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Except this time with a disease nicknamed the "suicide disease". I'm not going to lie. Trigeminal Neuralgia is painful. My new meds (anti-seizure) work to stop and dull the pain. However, I keep having to increase them due to breakthrough pain. And they make me dumber then a box of rocks. I live in constant fear of feeling the intense pain I felt that first week. And I'm a lucky one! Most patients go years before being diagnosed after being tossed between dentists and neurologists. Right now I have an appointment with a neurosurgeon to discuss a few other options...But it's not until July 29th. In the meantime, I'm trying out acupuncture. Did I mention history has found that pain meds do not usually help with Trigeminal Neuralgia? Yup. Whee.
My goal, here, is to help out my family in a couple of ways. Most importantly I'd like to get back to the Mayo in the fall for their 3 week pain management course. However, I feel like I'm in limbo until I meet with the surgeon. So, I'm going to plan it, but not make solid hotel arrangements etc until after I meet with the doctor on the 29th. IF, and this is a big if, I have surgery, some funding raised might go towards childcare, food etc.
Please know I love you all very much and appreciate ANY support at all. I love hugs. 😉
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