But the most positive thing that is happening right now is that we are starting a new chapter in our lives and moving to Laguna fulltime starting 3/28! We’re downsizing and simplifying our lives! It all happened so quickly….Dan put the house on the market, we got an offer within 3 weeks and the buyer wanted a quick escrow, so here we are…..packing, packing, packing! Thankfully, Laguna is a short drive from Encinitas/San Diego, so we’re not leaving, just moving a bit further away. I’ll continue my book club and wine group and Dan will continue golfing with his buddies.  After 4 long years, McKenna flew in for a couple of days to say goodbye to the only home she knew growing up. It was a great visit!

Thank you, as always for all the love and support you give us!! It continues to amaze us! We also can never thank our unbelievable nurses enough on the BMT floor and at Moores!! Their compassion, kindness and love keep us going! Thank you from the bottom of our hearts!🧡






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