That smile! Full of joy! You all have persevered through so much. And bottle feeding!!!! Go Clifford...that is HUGE (coming from an ex-nicu RN). Thanks for taking the time to update.
Sadie- I worked with your mom and sister at Aveda, was a cheerleader when your dad was at the U in college and Miranda used to cut my hair. You are the only one I haven’t met, but have been following your journey. I have a grand niece who went through much of what you are experiencing and she is now 6 years old!! If you need another mama to talk to about home care with a trach and vent, please reach out and I will connect you to my niece. She’d be happy to be a resource for you! My number is 612-385-6164. Continued prayers for Clifford!!
God is so good! You are all a beautiful inspiration. We pray for a smooth transition to the home trach and more smiles, sounds and growth to come. In hard times keep remembering how far you've come and that you are all so very loved.