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May 05-11

Week of May 05-11

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Ames is now on day +54 post-transplant and continues to improve daily.  He has really been working hard with physical and occupational therapy and gradually regaining strength.  He is very sore from all the hard work.  Imagine laying in a hospital bed for a month looking at the same 4 walls and then being discharged and using those muscles again that haven't been used in quite some time.  I really couldn't imagine what that feels like.  Ames has been eating a little better with his diet consisting of Doritos, sour cream and onion chips, and Chik Fil A.  He has tried a few other things, but they don't taste the way he remembers.  His taste buds are still off a bit.  This past week out of the blue Ames looked at me and asked, "can this kill me?"  My heart sank.  I stared at him for what seemed like a long pause and answered, "yes."  I told him that none of us knew what was ahead of us in the bend of the road lurking waiting to expose itself and that a number of things could kill you besides cancer.  We all await the same ending that is death, but there is eternal life through Jesus Christ our savior.  When I said this, he said it with me, and I knew that he understood.  Being a parent is hard, but it's even harder watching your child suffer through such a horrible disease.  I want to thank all the mothers in my life who have stepped up to take care of Gavin and Parker when I couldn't.  I love you Nana (Nancy Lee), Granny Annie, Aunt Christy, and all the other women who have helped our family during this time.  Please tell Chad happy Mother's Day if you see him.  He is really doing most of the work being mom and dad.   Next week Ames will have another bone marrow biopsy and aspirate, please pray that he remains cancer free and that there are no signs of disease.  Thank you all for your prayers.  Happy Mother's Day to all the moms.  

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