|
||||||||||||
Click here to go back to the main page.
Thursday, March 12, 2009
Thursday, January 15, 2009 Hi
We arrived at NIH on Tuesday around 11:00am. Drew was examined by Dr. Warren and Dr. Trey Lee. They got a treat, Drew was extremely flatulent. He was quite impressed by himself. I am not sure the doctors were as impressed. Dr. Warren couldn't get out of the room fast enough :). Drew got a blood draw. Yup, platelets were in the toilet at 5000. Normal platelets, for Drew, should be above 100,000 and must be over 50,000 before transfusion. So, he got a transfusion of 5 units of platelets. The post blood draw showed 12,000 and white counts had dropped in half from last Thursday. So, he needs a second infusion for the day. Sorry, it is BINGO night at the Children's Inn. We played Bingo. Drew won lots of great prizes. We headed back to the hospital around 8:00pm for more platelets. This time he got 8 units. We were back at the Inn and in bed by 11:30.
Wednesday-
We got to sleep late since Drew's scan wasn't until 12:00. We got to the hospital around 10:00am and got new badge photos. Our old ones had expired. We went to clinic and found out his post platelet counts for last night were 28,000. Not good! So they did another blood draw. By the way, have I mentioned Drew does not have a port, so he is being stuck to get blood. His veins are very small and very deep. They are very hard to get on the first try. The IV they placed on Tuesday does not pull blood, but will push, so it can be used for medicines during the MRI. In short, he needs to be stuck, again. We were not prepared for this extra stick so he had no numbing cream. He did very well. He is my hero! The semi good new is that the platelet count raised to 58,000. The super bad news is his white counts are 750 and ANC is 350. Meaning he is neutropenic-his immune system is not working. Another first for us. We are also pretty sure his platelets are still dropping. So, we will stay Wednesday night and get blood drawn in the morning and probably another transfusion.
***The SUPER, DUPER, AWESOME NEWS***
BEAUTIFUL SCAN!!! WE have NED (no evidence of disease)! We are PRAISING GOD and basking in HIS blessings!
Overall we have had a great visit. We got the honor to meet the Spady family, Ken, Kim, and Caleb (Keeping up with Caleb). Drew and Caleb have hit it off. Both Caleb and Drew had their scans today. We played bingo together last night and had fun in Arts and Crafts and playing games. We also were privileged to meet David and Annette Ingram, ^Caleb's^ (www.ingram-family.net) mom and dad.
Thank you for your prayers. Please pray that Drew's blood counts recover quickly. This is fairly normal considering the amount of chemo he has had over the last 4 years. We have been very lucky that the chemo did not cause this earlier. But, we had hoped not to reach this point. Not only is it dangerous for Drew, it also threatens future chemo. If his counts continue this low trend it is possible we may not be able to continue chemo.
Love,
Gina, Drew & Family
It has been awhile since I have updated. For the most part, no news is good news.
It is so wonderful to see the Washington & Lee Generals (Men's Lacrosse) team writing in the Guest Book. Check it out!!! Drew is so excited to be joinging "His Team" for another season!!! GO GENERALS!!!
Christmas was AWESOME!!! Drew's favorite holiday is Christmas.
We rang in the New Year. Drew was the only one that stayed up until midnight. The other boys crashed early. We toasted with sparkling grape juice and went to bed.
Drew's blood counts continue to stay low. We had to postpone chemo for 1 week this round, due to his platelet count, 44,000. That is the lowest ever. Thankfully, one week later they were on the rise to 84,000. We are adding more supplements to hopefully keep this from happening again. We will see next month.
Now the REALLY BIG NEWS!!!! Drew's 9th Birthday is Sunday!!! WHOO-HOOO!!! My boy is getting so big. We are so BLESSED!!!
He will be having 2 parties. The first on Saturday for kids and the second on Sunday for family. That's right, we will be partying all weekend. This year as an alternative to gifts Drew has decided that it would be great if people would donate to ASK Foundation (ASK Web) this is a foundation through MCV/VCU Hospital that supports the families of ill children, like our family. We go on social outings several times per year, it provides toys for the treasure chest in clinic and many other outstanding programs. Another group is Special Love (www.SpecialLove.org) this group is who Drew goes to camp through. This is another outstanding group that supports so many ill children and their families through outings, etc. Some have asked if we still have Drew's Fund open, yes we do. It is through SunTrust Bank, Account ##1000017134312. Or you can click on the paypal account button to donate online.
Thank you for all of your prayers, support and love. Our journey has been a long one and is far from over. We have met some amazing people along the way. With God's grace and mercy we make it through every day and every hurdle we face.
Please pray for all of our sick children, there are too many. To name a few: Andrew, Liam, Ellie, Amy, Sarah, Kasey, David, Caleb, Jonathan, Kat, Vincent, Sage, and many more. And pray for the families that grieve the loss of their precious children.
Love,
The Goodman Family
Thursday, December 4, 2008
Hi
It has been a while since our last update. No news is good news. Drew is doing well. His next MRI is December 15, 2008. Please pray for a clean scan.
We had an AWESOME Thanksgiving. We are so thankful for all we have. It is over one year from recurrence for Drew and all is GREAT!!! Thank you God!!!!!!!!
I have mentioned before Drew's PT, Richmond Hope Therapy, he did intensive therapy with them last year. He still sees them for regular PT. They are the most AWESOME women. They recommended Drew to a group that helps provide special equipment for children with disabilities or limitations. They provide things such as; adaptive bikes, custom wheel chairs, communication devices, etc. The name of the organization is Help Charities, Inc., started by 13 local businessmen and retirees in 1992.
Yesterday, Help Charities, Inc. with Rehab Health Care in Richmond and Sergeant Santa presented many people with special equipment. Drew was presented with a specially equipped tricycle by them. (see the picture at www.caringbridge.org/visit/drewb) Thankfully, Richmond Hope Therapy was also there to share in his day. He was so excited. He jumped on his bike and rode and rode. I wasn't sure we would be able to get him off of the bike. I can't thank all of the wonderful people involved with this enough. This is one of the many blessings that gives us strength and hope.
Thank you for all of your prayers, support, love, and concern.
Please pray for the many families that are grieving. There are several that are having a hard time, please say special prayers for Hadley, Owen, Liam, Kasey, Ellie, Kat, Andrew, Sarah, Sam, Vincent, David Bailey, and many others.
Check out www.caringbridge.org/visit/katieschools
She is an incredibly talented 8 year old artist that knows the brain tumor journey all too well. Her art is hanging on the White House Christmas Tree, this year.
Love,
The Goodman Family
Thursday, December 4, 2008
Hi
It has been a while since our last update. No news is good news. Drew is doing well. His next MRI is December 15, 2008. Please pray for a clean scan.
We had an AWESOME Thanksgiving. We are so thankful for all we have. It is over one year from recurrence for Drew and all is GREAT!!! Thank you God!!!!!!!!
I have mentioned before Drew's PT, Richmond Hope Therapy, he did intensive therapy with them last year. He still sees them for regular PT. They are the most AWESOME women. They recommended Drew to a group that helps provide special equipment for children with disabilities or limitations. They provide things such as; adaptive bikes, custom wheel chairs, communication devices, etc. The name of the organization is Help Charities, Inc., started by 13 local businessmen and retirees in 1992.
Yesterday, Help Charities, Inc. with Rehab Health Care in Richmond and Sergeant Santa presented many people with special equipment. Drew was presented with a specially equipped tricycle by them. (see the picture at www.caringbridge.org/visit/drewb) Thankfully, Richmond Hope Therapy was also there to share in his day. He was so excited. He jumped on his bike and rode and rode. I wasn't sure we would be able to get him off of the bike. I can't thank all of the wonderful people involved with this enough. This is one of the many blessings that gives us strength and hope.
Thank you for all of your prayers, support, love, and concern.
Please pray for the many families that are grieving. There are several that are having a hard time, please say special prayers for Hadley, Owen, Liam, Kasey, Ellie, Kat, Andrew, Sarah, Sam, Vincent, David Bailey, and many others.
Check out www.caringbridge.org/visit/katieschools
She is an incredibly talented 8 year old artist that knows the brain tumor journey all too well. Her art is hanging on the White House Christmas Tree, this year.
Love,
The Goodman Family
Friday, October 24, 2008
WOW! I forgot to update this site, I am so sorry.
Drum roll, please ... the MRI is CLEAN!!! We are praising God even more than usual, if that is possible.
Drew is busy in school and with soccer. He has made 2 goals and several saves this season. He is having a blast!
Johnny is playing football and doing well in school.
Stephen has his learner's permit for driving. He is getting ready to start wrestling season and is doing well with his very heavy school load.
I am VERY proud of my boys!!!
Other than doctor appointments and chemo, we are living a pretty "normal" life and enjoying every blessing.
My thoughts and prayers are with the many that are ill or have won their battle and are now celebrating no more pain in Heaven. There have been too many people that have died from cancer. We have lost WAY too many children just in the past 2 weeks. My heart aches for their families.
Thank you for all of your thoughts and prayers and continuing to check in on us. Drew will have another MRI on December 15.
Love,
The Goodman Family
Wednesday, October 8, 2008
Just a quick ask for prayers for Drew's routine MRI, today. We are at NIH and should have results today or tomorrow. I will update when I can.
Please say some extra prayers for Ellie and Kasey who are also having MRI's today.
Sunday, September 28, 2008
Do you know September is Cancer Awareness Month? Did you know September 13 was National Childhood Cancer Awareness Day?
Cancer is horrid, no matter how old you are. However, the lack of funding for pediatric cancer research is beyond despicable. We must find a cure for cancer, ALL cancer. The children should be in this equation. If we spread the awareness that there is a huge need for pediatric cancer research, I believe a cure will be found. The cure will be for all cancer victims.
Helen Jonsen, Forbes.com senior editor and mother of a child who recently underwent treatment for osteosarcoma, stated in a September 12th article, "Cancer is the No. 1 disease killer of children in the U.S. ...We tend to talk about it in hushed tones instead of screaming for help. But scream we should." The article goes on to say, "The funding for pediatric cancer clinical trials has gone down every year since 2003, and is currently $26.4 million. By comparison, NCI funding for AIDS research was $254 million in 2006; funding for breast cancer topped $584 million the same year."
How many children have to die before it is considered research worthy, news worthy, just plain worthy? Will your child, grandchild, niece, or nephew be next? Please HELP today!
Check out: http://www.boston.com/bigpicture/2008/09/childhood_cancer_awareness_mon.html
Eat at Chili's September 29, 100 f all proceeds go to St. Jude's for research.
PROJECT BRAIN CHILD - Voting ends on Monday, September 29th....IF we stand together, we stand to win this grant! Please encourage your constituents to VOTE as follows:
1. Go to
http://www.membersproject.com/project/view/NN934A
2. Scroll down to "Vote for this Project" (located under the video/photo window)
3. Click on "Vote for this Project"
4. Click on "Log In"
5. Log in using either your American Express Card number* or your on-line account
information
6. After logging in, you should have returned to the Project Brain Child description page -
http://www.membersproject.com/project/view/NN934A
7. Scroll down AGAIN and click on "Vote for this Project"
8. You're done!
EVERY VOTE COUNTS!!!
Please keep the many families battling this beast we call cancer in your thoughts and prayers. Yesterday, Stephen won his cancer battle and is now in Heaven with Jesus. There are so many in need of prayer, to name a few; Jacob, Gunner (is deteriorating rapidly), Marcus, Hadley, Kat, Amy, Liam, Kasey, Kelly, Alexa, Sarah, Caleb, Andrew, Ellie, and Sage.
Thank you for all of your prayers, love and support.
Love,
The Goodman Family
Thursday, September 18, 2008
It has been a busy week and Drew has missed 1 1/2 days of school, due to illness. BUT, we have finally gotten to the bottom of Drew's nasty cough. He went into distress Saturday and again Tuesday. By distress I mean he coughs so much he starts to vomit. Both days it got to the point that he could hold nothing down. We thought he would have to go to the hospital for dehydration. But, both times we were able to get him under control in the bathtub. The doctor was fairly convinced that he had pneumonia and so were we. Drew had a chest x-ray Wednesday. It is not pneumonia, it is asthma. So, he is under control with the proper meds, now. Praise God!
Drew's chemo cycle, due to have started on Saturday, was postponed until Monday due to low platelet counts. This is the first time his counts have ever held up chemo. They were 78 last Wednesday. This Wednesday they are 97. However, his white and red blood counts are extremely low. So, we are being extremely proactive and protective for Drew's health.
Johnny played his first football game last Saturday, they won!!!! Drew and I missed it because he was so sick.
Sunday Stephen was baptized. Praise God! Today, Stephen passed the test for his learners permit to drive. YEAH!!!
Today, Calli got her walking boot off and is now free of fixators, casts, etc. She still has some hurdles, but she has come so far. Today is a HAPPY Day!
Please keep so many families battling this beast we call cancer. This week Cameron lost his earthly battle. There are so many in need of prayer, to name a few; Stephen, Jacob, Gunner, Marcus, Hadley, Kat, Amy, Liam, Kasey, Kelly, Andrew, Ellie, and Sage.
Thank you for all of your prayers, love and support.
Love,
The Goodman Family
Saturday, September 13, 2008
We got to see Rascal Flatts and Taylor Swift in concert on September 11 at the Virginia Beach Amphitheater. The local Country radio station, K95, gave us 2 meet and greet passes for Rascal Flatts. Thank you Catfish and Lori, you ROCK! We chose to keep it as a surprise for the boys. They had no idea where we were going until right before we parked at the amphitheater.
We had hoped that all 5 of us would be able to meet Rascal Flatts, but only 2 of us could go. So, Drew and I went and left John, Johnny and Stephen waiting for us. While standing in line to for the meet and greet with Rascal Flatts a young girl got in line behind us. It was Hannah from the summer camp Drew went to a few weeks before. It was his "girlfriend". Tell me that wasn't a God Thing! It was great to meet her and her family. She had won the meet and greet passes for singing a Rascal Flatts song in a contest. She won 3rd place out of 400 contestants. WOW!
During the meet and greet, Drew made friends with a few people in line. One of them was Dean of Sportsmen's Legacy Foundation. It is a foundation to provide outdoor mentorship to children who have lost a parent or who have a parent that has become physically challenged as a result of a public service. He and his friends were very kind to Drew. We had our 30 seconds to talk to Gary, Jay and JoeDon of Rascal Flatts and get our picture taken. Gary LeVox was very kind. Drew invited him to his birthday party, of course. I am not sure if he understood Drew, it was loud and hard to hear. I spoke to him briefly about the T-shirts (thanks Can-Do-Printing), photos, bracelets (thanks Al), business cards and ribbons I brought. He immediately put on one of the bracelets. Gary was VERY kind. We did not have time to speak to Jay and JoeDon. Drew had his photo take with Rascal Flatts and a second photo taken with Hannah and Rascal Flatts. Take a look!
The concert was AWESOME!!! Taylor Swift was very good. Rascal Flatts rocked the amphitheater. We would go see them again!!!
Please say some extra prayers for Cameron, Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Wednesday, September 3, 2008
Drew was able to get the MRI of his spine today.
Drew's MRI of the spine is CLEAN!!!! Thank you God!
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Tuesday, September 2, 2008
We will be attempting Drew's MRI of the spine tomorrow morning. He still has a cough, but we hope the anesthesia doctor will give the okay. I took him to the pediatrician today and she is comfortable with going forward with the MRI. She did put him on antibiotics. He feels pretty well, he just has a nasty, croupy cough. Please pray that Drew can get the spinal MRI and it is CLEAN.
Everyone had a good first day of school today. Drew was quite upset that I took him out of school right before he got to go to recess on the "big kids" playground. I told him how sorry I was that I had to pick him up early to go to the doctor. His response, "Sometimes I'm sorry just isn't good enough!" Hmmm, I wonder where he has heard that before? We both got a good giggle out of his response. Needless to say, it is doubtful that he will play on the "big kid" playground tomorrow, either.
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Wednesday, August 27, 2008
No MRI for Drew. The doctor did not like his cough. We do not have a reschedule date, yet. I will let everyone know when a new date has been set. Now, I am sick and Johnny is sneezing. Gotta love summer colds!
Thank you everyone for your kind words and prayers. We LOVE reading the comments in the guestbook.
Calli Update: She got her walking boot on. YEAH!!!
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Tuesday, August 26, 2008
Drew is settling in from camp. He has a cold with a croupy cough. No fevers, just a runny nose and cough. However, he also has an MRI of the spine tomorrow morning. So, the cold/cough is threatening the possibility of him having anesthesia. Please pray he will be able to get the MRI and it will be CLEAN.
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Saturday, August 23, 2008
Drew is HOME from camp!!! He had an AWESOME time and can't wait to go back next year! We are so proud of him. He loved every second of his time at camp. He said he made lots of friends. He even sang Me and My Gang by Rascal Flatts at the talent show. He even gave his autograph to his fans after his big debut. He LOVED all the mail he received. Thank you ALL for mailing him cards!
I hope to find some pictures on the camera I sent with him. I will post them soon.
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
Monday, August 18, 2008
Drew is at camp!!! We took him to get on the bus Sunday morning. He barely said good-bye to us in his excitement to go to camp. He will have the best time. It looks to be a very well organized operation. He was already making friends and found a girl, Tawney, to sit with on the bus. We had met her when he was first diagnosed and hadn't seen her for the past couple of years. So, it was nice for them to make the connection. It was also Tawney's 4th trip to camp, so she can show him the ropes.
His foot is healing nicely and his heal is flat on the ground. He is still getting used to his new walk, but he will be much safer at camp. The AFO brace can only be worn 1-2 hours until his foot heals. He needs to wear the brace, so the muscles don't lose their stretch.
Several people have asked if they could write to Drew while he is away at camp. YES, the address is: Drew Goodman, 600 4-H Center Drive, Front Royal, VA 22630. He will leave for camp on August 17 and return August 23.
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
August 14, 2008
Drew's cast is off!!! So far, it looks like it is a success. He is now standing with his heal on the floor.
WOW, was his foot stinky! It appears the cast got wet and his foot was affected/water logged. We will wait to assess it tomorrow to see if it will need medical attention. He also has a small raw spot on the inside of his foot near the arch. He is not able to wear his brace until these areas are healed. We are working hard to heal him before camp and before he loses the stretch in his muscles.
3 DAYS UNTIL DREW GOES TO CAMP!!!
Several people have asked if they could write to Drew while he is away at camp. YES, the address is: Drew Goodman, 600 4-H Center Drive, Front Royal, VA 22630. He will leave for camp on August 17 and return August 23.
Please say some extra prayers for Jacob, Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, and their families.
Love,
The Goodman Family
August 9, 2008
Drew is now sporting around a blue cast on his right lower leg and foot. After speaking with physical therapy,it was decided to put his foot in a cast to help stretch his muscles. It was next to impossible to get his foot in the brace and walking seemed to be more difficult. We were concerned that if he went to camp without being able to use his brace, he could get hurt. The way he was holding his foot when he walked could have easily caused a nasty sprain or break. The cast will be on for 8 days, taken off before he goes to camp. The hope is that the cast will stretch the muscles enough for him to be able to wear the brace while at camp. He may have to be recast after he returns from camp to continue manipulating the muscles in a positive fashion.
Several people have asked if they could write to Drew while he is away at camp. YES, the address is: Drew Goodman, 600 4-H Center Drive, Front Royal, VA 22630.
Please say some extra prayers for Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, Jacob and their families.
Love,
The Goodman Family
August 6, 2008
Thank You ALL so much for all the prayers, positive thoughts and well wishes. They worked it is CLEAN!!!! PRAISE GOD!!!!!!!! We are doing a MAJOR HAPPY HAPPY DANCE!!!!!!!!!!
We have NO idea what is going on with his arm and leg. We are working with the physical therapist to improve mobility in Drew's leg. The thought is that the Botox worked. However, it made the muscles feel so weak that other muscles over compensated for the unsteadiness and the muscles are now in a knot. The thought is to put his leg in a cast for a week to help stretch the muscles. The hope is after the cast comes off then Drew will be able to wear his brace with more success.
For now we can breath and sleep while he is at Camp Fantastic in 2 weeks!
Calli is now in a cast. Praise God! It has been an extremely long year for she and her family.
Please say some extra prayers for Stephen, Gunner, Hadley, Kasey, Katherine, Ellie, Liam, Amy, Kelly, Jacob and their families.
Love,
The Goodman Family
August 5, 2008
Hi All,
Drew's MRI is tomorrow. It was originally set for August 29. In the last week we have seen some changes in his leg/foot and arm/hand. Please say some extra prayers that this is NOTHING and his MRI is CLEAN!
Love,
The Goodman Family
June 11, 2008
Thank you everyone for your prayers. NEVER underestimate the power of prayer! His MRI was CLEAN/stable!!!!!!!!! YEAH! Thank you God! We are now breathing again. His next MRI should be in August. We will be enjoying our summer.!!!
Note: It seems the PO Box has been down for quite a while. If you have sent Drew mail and it has been returned, I am VERY sorry. Please re-send it to PO Box 94, Beaverdam, VA 23015. The problem has been resolved.
Check out Brown Bag For A Cure
AND
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Please send Calli and her family continued prayers. She is doing well and the bone seems to be growing. Cali graduates from high school this week. YEAH!!!! Pray that she will very soon get the fixator off of her leg and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please say a special pray for these brain tumor children that are having a hard time:
Katherine, Stephen, Jacob, Amy, Liam, Kasey
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
June 10, 2008
MRI Time! Tomorrow, Drew has a routine MRI. Please say some extra prayers for a CLEAN MRI!!!
Note: It seems the PO Box has been down for quite a while. If you have sent Drew mail and it has been returned, I am VERY sorry. Please re-send it to PO Box 94, Beaverdam, VA 23015. The problem has been resolved.
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Please send Calli and her family continued prayers. She is doing well and the bone seems to be growing. Cali graduates from high school this week. YEAH!!!! Pray that she will very soon get the fixator off of her leg and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please say a special pray for these brain tumor children that are having a hard time:
Katherine, Stephen, Jacob, Amy, Liam, Kasey
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
April 22, 2008
WHOO!!!! HOOOO!!! Today is Drew's 4 year anniversary with this HORRID beast! You ask why the excitement? Well, because 4 years ago, the doctors told us to go home and enjoy our time. Drew has 5 - 12 months. WELL, we did go home and enjoy our time AND we still are!!!!!!!!!! GOD IS GOOD!!!!!!!!!!!!!
However, this day is a bittersweet day, for it also is the 10th anniversary of the death of our son, Alex. Although time has taught us how to bear the pain, it never really gets easier. We love you our Snooky Man in the Sky! We miss you every day!
Come Join TEAM DREW-B for the ASK FAMILY FUN WALK & 5k
Register Now
Saturday, April 26, 2008 - 9:00:00 AM
ASK Family Fun Walk & 5k
Short Pump Town Center
Come join your friends and family for a fun day of exercise and entertainment. An expanded route at Short Pump Town Center for the 5K Run and Fun Walk begins at 9 am with registration at 7:30 am. Packet pickup and pre-registration at Saxon Shoes on Friday evening. Saxon is offering a 10iscount for your purchases through the weekend and a 10onation to ASK for your purchases. Family festival complete with music, crafts, refreshments and more begins at 9:30 am-Noon.
This event helps raise awareness and funds to help make life better for children with cancer in Central Virginia. Teams and individuals are encouraged to seek pledges!
Prizes for 5K winners as well as for team , individual, and youth fundraisers.
Entry fee $20 for adults and $10 for children 6 and older.
Drew is still in quarantine. He will start his 6th round of chemo on Saturday April 26. Since flu season is about over we are now allowing healthy visitors. But, please be mindful of Drew's low blood counts and his inability to fight off viruses and illnesses, easily. It is also important that the rest of the family stay well, so as not to bring germs home to Drew. Flu season is on the down swing, however we still are being overly cautions because there are a number of bugs still floating around. The next thing to worry about is chicken pox. There is usually an outbreak in the spring. From the chicken pox virus, Drew can get shingles. Therefore, he must not come into contact with people that have been exposed to chicken pox or the vaccine or any other recent vaccines.
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Please send Calli and her family some extra prayers. She had surgery the other day to finally remove the fixator and to place a cast on her leg. It was unable to be done because the doctors found her leg had not healed properly. This is a huge set back and could require another surgery. Please continue to pray for her and her family. Pray that she will very soon get the fixator off of her leg and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please say a special pray for these brain tumor children that are having a hard time:
Katherine, Stephen, Jacob, Amy
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
April 16, 2008
Another CLEAN MRI! We are so very thankful for all of your kind and encouraging words, thoughts and prayers. We are praising God and celebrating this victory! We are breathing again.
Drew and our family got to see another Washington and Lee Men's Lacrosse game this past Saturday. They played near us in Ashland against Randolph Macon. They won! It was another awesome experience with Drew's new "BEST FRIENDS", as he calls them. GO GENERALS! We had an wonderful time at the after game party at one of the players parents' house. These players, coaches and their families are such a blessing to us!
Come Join TEAM DREW-B for the ASK FAMILY FUN WALK & 5k
Register Now
Saturday, April 26, 2008 - 9:00:00 AM
ASK Family Fun Walk & 5k
Short Pump Town Center
Come join your friends and family for a fun day of exercise and entertainment. An expanded route at Short Pump Town Center for the 5K Run and Fun Walk begins at 9 am with registration at 7:30 am. Packet pickup and pre-registration at Saxon Shoes on Friday evening. Saxon is offering a 10% discount for your purchases through the weekend and a 10% donation to ASK for your purchases. Family festival complete with music, crafts, refreshments and more begins at 9:30 am-Noon.
This event helps raise awareness and funds to help make life better for children with cancer in Central Virginia. Teams and individuals are encouraged to seek pledges!
Prizes for 5K winners as well as for team , individual, and youth fundraisers.
Entry fee $20 for adults and $10 for children 6 and older.
Drew is still in quarantine. He did well with his 5th round of chemo on Saturday March 29. Since flu season is about over we are now allowing healthy visitors. But, please be mindful of Drew's low blood counts and his inability to fight off viruses and illnesses, easily. It is also important that the rest of the family stay well, so as not to bring germs home to Drew. Flu season is on the down swing, however we still are being overly cautions because there are a number of bugs still floating around. The next thing to worry about is chicken pox. There is usually an outbreak in the spring. From the chicken pox virus, Drew can get shingles. Therefore, he must not come into contact with people that have been exposed to chicken pox or the vaccine.
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Please send Calli and her family some extra prayers. She had surgery today to finally remove the fixator and to place a cast on her leg. It was unable to be done because the doctors found her leg was not healed properly. This is a huge set back and could require another surgery. Please continue to pray for her and her family. Pray that she will very soon get the fixator off of her leg and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
April 10, 2008
MRI time on April 16, of Drew's brain. We are praying for another CLEAN MRI!
Drew's intensive physical therapy was wonderful. Upon starting IPT he was unable to put his right heel flat on the ground or keep his right hand flat (it was usually in a fist). By the end of IPT, Drew was able to place his right foot flat on the floor, with prompts. He was using his right hand more and holding it in a more natural/flat position. Drew also gained muscle, rode a bike, and could balance on his right leg for several seconds (something he hasn't been able to do in years). We are very pleased with Drew's results. Check out: www.RichmondHopeTherapy.com
A typical day of IPT would start at 10:00 am with heat and massage, then exercise with weights, balancing games, treadmill walking 2-10 minutes, stair stepper 2-10 minutes, sit-ups, bike riding, therasuit; this suit is like a vest, shorts, and shoes with bungee straps that work like resistance bands to make his muscles/limbs work more naturally. He would also do swing and do lots of strength and control building activities. The day ended at 12:00 or 1:00.
Drew worked much harder when I wasn't there. Yes, I did leave him in the VERY trustworthy hands of the therapist and team.
Another experience I wanted to share was Drew's new "BEST FRIENDS", as he calls them. He has been adopted by the Washington & Lee Men's Lacrosse Team through The Friends of Jaclyn (www.FriendsofJaclyn.org). We saw our first lacrosse game and met the team. WOW! It was AWESOME!
We drove 2 hours to the game in the mountains. It was a beautiful day and a beautiful drive. The coaches and team made Drew and our family feel so special. We met with them while they practiced before the game. The team gave Drew hi-fives as they went down to the locker room to change for the game. On return to the field each team member and coach gave Drew hi-fives again for luck. We were touched by the kindness of one of the coaches from the opposing team, Virgina Wesleyan Marlins for introducing himself to us and hi-fiving Drew.
Drew was then honored by a face off. Drew and our family got to go to the middle of the field for the face off. They then presented Drew with a ball signed by each of the team members and coaches. It was a great game against Virginia Wesleyan Marlins, W & L Generals WON! At the end of the game all of the team came over to the bleachers and gave Drew hi-fives over the fence. This was one of the most touching experiences! After the game we were invited to the tailgate party with the Generals. Most, if not all of the team came and ate or talked to Drew, again very touching. Drew has not stopped talking about his "new best friends". It was an AWESOME day! GO GENERALS!
Check out the pictures. We will see them again this weekend.
Come Join TEAM DREW-B for the ASK FAMILY FUN WALK & 5k
Register Now
Saturday, April 26, 2008 - 9:00:00 AM
ASK Family Fun Walk & 5k
Short Pump Town Center
Come join your friends and family for a fun day of exercise and entertainment. An expanded route at Short Pump Town Center for the 5k Run and Fun Walk begins at 9 am with registration at 7:30 am. Packet pickup and pre-registration at Saxon Shoes on Friday evening. Saxon is offering a 10 iscount for your purchases through the weekend and a 10 onation to ASK for your purchases. Family festival complete with music, crafts, refreshments and more begins at 9:30 am-Noon.
This event helps raise awareness and funds to help make life better for children with cancer in Central Virginia. Teams and individuals are encouraged to seek pledges!
Prizes for 5K winners as well as for team , individual, and youth fundraisers.
Entry fee $20 for adults and $10 for children 6 and older.
Drew is still in quarantine. He did well with his 5th round of chemo on Saturday March 29.
Since flu season is about over we are now allowing healthy visitors. But, please be mindful of Drew's low blood counts and his inability to fight off viruses and illnesses, easily. It is also important that the rest of the family stay well, so as not to bring germs home to Drew. Flu season is on the down swing, however we still are being overly cautions because there are a number of bugs still floating around. The next thing to worry about is chicken pox. There is usually an outbreak in the spring. From the chicken pox virus, Drew can get shingles. Therefore, he must not come into contact with people that have been exposed to chicken pox or the vaccine.
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Calli continues to do well. Please continue to pray for her and her family. Pray that she will very soon get the fixator off of her let and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
March 23, 2008
HAPPY EASTER!
Please pray for all of the families faced with illness. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
March 19, 2008
CLEAN MRI of the head and spine. We are thanking and praising God!
Come Join TEAM DREW-B for the ASK FAMILY FUN WALK & 5k
Register Now
Saturday, April 26, 2008 - 9:00:00 AM
ASK Family Fun Walk & 5k
Short Pump Town Center
Come join your friends and family for a fun day of exercise and entertainment. An expanded route at Short Pump Town Center for the 5k Run and Fun Walk begins at 9 am with registration at 7:30 am. Packet pickup and pre-registration at Saxon Shoes on Friday evening. Saxon is offering a 10iscount for your purchases through the weekend and a 10onation to ASK for your purchases. Family festival complete with music, crafts, refreshments and more begins at 9:30am-Noon.
This event helps raise awareness and funds to help make life better for children with cancer in Central Virginia. Teams and individuals are encouraged to seek pledges!
Prizes for 5K winners as well as for team , individual, and youth fundraisers.
Entry fee $20 for adults and $10 for children 6 and older.
Drew is still in quarantine. He will start his 5th round of chemo on Saturday March 29. Drew started acupuncture treatments last week. He will have his 4th visit tomorrow. I will try to keep everyone posted on the progress. Drew has also started an intensive physical therapy program. It is a 3 week program for 3 hours each day. We hope to gain more use of his right side. I will post more at the end of the week on Drew's progress. So far, he is tolerating it well and enjoying the attention and exercise.
Due to Drew's low blood counts and his inability to fight off viruses and illnesses, easily, we are still not allowing visitors. Yes, I am being a bit neurotic, but better safe than sorry, especially during flu season. Drew gets sick so easily, on a good day. It is also important that the rest of the family stay well, so as not to bring germs home to Drew. Flu season is on the down swing, however we still are being overly cautions because there are a number of bugs still floating around. The next thing to worry about is chicken pox. There is usually an outbreak in the spring. From the chicken pox virus, Drew can get shingles. Therefore, he must not come into contact with people that have been expose to chicken pox or the vaccine.
Please pray for our friend's mother, she has been diagnosed with lung cancer. She and her family could use lots of prayers and positive energy.
Calli is continues to do well. Please continue to pray for her and her family. Pray that she will very soon get the fixator off of her let and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
March 11, 2008
Come Join TEAM DREW-B for the ASK FAMILY FUN WALK & 5k
Register Now
Saturday, April 26, 2008 - 9:00:00 AM
ASK Family Fun Walk & 5k
Short Pump Town Center
Come join your friends and family for a fun day of exercise and entertainment. An expanded route at Short Pump Town Center for the 5k Run and Fun Walk begins at 9 am with registration at 7:30 am. Packet pickup and pre-registration at Saxon Shoes on Friday evening. Saxon is offering a 10 iscount for your purchases through the weekend and a 10 onation to ASK for your purchases. Family festival complete with music, crafts, refreshments and more begins at 9:30am-Noon.
This event helps raise awareness and funds to help make life better for children with cancer in Central Virginia. Teams and individuals are encouraged to seek pledges!
Prizes for 5K winners as well as for team , individual, and youth fundraisers.
Entry fee $20 for adults and $10 for children 6 and older.
Drew is still in quarantine. He has completed 4 courses of chemo. So far, he is handling it fairly well. He is tired for about 7 days. He also has a hard time with his school work during chemo time. His memory is clouded, his speech is bumpy and his right side is weak. Thankfully, he seems to bounce back each time. We are still waiting for treatment options. It appears we are headed towards stem cell transplant.
Drew will be having an MRI on March 19, 2008. Please pray for a clean scan.
Drew had some dental surgery recently. The radiation has damaged his teeth. He had 2 teeth pulled, a crown put on one tooth and the spacers from the dental surgery in 2004 removed. He is one tough cookie, he never complains.
Drew has a very exciting opportunity. He has been adopted by the Washington and Lee Men's Lacrosse Team. Go Generals! What an awesome team of guys! They have been writing in the guestbook. We have had the best time reading their entries. Thanks! We hope to be able to meet them in person. We met them through a friend whose daughter is involved (thanks Alice & Lexie). The foundation responsible is called Friends of Jaclyn
Due to Drew's low blood counts and his inability to fight off viruses and illnesses, easily, we are still not allowing visitors. Yes, I am being a bit neurotic, but better safe than sorry, especially during flu season. Drew gets sick so easily, on a good day. It is also important that the rest of the family stay well, so as not to bring germs home to Drew.
Calli is doing very well. She has returned to school to finish her senior year. Please continue to pray for her and her family. The bone graft she had seems to be healing well. Pray that she will very soon get the fixator off of her let and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
February 14, 2008
HAPPY, HAPPY VALENTINE'S DAY!!!
The scans Drew had done a couple of weeks ago, at NIH, ALL came back with no evidence of tumor! Thank you GOD!
Due to Drew's low blood counts and his inability to fight off viruses and illnesses, easily, we are still not allowing visitors. Yes, I am being a bit neurotic, but better safe than sorry, especially as we enter flu season. Drew gets sick so easily, on a good day. It is also important that the rest of the family stay well, so as not to bring germs home to Drew.
Calli is doing very well. She has returned to school to finish her senior year. Please continue to pray for her and her family. Pray that she will very soon get the fixator off of her let and a walking cast placed. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength. We LOVE you guys!
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly.
Love and Hugs to all,
The Goodman Family
January 21, 2008
Thank you EVERYONE for all of the birthday wishes for Drew. He was so excited to see all the email was for him. He also loved the journal entries. It has become a daily routine for him to check the website. He also received so many cards and gifts by mail. Thank you all for being such a special part of his birthday and our lives.
Because Drew's blood counts are dropping with each round of chemo, we had a birthday party with some of his friends last weekend. Then, this past weekend was the family birthday. He had an AWESOME birthday!
We are traveling to NIH this week for more tests. Drew will be having an MRI, MRS and PET Scans. Please pray that these scans show improvement and no growth. We are really ready for 2008 to be an AWESOME year.
Due to Drew's low blood counts and his inability to fight off viruses and illnesses, easily. We are not allowing visitors. Yes, I am being a bit neurotic, but better safe than sorry, especially as we enter flu season. Drew gets sick so easily, on a good day.
Calli is doing very well. She has returned to school to finish her senior year. Please continue to pray for her and her family. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength.
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly. It is especially difficult during the holidays.
Love and Hugs to all,
The Goodman Family
Thursday, January 17, 2008
HAPPY 8th BIRTHDAY, Drew-B!
You are our HERO!
We Love YOU!
Love and Hugs,
Mommy, Daddy, Johnny & Stephen
December 24, 2007
HAPPY BIRTHDAY, JESUS!
MERRY CHRISTMAS, Everyone!
Now that chemo has started, Drew will be more susceptible to illnesses. Therefore, we will not be leaving the house (except for doctor/hospital appointments). Please understand we need to keep Drew very he!althy. If you have been sick or around anyone that has been sick 48 hours prior to visiting Drew, please visit another time. Keeping Drew healthy means keeping all of us healthy, so please be respectful and mindful when you may see one of us, also. When visiting please make sure clothes are clean (school/hospital people especially). Please use antibacterial soap upon entering the house. I know I sound more neurotic than usual, but I am erring on the side of caution, especially as we enter flu season.
Calli is doing very well since her bone graft surgery. Please continue to pray for her and her family. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength.
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all! God continues to bless us in so many ways! Our family is wishing you all a VERY Merry Christmas and Happy and HEALTHY New Year!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly. It is especially difficult during the holidays.
Love and Hugs to all,
The Goodman Family
December 18, 2007
Drew's MRI looks good. Merry, Merry Christmas to US!
Drew will have another MRI the end of January. For now he will continue on chemo until the next treatment plan is decided.
Now that chemo has started, Drew will be more susceptible to illnesses. Therefore, we will not be leaving the house (except for doctor/hospital appointments). Please understand we need to keep Drew very healthy. If you have been sick or around anyone that has been sick 48 hours prior to visiting Drew, please visit another time. Keeping Drew healthy means keeping all of us healthy, so please be respectful and mindful when you may see one of us, also. When visiting please make sure clothes are clean (school/hospital people especially). Please use antibacterial soap upon entering the house. I know I sound more neurotic than usual, but I am erring on the side of caution, especially as we enter flu season.
Calli is doing very well since her bone graft surgery. Please continue to pray for her and her family. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength.
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all! God continues to bless us in so many ways! Our family is wishing you all a VERY Merry Christmas and Happy and HEALTHY New Year!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly. It is especially difficult during the holidays.
Love and Hugs to all,
The Goodman Family
December 13, 2007
Drew is doing well. We have been busy.
Saturday, Dec. 1, a friend and her parents came to decorate Drew's tree house for Christmas. It is AWESOME all decked out in colored lights!
Sunday, Dec. 2, was the ASK annual Christmas party. This is our favorite party of the year. We have a chance to see the other families we have met over the years. It is wonderful to see their positive progress. Of course, it is sad to hear bad news and to see all the new faces. Santa was there handing out lots of great gifts.
Drew had a doctor's appointment on Thursday. We have decided to start him on the same chemotherapy he took at the beginning of treatment, Temodar. He started Saturday night. So far, he is doing well. He will take the chemo for 5 days in a row and off for 23 days. We are unsure of how long this regimen will last.
The oncologist would like Drew's treatment to be a stem cell transplant. Second opinions are also suggesting stem cell transplant. We are not real happy with that option, but are continuing to research. That is why we have decided to start the Temodar until more information can be gathered.
The doctor also completed the paperwork for school. Drew will not be returning to school this school year. He will continue to have homebound instruction.
We found out Friday that the chemo-sensitivity testing failed. They were unable to get the tumor to grow so they could perform the testing. We are unsure of, exactly, what that means other than we will not have the test results to help us make a decision in the treatment plan.
Saturday we had the opportunity to go the North Pole. This is an event put on by a group called Special Love and a hospice group out of Washington DC. We drove to Dulles Airport where we were met by United Airlines employees in the parking lot. We were shuttled by bus to the airport. We went through normal airport security. We were directed to the United Airlines' boarding gate where there was the Washington Oriels Mascot, clowns, music, coffee and snacks. At 9:00 am we boarded the United Airlines plane. It was an awesome plane. It was a double decker. The flight attendants were awesome. The pilot invited everyone to tour the plane and the cockpit. At take off time everyone was asked to keep the shades on the windows down so we couldn't see the secret path to the North Pole. We were then taxied to another gate (they tried to make it seem like we were flying). Everyone got off the plane and entered an area of the airport decorated as the North Pole. Mr. & Mrs. Claus was there handing presents to every child and taking pictures. Other characters were Rudolf, Frosty, Sponge Bob, Big Bird, Elmo and Ronald McDonald. It was a great time.
Now that chemo has started, Drew will be more susceptible to illnesses. Therefore, we will not be leaving the house (except for doctor/hospital appointments). Please understand we need to keep Drew very healthy. If you have been sick or around anyone that has been sick 48 hours prior to visiting Drew, please visit another time. Keeping Drew healthy means keeping all of us healthy, so please be respectful and mindful when you may see one of us, also. When visiting please make sure clothes are clean (school/hospital people especially). Please use antibacterial soap upon entering the house. I know I sound more neurotic than usual, but I am erring on the side of caution, especially as we enter flu season.
Calli is doing very well since her bone graft surgery. Please continue to pray for her and her family. Pray she continues to heal, both physically and mentally. Her family could also use some prayers for strength.
Thank you so much for your continued thoughts, prayers, meals, mail and offers of help. We can't express how much it means to have so much loving support. Many have asked what we would like. Other than prayer, the best way to honor Drew and our family is by holding your loved ones close. We don't know how long we are blessed to hold them here on earth. We love you all! God continues to bless us in so many ways!
Please pray for all of the Caringbridge Families. There are so many families that are hurting so badly. It is especially difficult during the holidays.
Love and Hugs to all,
The Goodman Family