Ryu’s Story

Site created on November 8, 2021

LIFE-SAVING TREATMENT FOR BRAVE RYU 🌷

My 11 month old son was diagnosed with Spinal Muscular Atrophy Type 1, a rare and severe genetic disease that causes progressive muscle weakness and wasting. He's still admitted at PICU since March 14. He needs the world's most expensive drug called ZOLGENSMA, worth $2.1 million dollars. Without it, he may not reach 2 years of age.

Please help us raise funds for his life-saving treatment. Even a small donation could help reach the fundraising target. And if you can't make a donation, it would be great if you could share the fundraiser to help spread the word.

PS. We don't know both of us (my husband) are carriers of this horrible disease. He's our first child, and both sides of the family doesn't have any history of SMA.

GOFUNDME : gofundme.com/f/brave-ryu-fights-sma-type1

#zolgensma #braveryukoizumi #zolgensmaforryu #curesmaphilippines #FIGHTFORRYU #smatype1 #fightSMA #fightraregenticdisorder #BRAVERYU #cureSMA

Newest Update

Journal entry by Hazel Koizumi

Hello Everyone, we are so busy preparing for Ryu's discharge, and my training for his care soon, so sorry for not being able to update, but rest assured that Ryu is doing well. He's not on antibiotics anymore for about 3 to 5 days already. Hopefully he will not catch PNUEMONIA anymore.

Please continue to pray for Ryu's health, and for us as a family. This week was really stressful to us because Ryu's birthday is coming and he will be celebrating it at the hospital, and we are still very far from our goal for his treatment 🙁

We don't really know what to do now, some days are just really depressing, and it's very hard for us to function, and do stuffs. Of course we do pray, and we do trust God. But you know, some times it's just, it just hit you really hard! We are upset, and angry, and sad, and crying. Ryu will turn one and we only have limited time for him to get the treatment. He will not be eligible and will not be able to get the treatment when he past 3 years old. 

Whatever damage that has been done to Ryu's body by SMA cannot be restored. The nerves in his body will continue die. Zolgensma will just stop the progression, it's just a treatment, not a cure. But it will really help Ryu! The treatment will help him a lot guys. So please continue to help us SHARE his crowdfunding campaign. We really need your help 🙏

___________________________________

DO YOU WISH TO HELP BABY RYU DEFEAT SPINAL MUSCULAR ATROPHY?

GOFUNDME : gofundme.com/f/brave-ryu-fights-sma-type1
PAYPAL: paypal.me/braveryukoizumi

GCASH: 09979755894 
Hazel Arnie Berdera

Account Name: JOHN MICAHEL KOIZUMI
BDO-0110 2002 4451
BPI-0109 0185 34
UNIONBANK-1094 2009 4275
MAYBANK-1075 0017 450
LANDBANK-2986 2196 52

Facebook: Help Brave Ryu Koizumi defeat SMA Type 1
Instagram: brave__ryukoizumi
Twitter: @BraveRyuKoizumi
Youtube: Brave Ryu Koizumi

FACEBOOK VIDEO: https://www.facebook.com/RyuBKoizumi/videos/306395324315124/ />
#zolgensma #braveryukoizumi #zolgensmaforryu #curesmaphilippines #FIGHTFORRYU #smatype1 #fightSMA #fightraregenticdisorder #BRAVERYU #cureSMA
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