IntroMessage, August 24, 2000 - June 6, 2004 This page is to keep you updated on Alex's progress. Alex was diagnosed April 8, 2003 with stage iv nueroblastoma. He has had 8 chemo treatments, surgery to remove a tumor from his right kidney, numerous scans and bone marrow aspirations, bone marrow transplant in December 2003, 5 weeks of radiation and the cancer is still there. We started going to Sloan-Kettering in Ny city this past March for the antibody 3F8. He had one treatment of the 3F8 and when we went back up for his second round of treatment we found out that the cancer had gotten worse and he was no longer a candidate for the treatment. We brought him home to love and enjoy every second we had with him. He became an angel on Sunday, June 6, 2004. He no longer has cancer, booboos, medicine, he is dancing and singing in the streets of Heaven. He is the lucky one.
Psalm 34:17-19 The righteous cry out, and the LORD hears them; he delivers them from all their troubles. The LORD is close to the brokenhearted and saves those who are crushed in spirit. A righteous man may have many troubles, but the LORD delivers him from them all.
We often wish we could escape troubles-the pain of grief, loss, sorrow and failure; or even the daily frustrations that wear us down. God promises to be "close to the brokenhearted." to be our source of power, courage and wisdom, helping us through our problems. Sometimes he chooses to deliver us from our problems. When troubles strike, don't get frustrated with God. Instead admit that you need God's help and thank him for being by your side.
~Into My Heart~
You tiptoed right into my heart: I knew I loved you right from the start- that tiny hand, that baby face. A world of filigree and lace. Your smile, your voice, so sweet and dear, You filled my world with endless cheer. You own my heart, dear little one, You filled my world with endless fun, Togetherness, each hug, each kiss- Tis all of these that I miss. I loved the times I tucked you in, The mornings would our day begin. Dear little boy, you'll always be The whole wide world and all to me. I'm thankful for each hour we spent And all the happiness you lent. It matters not that we're apart, You'll always live within my heart.
Wow, it's hard to believe that it has been four long years since Alex went to Heaven. This year was much different than the past three years. Which makes me think we have come to a different stage in our grief. Everybody went on with their lives like any other day. I felt a bit guilty but Alex was remembered and in our thoughts all day long. A few months ago I started looking for a new job. The hospital was not the place for me anymore. I wanted something closer to home with no weekends or holidays. I was missing out on a lot working at the hospital. One day I was looking in the want ads and came across an ad for an administrative assistant for the hospice that took care of Alex and I also volunteered for them. A week later I had the job and I am now the admin assist to the Director of volunteers. One day soon I will become the coordinator of the whole department. It is my dream job and I love it. so that is another reason why we went on with our lives. I couldn't take any days off since I just started. Today was Neil's last day of school. We had his graduation last night and it was wonderful. Tears were shed as I sat there so proud of my Neil and the whole time thinking we should have done this two years ago with Alex. It's hard to believe Neil will be in first grade next year. He has been playing baseball and I must say he is the cutest! I came home tonight and mowed the lawn. Just like any other day. So with that, I must tell you that this will be my last update. I thank all of you for sticking with us these past years and being there for us whether by leaving a message, saying a prayer and just checking in on us. Thank you so much. My words cannot express it enough. Without many of you I wouldn't be where I am now in my grief. I will still check to see if anyone leaves us any messages, they will be welcome. And since I work with the volunteers now, I must use this website to recruit some. If you are in my area and are interested in volunteering a little bit of your time, please contact me. We need volunteers for patient companionship, give the caretakers a break or if you have any special talents we could use you. It is a very rewarding job. My email address is at the bottom or you can contact me at Three Rivers Hospice in North Versailles, PA.
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