Hello Everyone, we are so busy preparing for Ryu's discharge, and my training for his care soon, so sorry for not being able to update, but rest assured that Ryu is doing well. He's not on antibiotics anymore for about 3 to 5 days already. Hopefully he will not catch PNUEMONIA anymore.

Please continue to pray for Ryu's health, and for us as a family. This week was really stressful to us because Ryu's birthday is coming and he will be celebrating it at the hospital, and we are still very far from our goal for his treatment 🙁

We don't really know what to do now, some days are just really depressing, and it's very hard for us to function, and do stuffs. Of course we do pray, and we do trust God. But you know, some times it's just, it just hit you really hard! We are upset, and angry, and sad, and crying. Ryu will turn one and we only have limited time for him to get the treatment. He will not be eligible and will not be able to get the treatment when he past 3 years old. 

Whatever damage that has been done to Ryu's body by SMA cannot be restored. The nerves in his body will continue die. Zolgensma will just stop the progression, it's just a treatment, not a cure. But it will really help Ryu! The treatment will help him a lot guys. So please continue to help us SHARE his crowdfunding campaign. We really need your help 🙏

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Hazel Arnie Berdera

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