Sadie’s Story

Site created on July 29, 2023

We hope by sharing our journey we can help even just one family that is going through PPROM (preterm premature rupture of the membranes) or infant loss.

On July 14th while in Whitefish, Montana, my water prematurely broke (PPROM) for Twin A at 19+2 weeks. After many hours in the emergency room, I was transferred to Logan Hospital in Kalispell to receive specialized care. Codey flew in the next morning. We received the devastating news that our twins had a 1% chance of survival and were told to terminate the pregnancy, despite having strong heartbeats. We decided to continue on and fight for our babies.

After beating all odds and holding off labor and infection, we were able to fly home to Minnesota on July 18th. The next day we met with a Maternal Fetal Medicine Specialist to assess our babies — The twins were developing as they should and were healthy, although baby girl (Twin A) had little to no amniotic fluid. They supported our decision to move forward with Expectant Management and created a plan; I would continue bed rest at home for the next two weeks until reaching 23 weeks, then would be admitted to the hospital until delivery where the babies and I would receive more support.

On July 27th, I went into labor and gave birth to our sweet baby girl, Nellie Kay Carlisle. Codey and Sadie were able to hold her in her final moments and tell her how much they love her. She will forever be our daughter and we will miss her every day.

Miraculously, labor stopped and our baby boy, Clifford Brett Carlisle, remained in utero — something doctors also said was incredibly rare. I was admitted to the Mother Baby Center at United Hospital where they continue to monitor Clifford and me for signs of labor and infection. I will most likely stay here for the remainder of my pregnancy, where we pray every day that we will continue so baby boy can grow big and strong before making his entrance.

While this journey has broken our hearts and will take a lot of time to process and heal from, we remain strong in our fight to bring home our baby boy. All of this is so very hard to put into words, but please know how much we appreciate the support. We feel the love every day and it keeps us going.

Nellie Kay has a piece of our hearts forever and we will always love and miss her beyond measure. We know we have a guardian angel watching over us and her little brother until we meet again. 

We will try to update you all as much as we can on Clifford's journey. In the meantime, we welcome prayers for our sweet boy, that he can grow big and strong.

With so much love,
Sadie & Codey 

Newest Update

Journal entry by Sadie Carlisle

Hi friends and family,

It's hard to believe how quickly time has passed since our last update. I want to briefly touch on a couple of events from February before sharing our latest and hopeful news. Following a couple of challenging nights that required emergency trach changes, Cliff's condition stabilized, and he also underwent successful laser eye surgery. Whew! Hopefully the last procedure for a while.

Now for the exciting updates: Cliff has been making remarkable progress in his recovery and growth. His smiles are becoming more frequent and his interaction with the world around him grows each day, which makes my mama heart very happy. He's also worked his way up to taking bottles for EVERY FEED! This is very uncommon for a kiddo with a trach - his Speech Therapist is very impressed. That means we haven't been using his G-Tube for feedings, only giving medications. One surprising update that we were not expecting is that Cliff was diagnosed with hearing loss. Thankfully it's mild to moderate and can be supported with a hearing aid. He also received his helmet to correct his flat head. What's another couple of accessories right?! But really, we're thankful for everything available to support him and help him thrive. The medical team is also thrilled with his progress, particularly with his respiratory support, which is being gradually reduced.

An important development in Cliff's journey is his upcoming transition to a home ventilator later this week, assuming all continues to go well. This move is crucial as it brings us one step closer to bringing him home. If he adapts well to the home vent and maintains stability over the next four weeks, our hope is to finally have him home by June. Can you believe it?! 

With this goal in sight, Codey and I are busy with preparations. We’re completing our training on trach care and emergency responses, assembling a dedicated team of nurses, and organizing the necessary medical equipment at our home. It’s a lot to coordinate, but each step forward is incredibly motivating. We're so ready for our family to finally be together under one roof, but we know the journey ahead will be challenging. 

We're nearly at the end of this chapter in the NICU, thanks to the immense support from each of you and the unwavering efforts of Cliff’s medical team. Your thoughts and prayers continue to uplift us, and we look forward to sharing more positive updates soon.

With immense gratitude and love,

Sadie and Codey

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