Well, it’s been quite a long while since I’ve posted any real updates, & I suppose the time has now arrived:
Last week, we found a total of 7 new brain lesions & one more sizable mass on my left frontal lobe.
After much back & forth re: plans w/radiation oncology, Neuro Surgeons, & my Med Oncology Team, I’ve decided on a course of action that will allow me to contribute to a Clinical Trial at Weil Cornell over the course of the following 3 yrs (I’m just going to go ahead & use this as my own timeline goals now 😏). We’ll be treating my brain masses w/Gamma Knife Radiation over the course of 3, hour-long sessions, & I’ll then receive an Immunotherapy Protocol that has shown great promise w/several other types of cancers. One lesion will stay untreated to compare the potential effect of immunotherapy alone without the radiation, but, monitored very closely & should it grow, it will receive the radiation treatment at that time, so, there is very low risk for me & I am very excited to be given an opportunity to contribute like this.
It will require a significant time commitment, & I’ll have to work to fundraise for travel expenses, but, this is a purpose I can live with! ❤️
Currently, I’m still admitted in-Patient at Weil Cornell Hospital in Manhattan, & I’ll give you guys more news to follow once I have myself, received it.
Thank you all for your continued love & support both far & near. It truly takes a community/village to thrive with this disease plaguing you, & the people along for the journey make all the difference. ❤️
-Angèle