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May 19-25

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I have BIG NEWS!!  STELLA IS HOME!!! After 56 days, we broke her out of the NICU yesterday (Monday)!  However, Av had us sworn to secrecy until she could surprise a couple of her friends with a visit!  We are soooo excited to all be together in our own space, but boy do I miss those nurses at night! ...it's been a LONG time since I have experienced an infant's schedule, and I'm not as resilient on limited sleep as I used to be. 😉 Regardless, we are thrilled that she is here!  She had her 1st pediatrician apt today and is 7lbs & 2oz!  Zuko has been completely enamored with her and just stares at her and whines.  It's the cutest thing!  While the dog is enthralled, the cats seem to be indifferent...am I surprised? LOL

 
Avonleigh started her 2nd week of outpatient infusions on 4/18.  The first day of accessing the port was painful but manageable.  She has been a trooper!! While she thankfully doesn't seem to have any physical adverse effects like nausea or vomiting, she is super tired and fighting headaches again.  ...although not nearly as bad as when she was in the hospital, so we are grateful for that!  We are praying that it continues that way! 
 
We are trying to settle into new sleep, travel and eating routines for everyone!  It is quite the adjustment, but so worth it to have Avonleigh made healthy and Stella home!  

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