Hello all, we haven’t had the chance to update everyone on Owen in a while so we figured today would be a good day. We last went to the cities in April and overall the appointments went well. We go back in August and will see all of our specialist. We are closely monitoring with SB and Neuro team. He’s showing small signs of tethering in his spinal cord. With this you don’t actually know until you go in and do the surgery, so right now it’s a guessing game and watching how he’s acting. We just got tubes put in our ears on May 7th so before we really jump the guns we’re going to wait a few weeks. 

Owen turns 2 we can’t believe it, he’s overcome so many things already! We continue to thank everyone for the prayers and support along the way!