Amy’s Story

Site created on June 1, 2018

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Newest Update

Journal entry by Amy Logston-Stinson

Except this time with a disease nicknamed the "suicide disease".  I'm not going to lie.  Trigeminal Neuralgia is painful. My new meds (anti-seizure) work to stop and dull the pain.  However, I keep having to increase them due to breakthrough pain.  And they make me dumber then a box of rocks.  I live in constant fear of feeling the intense pain I felt that first week.  And I'm a lucky one!  Most patients go years before being diagnosed after being tossed between dentists and neurologists. Right now I have an appointment with a neurosurgeon to discuss a few other options...But it's not until July 29th.  In the meantime, I'm trying out acupuncture. Did I mention history has found that pain meds do not usually help with Trigeminal Neuralgia? Yup. Whee.

My goal, here, is to help out my family in a couple of ways.  Most importantly I'd like to get back to the Mayo in the fall for their 3 week pain management course. However, I feel like I'm in limbo until I meet with the surgeon.  So, I'm going to plan it, but not make solid hotel arrangements etc until after I meet with the doctor on the 29th. IF, and this is a big if, I have surgery, some funding raised might go towards childcare, food etc.

Please know I love you all very much and appreciate ANY support at all. I love hugs. 😉 
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