Cohen’s Story

Site created on November 26, 2019

On November 23, 2019 at 0037 in the morning - baby Cohen was emergently brought into the world at 25 weeks after her momma experienced preeclampsia and HELLP Syndrome. Cohen came in weighing 1lb 0.5oz and was immediately taken to the NICU at OSF where she will be getting world class care by the staff there. She is expected to be there until April where she will grow and hit all the milestones of a micropreemie.


Close the PDA (x)
Get the Breathing tube out (x)
Get off the Jet (x)
Hit 2 lbs (x)
Move out of the small baby unit (x)
Get off of the Nasal IMV (x)
Hit 3 pounds (x)
Open crib (x)
Regulate body temperature (x)
Get off of nasal cpap (x)
Get to 2L on the heated high flow nasal cannula (x)
Take a bottle ( )
Take 8 bottles ( )
Pass the car seat test (x)
No apneas or bradycardias (x)
GO HOME ( )

Newest Update

100 + Days

Journal entry by Kala Johnston —

Cohen passed the 100 day mark on March 2nd and then her due date came on March 5th. And then she went from heated high flow (HHF) 4L to 3L and now 2L. 

Being on 2L means that Cohen finally got to take her first bottle. It will take some coordination because she is 3.5 months old and has never had a bottle. We gave her her first bottle on March 12 and she drank 6mL. At first we were concerned that she didn’t have the endurance to make it thru 20 minutes of bottle feeding, but she not only stayed awake thru her bottle but for 3 hours afterwards and was a very crabby girl that night. She will continue to get food in her feeding tube until she can drink 100% of her food in a bottle. 

Physical therapy came to screen Cohen for motor delays as she was born at 25 weeks and the size of a 21 weeker to see what help she may need after she leaves the NICU. Cohen continues to amaze us because she scored 1 point higher than a baby born at 36 weeks.

Thank you everyone. 💜
Read More of the journal titled "100 + Days"
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