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May 12-18

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Entered by Cheri ONeill

March 5th is a day I will never forget!! 

Today is SIX years since my loving doctor (Dr Anita Jonason) gave me the devastating news I had Lung Cancer. It’s one of those things you remember every detail of. 

It’s a crazy way to live….. knowing you are dying…. We live 3 months to 3 months to 3 months … We exhale as we leave our appointments and go do life… we inhale and hold our breath as we go to the next appointment and the  exhale … until one day we don’t. 

So it’s finding a way to live in this  craziness that has JOY & PURPOSE & FUN that I try to do! I am so very thankful for my family and friends who are always there for me!! I honestly couldn’t do this without you! THANK YOU!!!! 

My appointments just happen to be today on this date March 5. Six years in to this I have had progression twice most recently this last August. I switched to Lorlatinib which is the last FDA approved oral chemo for me. It has come with a host of side effects, most recently my hair falling out😳!   BUT after meeting with my oncologist today he said there is “No evidence of intracranial metastasis. Resolved abnormal leptomeningeal enhancement in the cerebellum” Whoohoo!! I have a small  pleural effusion that he believes will continue to get better. They did find an enlarging cystic lesion  measuring 3.5 cm, previously 2.4 cm on my abdomen scan but I will get an ultrasound in 3 months and see what that is about.  

I am so very thankful for a loving and healing God who answers our prayers, for  great health care, good insurance, an amazing online AlK Positive support group where I learn so much  and meet so many courageous humans and for YOU my dear friends! Thank you for  praying for me, and  for loving me so well!!! I appreciate you so very much and know that God hears and cares and answers our prayers!!  May He bless you BIG in return! 

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