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Jo Hannah Rebecca and Rachel

Sending our Christmas wishes to you and your family
Jo Hannah, Rebecca and Rachel

Hello Tami and Amber,
Thought I would stop by to wish you a happy and safe Halloween. I can't wait to see what you came up with for Amber's costume. Nice job on the painting! Glad to hear Amber is doing better.
I would like to "introduce" to you my boyfriend Barry. We have been dating for a while now and I think it's time for my CB friends to know him. Hope you are doing well!
Bye for now!
Love,
Sami
Philippians 4:13

glitter-graphics.com

Hello from Emma!
My mommy finally has her laptop updated with all my friend’s websites (whatever that means!). So, we can come by and visit a lot more now. Hooray!!
(((HUGS))) from Emma

Finally able to check in on our friends again. Loved seeing Amber's beautiful face again. I hope she is feeling better. Glad to hear how well school is going. I'll be checking in more, now that our computer troubles are over with! Take care. (((HUGS)))
www.caringbridge.org/tx/emmabyrne

Carrie White
- Wednesday, September 5, 2007 11:40 AM CDT

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Hi Amber! My name is Peggy and we have a daughter, Darci who was diagnosed with Rett Syndrome last February. She turned 3 on August 9th. A day after your birthday!! She started school two weeks ago and likes the bus also. I think she likes the bumpity, bumps. School really wears her out though. My husband and I also have a 16 year old daughter and 2 boys, 14 and 9. We live in central IL. I liked reading your caring bridge site and you are welcome to visit Darci's. It is www.caringbridge.org/visit/darcipoppen. Have fun at Cedar Point. We've not been there, but drove past it once and have read about it. Sounds great!

Peggy
Peggy Poppen <dppoppen@gridcom.net>
IL USA - Tuesday, September 4, 2007 12:36 AM CDT

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Hi Tami and Amber. It feels like it's been forever since we've talked. How's the gang doing? My Amber has never walked, and I LOVE the stairlift. I can actually take her to her room now and she has some dignity back not living in the livingroom....it's been great.
Well let me know how you've all been.
www.caringbridge.org/visit/ambergant
Jacklyn Gant <jacklyngant@coastalnow.net>
richmond hill, ga usa - Sunday, August 19, 2007 7:18 PM CDT

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Happy Belated Birthday Amber! I hope you had a wonderful birthday and you had lots of giggles!!!
Stacey P.
Toledo, OH - Friday, August 17, 2007 8:39 AM CDT

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Happy 6th Birthday, Amber! Hope you had a wonderful day.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Thursday, August 9, 2007 10:22 PM CDT

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Happy Birthday Amber!!!
Love,
Kristin
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH USA - Wednesday, August 8, 2007 11:56 AM CDT

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Sorry it's been a while since I've been around. I've been away from the computer for a while. I hope you are all doing well. I'm sorry Amber's program is closing...I always thought that seemed like such a neat program. I'm always thinking of you and praying for you.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, July 27, 2007 5:42 PM CDT

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I saw Dr. Ratliff-Schaub (spelling?) at scrapbooking last weekend. She asked about Amber and says, "hello" to all of you. I think that's awesome what you are doing with educating residents.
Carrie White
OH - Friday, July 27, 2007 4:10 PM CDT

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hi Amber!
Yay for educating the doctors! I think they really need it! :)

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, July 25, 2007 2:11 AM CDT

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Love the journal Tami! The video almost made me cry -- it's absolutely beautiful.
Carrie White
Perrysburg, OH USA - Friday, July 13, 2007 10:07 AM CDT

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Wow Amber! I really like your new walker and your pool boat! That looks like so much fun. I'm glad you are having a great summer! Your new haircut is so cute, too. You are such a pretty girl! Love and hugs to you! Ms. Stacey
Stacey P.
Toledo, OH - Wednesday, July 11, 2007 3:57 PM CDT

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Tami,
I'm suppose to be here at work working and i find myself drawn to read every bit of Amber's webpage. I was so happy to see you and Karl and your family. You guys are amazing!! I hope you all had a good time Sunday it was the best gift for me to see you guys. I'm sorry we have not kept in touch over the years. But everything happens for a reason right? Thank You again for coming to the party. Let's get together..i would love to learn more about Amber and your other precious children.
Take Care
Love Michelle, Chelsea and Briana
Michelle Freeman <michfree67@yahoo.com>
Toledo, oh USA - Tuesday, July 10, 2007 12:41 AM CDT

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Thanks for sharing your daughter's website address in my son Jeremiah's guestbook. I enjoyed reading about Amber. She is a beautiful little girl. It is a joy to see her living life so fully!

I will be praying for Amber in the days ahead.

Many Blessings,
Sandi Queen (Jeremiah's Mommy) caringbridge.org/pa/jeremiah <queens07@windstream.net>
New Freeport, PA - Friday, July 6, 2007 10:50 PM CDT

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Hey Amber its Megan from Chi Omega! I just wanted to say hi to you and your family! I hope everything is going good! Hope you guys will come back and visit sometime soon!

Megan Moore
Bowling Green, OH USA - Thursday, July 5, 2007 1:25 PM CDT

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You must be doing very well, Amber. Mom hasn't updated your page in a while (although she's very, very busy). It looked like you were having a blast camping last weekend. I hope it was fun for you. Hope to hear more about the conference soon.
Linda Keller
Holland, OH - Saturday, June 30, 2007 1:15 PM CDT

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I am glad you went to the conference and were inspired. It was interesting to learn that the music part of the brain has not been damaged. No wonder Amber likes music so much.
Grandma Bonnie <bonnie.ferguson@utoledo.edu>
- Tuesday, June 12, 2007 12:53 AM CDT

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Just coming by to give you big hugs from both Joseph and I. Have a wonderful week. I can't wait to see the pictures of your new haircut.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, June 11, 2007 6:05 PM CDT

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Can't wait to see your haircut, Amber. I hope Mariah didn't cut it.
Linda Keller
Holland, OH - Thursday, June 7, 2007 1:32 PM CDT

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Well hi there little miss Amber! I got your momma's message about camping. We are going to have a blast, no electricity though but miles of beach all to ourselves!!! It'll be great fun! I hope all is well in the Heiss family. I'd love to see pics of your Make A Wish trip!
Take care.
www.caringbridge.org/visit/ambergant
jacklyn gant <jacklyngant@coastalnow.net>
Richmond Hill , mo usa - Thursday, May 31, 2007 10:16 AM CDT

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Hi Amber and family,
Just stopping by to see how you were doing. I'm sorry to hear that Amber wasn't happy the other day. I hope she is doing well today and i hope you have a good time at the IRSA Conference!
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, May 23, 2007 2:10 PM CDT

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Hey guys. Just checking in. The story about Give Kids the World is amazing. God can use any bad circumstance for good if we let Him.
Linda Keller
Holland, OH - Sunday, May 13, 2007 9:08 PM CDT

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myspace background

Stopping by to say hi! Sorry to hear you haven't been feeling well! Sending our love and hugs.. Jerimarie and Daphni Jo
Jerimarie and Daphni Jo <irbyfam@eburg.com>
Cle Elum, WA USA - Thursday, May 10, 2007 7:11 PM CDT

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Hi Amber,
Wow...has it been that long since my last guestbook entry? Jeez...I better keep up. Tami, I think you are so brave to have gone to Chicago on your own. You are really amazing. Amber, I'm sorry to hear that you have been sick. Please know I always pray for you and think of you.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, May 9, 2007 1:46 PM CDT

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Hey there, Amber! Wish I could have seen you when you came to Chicago! Hopefully I will be able to see you this summer. Tell everyone there I said Hi!
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield , IL - Tuesday, May 8, 2007 8:42 PM CDT

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Hi Amber! Just stopped by to check out your site again..it has been awhile since I last read up on things. I am soooo looking forward to going to the conference with your mommy!! I know we are going to have a great time together. Take care and keep on smilin' girl. Love ya!
Kristen Hawkins <Khawk823@sbcglobal.net>
Lansing, MI USA - Saturday, April 28, 2007 9:09 AM CDT

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Tami - you never cease to amaze me! I would've been a nervous wreck going to Chicago alone, by train, strange place, strange hotel - you make it sound like an adventure. I admire how you always make everything look so easy (maybe you're not calm on the inside, but you sure hide it well).

I'm so glad things went well at the clinic. Every new piece of information you find is one more step to a happier Amber and happier family. I pray that things continue to go in this direction.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Tuesday, April 24, 2007 3:42 PM CDT

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Hi
My name is Jenna and I came across Amber's site. She is an inspiration and beautiful on the inside and out. She is in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Monday, April 23, 2007 7:04 PM CDT

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Hi Amber,
Checking in to see how you're doing. Sounds like you're fabulous!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH usa - Tuesday, April 17, 2007 9:53 PM CDT

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Hi Amber,
Hope you are doing well!
Love and hugs,
Sami
www.caringbridge.org/visit/sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Sunday, April 15, 2007 6:42 PM CDT

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Just stopping by to say HI! So happy to hear you are doing well... lots of hugs.... Jerimarie and Daphni Jo
www.caringbridge.com/wa/daphnijo
Jerimarie and Daphni Jo Irby <irbyfam@eburg.com>
Cle Elum , WA USA - Sunday, April 15, 2007 2:20 PM CDT

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Glad Amber is happy for a while. I am so glad to hear that she is also standing up! What a girl! I hope her seizures continue to be okay.
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Friday, April 13, 2007 12:14 AM CDT

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Jo Hannah Rebecca and Rachel

Jo
England, - Saturday, April 7, 2007 6:50 PM CDT

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She's a girl . . . maybe she wants chocolate!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Monday, March 19, 2007 5:29 PM CDT

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Sorry, I know it's been a while again. I always read your ramblings! It's so great to hear how Amber is doing. I am glad she's better.
Sami <samibabi@hickorytech.net>
Minnesota United States - Tuesday, March 13, 2007 2:13 PM CDT

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Tami,
I read you 'ramblings' all the time! Don't stop journaling. It's great to hear that Amber not only feels better but is talking. She's going to do wonderfully. It was so fun to hear her laughing at Jay's skit tonight. How cool.
Linda Keller
Holland, OH USA - Sunday, March 11, 2007 8:20 PM CDT

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Glad Amber is getting better! I hope she continues to get better fast!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Thursday, March 1, 2007 7:29 PM CST

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Disney World sounds AMAZING! I'm sure it was the greatest vacation ever! I'm so happy for you guys. So what was the deal with Amber-ville. Do they change the name for each kid??? That is so cool.
Stacey P.
Toledo, - Thursday, March 1, 2007 6:00 PM CST

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Hi Amber..... I hope that you are feeling better. Joseph and I send you big get well hugs. I will check in again real soon

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, February 27, 2007 9:05 PM CST

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Hi guys,
Hope Amber is doing well. I am doing okay. I have a whole week off of school and am helping at the Nursing Home. I love it there.
Love and hugs,
Sami

Sami Philippians 4:13 <samibabi@hickorytech.net>
., Minnesota United States - Wednesday, February 21, 2007 8:59 PM CST

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Oh My gosh! That article you quoted gave me goosebumps. How amazing! I hope that they keep up the research and keep having these results. LOVE the pictures of Disney. Wish I could see more. I'm so glad you all had such a great time. Glad to hear the seizures aren't as frequent!
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Sunday, February 11, 2007 6:18 PM CST

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Amber - It makes me cry just to read about your awesome trip to Florida. You and your family were blessed beyond words. How cool. Then, I opened up the Toledo Free Press paper today and saw your adorable picture on a trading card in the Make A Wish advertisement. Your life will bless more people than you'll ever know. You're so beautiful. (P.S. Watch out - Mollie's coming over to play with Hayley tomorrow.)
Linda Keller
Holland, OH - Saturday, February 10, 2007 6:00 PM CST

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I am glad you got to go to DW. It is an awesome trip and it sounds like you enjoyed it a lot.
Michael Odell <mjodell@indiana.edu>
Bloomington, IN USA - Friday, February 9, 2007 6:26 PM CST

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Sweet sweet Amber......I am so happy you were spoiled rotten. It does my heart good to know that your family had an awesome time. Big hugs from the Gant family.
www.caringbridge.org/visit/ambergant
Jacklyn Gant <jacklyngant@coastalnow.net>
Richmond Hill, GA USA - Friday, February 9, 2007 5:49 PM CST

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Hey Amber! Hope you and the family had a great time in Florida!!! I know it wasn't real warm but it's gotta beat that cold weather in Toledo!!!!! Can't wait to see pictures!!
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Wednesday, February 7, 2007 10:34 PM CST

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Hi Amber and family! We are from Chi Omega. We just wanted to say hi and we hope you had an awesome trip. Hopefully you got to see all the Disney characters you wanted to, especially Mickey and Cinderella :o) We had such a great time at your party and we hope all your wishes came true!
Colleen and Sarah
- Wednesday, February 7, 2007 10:15 PM CST

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Hi Amber and family,
Heard of your site and Make A Wish party through my cousin. Chi Omega raised money for our daughter's liver transplant expenses. Their a great group of truly caring people. Enjoy your 'family time' together at Disney. You'll have a blast! Praying for continued strength to Amber and you!
Jenny <tomatoherr@aol.com>
Metamora, OH - Sunday, February 4, 2007 12:50 AM CST

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Amber's story brings tears to my eyes. I am so proud of her and her family for taking on the challenge and looking at life through a positve outlook. As a Kappa Delta alum of Chi Omega I could not be any prouder to be apart of an organization that is helping out this wonderful little girl.
Katie Vogt <vogter07@yahoo.com>
Akron, OH 44313 - Thursday, February 1, 2007 8:55 AM CST

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Hi Amber!
That party looks so so awesome! You got such great gift! :)

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, February 1, 2007 1:54 AM CST

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Wow!! I am so happy for you all! What an awsome bunch of ladies to do that for all of you! You deserve it!!!! Can't wait to here about your trip! Glad to hear Amber is doing better! Wish I could hop in a suitcase and go to Disney with ya!!!! Miss you all!
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Wednesday, January 31, 2007 7:41 AM CST

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Wow! Your Make A Wish party brought tears to my eyes. How wonderful that the whole sorority took such an interest in your family and helped to make Amber's wish even more special. You are a very special family and are a blessing to many, many people. Amber - thanks for sharing your extra cupcakes with the 7th grade small group. Mr. Keller had a blast doing a 'cupcake eating contest' with the kids. Be sure to ask Jay about it. Have a GREAT time at Disney this week. See you soon.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Tuesday, January 30, 2007 10:15 PM CST

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Well, if I can stop crying I will try to write and say how wonderful the sorority girls were to put on this party for Amber and your family I am overwhelmed by their kindness and generosity.

Grandma Bonnie
Bonnie Ferguson <bonnie.ferguson@utoledo.edu>
Holland, OH USA - Tuesday, January 30, 2007 3:15 PM CST

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What a truly touching story!!!!! It brought tears to my eyes. I am so proud my daughter (Katy Ferrell/Chi Omega)and all of her sisters for this fun event they planned and carried out. I know it made their day as well. God Bless you all and take care, and have lots of fun in the sun at Disney.
Susan Ferrell-Morrow <formy3gals@aol.com>
Sandusky, OH USA - Tuesday, January 30, 2007 10:26 AM CST

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Hello! I hope you all have a great time in the sunshine! What a perfect time to leave the cold and snow. I hope you all have a great time and make sure to say hi to all the Disney characters and get their autographs! Have fun! :)
Katy Ferrell <katyfh@gmail.com>
Bowling Green, OH USA - Tuesday, January 30, 2007 9:40 AM CST

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I really enjoyed being Ambers wish granter. I hope you guys have a wonderful time in Disney! Don't forget to send picture! Big hugs to you all
Amy Covyaw <acovyaw@sbcglobal.net>
- Monday, January 29, 2007 6:11 PM CST

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Wow, what a great time you must have had at the Sorority House, Looks like everyone enjoyed everything. Only a few more days till Disney. Hope it warms up a bit before your arrival, Have fun and enjoy!!!!!!!!!
Grandma Heiss And Pam <plrtkh@aol.com>
Toledo, OH USA - Monday, January 29, 2007 5:19 PM CST

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Hi Amber!!! Hope you and your family have tons of fun at Disney World! Say Hi to Mickey for me! :)~ Remember ChiO loves you!
Jessica <jhelmke@bgnet.bgsu.edu>
Bowling Green, OH - Monday, January 29, 2007 4:17 PM CST

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Have a great trip and thank you for coming to the Chio house!
Tabitha Cummins <ctabith@bgnet.bgsu.edu>
- Monday, January 29, 2007 10:33 AM CST

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Have a great trip!!!! Quack!!!!
Amy
Perrysburg, oh USA - Sunday, January 28, 2007 11:58 PM CST

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Dear Amber,
What great joy you brought to the Chi Omega house today! You and your family is an inspiration to all of us!
Kelly
Kelly Elton
Whitehouse, Oh USA - Sunday, January 28, 2007 7:41 PM CST

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Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
., Minnesota United States - Saturday, January 27, 2007 8:51 PM CST

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Have a wonderful week!!!



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Sunday, January 21, 2007 0:43 AM CST

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Hi Amber,
WOW! A photo shoot! Sounds like you are famous, girl! I hope you are doing well. I am glad the seizures have toned down. I have been praying for you for seizure control. Things here are okay. Just enjoying a quiet evening at home. I am not feeling well and am very tired...but I will be okay. I hope you've had a great weekend!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
., Minnesota United States - Sunday, January 14, 2007 7:25 PM CST

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Hi Amber!
Awesome! You're gonna be famous! lol...

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, January 8, 2007 4:19 AM CST

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Wow! I am so excited for you Amber!!!! That is going to be so much fun to have your picture taken and go to the auction!!!! You deserve every bit of it!
Stacey P.
Toledo, OH - Thursday, January 4, 2007 5:23 PM CST

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Best wishes for a wonderful

Love Joseph
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, January 2, 2007 7:25 PM CST

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Hello miss Amber girl and family.
I am soooo very excited for your trip, I feel like I'm going too. I saved everything that Make A Wish sent us. I still have our tickets from the Disney ship. I have our itenerary and everything. We still look at the video and pics regularly. You can never take enough. I hope you all have a great new year!
www.caringbridge.org/visit/ambergant

Jackie Gant <jacklyngant@coastalnow.net>
SACKETS HARBOR, ga USA - Friday, December 29, 2006 11:00 AM CST

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Belated greetings hope you had a good one

Jo Hannah, Rebecca and Rachel

Jo
England, UK - Wednesday, December 27, 2006 6:05 AM CST

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Merry Christmas Amber. :) Miss you.
Kristin VanCuren Koester <tintint7t@aol.com>
Toledo, OH - Monday, December 25, 2006 9:06 PM CST

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Wishing you and your family a very Merry Christmas!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, December 22, 2006 7:44 PM CST

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Hi Heiss Family,
Wanted to drop online to say big hello! Great to hear Amber is doing well! We love Mocha (the kitten you gave to us) very much everyday and he definitely has some Barb's warm and energetic spirits! He slept with my Dad for an hour or two today when he visited us!

Mocha was very naughty sometimes, he loves to dig all papers out of trash, climb our Christmas tree everyday, sleeps with E-V-E-R-Y-O-N-E including 2 dogs, and many other things.
Matt
Rochester, NY - Thursday, December 14, 2006 11:31 PM CST

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Hey Amber,
Glad to hear the seizures have decreased somewhat. Get them moving Tami! Lol. I am praying for you always.
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, December 13, 2006 11:47 AM CST

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Hi Amber!
Just checking on yah! Hope those seizures stay away!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, December 4, 2006 8:55 PM CST

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Hi, Amber. I haven't checked on you in a long time. I'm glad to hear so many good things! Disney is getting closer all the time. I bet you can't wait. Christmas is just around the corner, too. I know you've been good and Santa has fun stuff ready for you. What about your brother and sisters? Got any good stories to tell about them?
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Sunday, December 3, 2006 1:23 PM CST

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Hey little miss Amber girl!
How are ya? I hear you are going on a very special trip where you get to be the princess the WHOLE time!!! You deserve it, along with your family too!
I am sorry it's been so long since I've checked in on ya, it's been a long year for my princess Amber. I will try to get back really soon. HUGS!
www.caringbridge.org/visit/ambergant
jackie <jacklyngant@coastalnow.net>
richmond hill, ga USA - Friday, December 1, 2006 4:53 PM CST

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Dropping by to say hello, sorry we’ve not signed the guest book lately, we’ve been so busy since Hannah has her guest appearance on TV here in the UK

Sending love and hugs your way

Jo Hannah, Rebecca and Rachel
Jo <yarnall@blueyonder.co.uk>
England, UK - Thursday, November 23, 2006 6:27 PM CST

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Love Joseph

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, November 22, 2006 7:44 PM CST

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LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA , - Thursday, November 16, 2006 8:52 PM CST

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Hi Amber!
Nice photos! Looks like a cool party. Glad that you're doing ok!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, November 16, 2006 3:17 AM CST

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Hey Amber! I hope your'e having a good day. It seems like forever since I've seen you. Hope to see you over Christmas break. Take care and tell everone I said Hi!!!!
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Tuesday, November 14, 2006 1:40 PM CST

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Hi Amber & family! Sorry it's been so long since I've been by, I hurt my neck. I hope a dosage change is all that's needed to help the seizures. Praying for better days for Amber soon! So happy to hear about your disney trip! You are in our prayers always! Take care. (((HUGS)))
Lauren & Emma <markhamfamilY@msn.com>
- Saturday, November 11, 2006 4:07 AM CST

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Hi all,
I'm so so sorry Amber is not doing well. However, I'm very very glad that you were able to go to a high school and speak about Amber. Too bad she's not well but she will overcome all of those obstacles with time. I pray that she will get better and better.
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, November 8, 2006 8:32 PM CST

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Hi Amber!
Sorry to hear that you were feeling unwell. Hope you're feeling better!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
singapore, Singapore - Wednesday, November 8, 2006 3:45 AM CST

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Tami, Amber and family, What a joy to see that Amber is progressing so well. There will always be small setbacks, but just look how far she's come!! It's amazing.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Sunday, November 5, 2006 2:01 PM CST

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Thanks, again, Tami and Amber, for your willingness to come to Fostoria to speak with my class; I do hope to have an opportunity to speak with them sometime in the not-too-distant future, when I get both land legs back. I'll share with you anything I learn from them.
Mary VanCuren <Lons542@aol.com>
Fostoria, OH USA - Saturday, November 4, 2006 8:28 AM CST

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Glad to read that Amber is doing well and the family is hanging in there! My thoughts are with you, Tami and I wish you the best for the upcoming holidays...
Karen Disch <kjlrenz@cox.net>
- Thursday, November 2, 2006 7:04 PM CST

---

Hi my name is Tony Kuhlman. I am a student of Ms. Mary Vancuren at St.Wendelin High School. I was interested in looking at you site and learning more about Amber's illness. All I have to say is that God makes everyone special and someday Amber will be just like any other kid. I also wanted to say that I have a lot of respect for you. I takes a very strong willed person. And what i have read on your site and what i have heard from Ms. Vancuren I cant wait to see you and Amber on friday. See you then.


Tony Kuhlman <TK24543008@aol.com>
Findlay, OH USA - Tuesday, October 31, 2006 7:17 PM CST

---

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, October 30, 2006 10:15 AM CST

---

Hi Amber!
Yay for eating and walking! You're doing great!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, October 26, 2006 3:42 AM CDT

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I love your swing, Amber!!!!! I am totally jealous! I wish I had a swing in my kitchen!!!!
Stacey P
Toledo, OH USA - Thursday, October 19, 2006 9:01 AM CDT

---

Hello Tami and Amber! See you soon.
Heather Royer <heatheroyer@yahoo.com>
- Tuesday, October 17, 2006 5:44 PM CDT

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Hi Amber your new swing looks like so much fun!!!! I am so sorry to hear about the seizures and gas pain. I hope that you get to feeling better real soon. Have a blessed week.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, October 16, 2006 7:33 PM CDT

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Hi Amber!
Glad to hear that things are going good! Hope you get back to horse back riding real soon!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Friday, October 6, 2006 4:25 AM CDT

---

Hope all is well. Please know that you are always in my thoughts and prayers

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, September 26, 2006 8:21 PM CDT

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LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA , - Sunday, September 24, 2006 9:46 PM CDT

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Hi Amber!
Wow! You get to go to Disney World!! That is just way too cool!!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, September 21, 2006 10:14 PM CDT

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Hey Amber! Just checking in on ya. Hope you are having a good day! Tell everyone hi from me!
Jackie
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Tuesday, September 19, 2006 11:32 AM CDT

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Oh my gosh!!! How incredibly exciting! What a great blessing to be chosen! I am so happy for you guys and can't wait for you to go so we can hear all about the trip!
Stacey Plaisance
Toledo, OH - Saturday, September 16, 2006 1:42 PM CDT

---

Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, September 13, 2006 8:47 AM CDT

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Hi Amber and all, I am so glad to hear all is well at the Heiss household. Thinking about the Disney trip you guys are going on and trying to find a way to go. Anyone willing to give up their spot? Jay? Hayley? Tori? Mariah?
Aunt Terri <tlpool321@yahoo.com>
Holland, Oh usa - Tuesday, September 12, 2006 4:15 PM CDT

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Amber, that is SOOO cool you get to go to Disney World with Make-A-Wish! I hope you have a fun time! We won't hear a confirmation on Angela's wish for another month...but it sounds pretty hopeful for her.

I'm really glad to hear things are going well for you at school. That probably makes your mom and dad very happy. You go, girl, and show them your stuff there!

www.caringbridge.org/visit/angelag
Rose-Marie and Angela Gallagher
Maple Valley, WA - Tuesday, September 12, 2006 2:21 PM CDT

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Hey there, Amber! Glad to hear school is good! Hope you all have a great day! Miss you tons!
Love ya, Jackie
Jackie White <jackie.white3059@sbcglobal.net>
Plainfield, IL - Saturday, September 9, 2006 9:21 AM CDT

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Hi Amber. I check on you ALL the time. I thought your mom was never going to have time to update your page. She's probably busy with school, school, school. I'm so thankful that school is going great for you now. Have lots of fun there.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Thursday, September 7, 2006 9:31 PM CDT

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Hi Amber! You are so very beautiful! We love your site, and are glad you are feeling great now! Our daughter, Sophia,3, is also a Rett Angel, and we go to Chicago to see the RS specialists twice a year. We hope you get to go there, too. We understand not wanting to travel- we drove from IA to see Dr. Motil and Dr. Percy in December, 2005. Way too long of a trip! Sophia's next clinic weekend is Nov. 4&5- still a big trip for her, but tons closer. You keep getting stronger, and stay well. We will be praying for you, little one.
Angel Hugs,
Sophia Mees and Family
Michelle Mees <PrayForOurAngel@MSN.Com>
- Thursday, September 7, 2006 4:31 PM CDT

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Hey girlie girl. Just wanted to drop some hugs for you. My Amber is doing better, still weak, but smiling. When she smiles the whole world smiles with her, so I am pretty happy about it. You keep having good days and tell your mommy to keep that school in line or we'll all have to come up there and whoop some booty-----oops, you might get into trouble on that one. Nah, mom would love to hear that! LOL Hugs!!!!
www.caringbridge.org/visit/ambergant
Jacklyn Gant <jacklyngant@coastalnow.net>
richmond hill , ga USA - Wednesday, September 6, 2006 10:34 PM CDT

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Hi Amber and Family,
Sorry it has been so long since signed the guestbook. I check in on Amber and your family almost everyday. I am so glad to hear that school is going well for her. I hope that it continues on that path. I will have Amber in my thoughts and prayers.
Take care and talk to you all soon!

Amanda Feld <mags11788@comcast.net>
West Chester , PA US - Wednesday, September 6, 2006 4:07 PM CDT

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Hi Amber and family!

I am so sorry that it's been such a long time since I've signed, but I check in all the time. I am SO glad to hear that the school situation is going more smoothly now. I certainly know how frustrating schools can be with any kind of special need, so I feel for you guys. I really hope that this classroom works out for Amber. It sounds like your trip to Texas was very productive, and I'm glad that the doctors there had so many good suggestions. By the way, I'll be back in Toledo again on November 30th. Hope that you all are having a great Labor Day weekend, and, Tami, I hope that you're feeling better. Lots of love!
*~Sarina~* <sarinadee@gmail.com>
Philadelphia, PA - Sunday, September 3, 2006 8:00 AM CDT

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Have a wonderful Labor Day weekend!!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Saturday, September 2, 2006 7:48 PM CDT

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Amber we are coming by to say hello. Joseph wants to send you BIG BIG hugs. Take care and we will check in on you again real soon.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, August 30, 2006 11:05 AM CDT

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Hey Amber!
Looking at those wires... wow... I think you're really brave!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, August 28, 2006 10:40 AM CDT

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Hey, guys. Checking in again to see if things have improved at school. Looks like they have. I asked for prayer in staff meeting on Tuesday. I also sent an email to all of the office ladies asking them to pray for your family while you advocate for Amber. Many of them checked out the link to Amber's page. I know you had lots and lots of prayers going up for you that day. I'm sure God will continue to guide and provide for all your needs.

By the way, your kitchen floor looks great! What a cool surprise. Also, thanks for loaning us Hayley tonight. Mollie and Hayley are having a blast.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Friday, August 25, 2006 9:45 PM CDT

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Keeping you in my thougths and in my prayer's always.

Love Brenda MY LOVING DAD'S SITE <brurka@shaw.ca>
Edmonton,Alberta/Canada, - Thursday, August 24, 2006 7:52 PM CDT

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Hi Tami and family!
Thanks for letting me know you posted the info about your trip. Glad it was a success!
Angie Avers <aversfamily7@sbcglobal.net>
Romeoville, IL US - Wednesday, August 23, 2006 9:51 AM CDT

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Hey there Amber. Just wanted to tell you I am thinking about you. Miss you all so much. More than words can say. I hope school goes better for you tomorrow. Your mom and dad love you so much. You are such a gift. Praying for you. love Jackie
jackie white <jackie.white3059@sbcglobal.net>
Plainfield, IL USA - Tuesday, August 22, 2006 11:19 PM CDT

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Wow. I was following Amber's progress while she was in Texas, and everything looked like it was going great. Then she came home and went to school. What a let down. I'm so very sorry. Tami, I will definitely be praying for you and Karl that God will show you exactly what to do about school for Amber. I can't imagine making the tough calls that you have to make sometimes. Hopefully you will be able to update her IEP since you are armed with some newer information after returning from Texas. I remember one of the 'musts' was air conditioning since she can't sweat. I don't recall which school she was going to be at this fall. I've only heard positive things about J. Shuer. Is that an option? Again, I know God will direct you in the right path. As awful as you must be feeling today, it will get better. I know it will. I will definitely ask all of our family to pray tonight and all of the ladies at work tomorrow. Keep us posted on Amber's page (even when you don't feel like it.) :)
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, August 21, 2006 4:55 PM CDT

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Hi Amber and family!
Sorry it's taken me soo long to get to your page. I checked on you yesterday I just didn't sign the guestbook. Funny how that is right? Lol. Anyway, I'm just checking on you. Just got home from work at the Nursing Home. I love the job and it's great for me. The love I get from the residents is great. No pay, as it's volunteer work but hey I couldn't care less! Lol. That's just the way I am. Anyway, I'm glad you were able to get things figured out at the Rett Clinic in Texas. I think we need more of those around the US so all the Rett Angels have the great care they need. They need someone to specialize on Rett Syndrome because it's such a complicated syndrome. So much is included with it. Please know you're always in my thoughts and prayers.
Sending all my love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, August 18, 2006 9:02 PM CDT

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Amber and family,

You don't know me, but I found your site from another CB site and I've been following your site for a few weeks now. Just wanted to say you're awesome and an inspiration to many. Due to having Cerebral Palsy, I'm in a power wheelchair myself, so I can somewhat relate to what you're going through. Stay strong and remember NOTHING IS IMPOSSIBLE!!!



Stacy <stelly15us@yahoo.com>
- Thursday, August 17, 2006 7:27 PM CDT

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You are always in my thoughts and prayers.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, August 17, 2006 7:06 PM CDT

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I'm so glad you guys made it there safely and Praise the Lord you have a room at RMH! Continue to keep us updated as you can.
Stacey
Toledo, OH - Thursday, August 17, 2006 8:25 AM CDT

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It looks like Amber really enjoyed her birthday! I loved the half and half cake! What a cute idea!!!
Stacey
Toledo, OH - Monday, August 14, 2006 12:22 AM CDT

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It looks like you had so much fun on your Birthday. I will keep you in my prayers while you are in Houston.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Sunday, August 13, 2006 5:20 PM CDT

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HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY DEAR AMBER, HAPPY BIRTHDAY TO YOU!!!!! We hope that your day was wonderful and magical!!!!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, August 9, 2006 9:25 AM CDT

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Hey there, Heiss family. Wow, your Texas trip is just around the corner. I know you are excited to visit the doctor again and hopefully gain some more great ideas for Amber. I'm so thankful your flights are working out well. I'll keep praying that the Ronald McDonald house has an opening when you arrive. Happy Birthday, Amber!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Sunday, August 6, 2006 6:48 PM CDT

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Amber, Tami and Family,

Wow, you guys are amazing. Reading about your journey is truly inspiring. You are in our thoughts and prayers. May God continue to bless you, as you so richly deserve.
Tom & Song Feguson (Dave's brother) <trferguson@cox.net>
Cleveland, Oh USA - Wednesday, August 2, 2006 4:00 PM CDT

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Hi Amber!
Glad to hear that your endoscopy went well!!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, July 31, 2006 9:41 PM CDT

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Just coming by to say hello. I am glad to hear that the testing went well. Have a wonderful week.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, July 31, 2006 8:20 PM CDT

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I LOVED the video montage of your family!!!! I stole your idea for my blog (and the ticker countdown, too!)
Stacey Plaisance
Toledo, OH USA - Saturday, July 29, 2006 1:49 PM CDT

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Dear Tami,Amber and Family you truly are an inspiration to me. I have one grandson and I feel very fortunate that he is a healthy. Please know that you will always be in my prayers. Good luck with everything in Texas.
Mary Woodward(Dave's sister) <mwoodward_2000@yahoo.com>
Toledo, oh 43609 - Thursday, July 27, 2006 2:55 PM CDT

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Amber looks so cute in her swimsuit and sunglasses! She is such a pretty girl!!!
Stacey Plaisance
Toledo, OH - Thursday, July 27, 2006 10:14 AM CDT

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Hi from Emma & Madi!

Hi there! Loved seeing all those new pictures. Glad to hear Amber has had some really good days. We are praying the endoscopy goes well tomorrow & hopefully you can get some answers. Also, we're praying for a safe trip to Houston. I was at TCH recently & wow(!!!), it is an amazing facility. I cannot remember if you've been before. Anyway, it is an amazing hospital. Praying for more good days too!! Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Wednesday, July 26, 2006 10:22 PM CDT

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Hi, Amber!

We're praying that your trip to Texas will go smoothly and the doctors will know exactly what to do for you. The Great Physician will be there for sure.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Tuesday, July 25, 2006 8:31 PM CDT

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Hi Tami and Amber. I know you are so anxious to see the Texas doctor again. I will be praying that everything works out with your flights and that Hayley will be free and get to sit by you guys. That's quite a load! Amber looks so peaceful when she's sleeping on her wedge. I'd like to borrow it sometime to get a decent night's sleep. How about it, Amber? Are you willing to loan it out? What a great blessing that you've been able to get so many cool new things for Amber. I know God is sending the right people your way with just what you need and when you need it. He'll send the right person that knows about the Ferrel tubes, too. It just has to be the right time. We'll all be praying for your trip. Hayley is totally excited. She was telling Mollie all about it. Don't worry, Tami. Hayley's cool about it and a great girl. I'll check in on you again soon.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, July 24, 2006 3:16 PM CDT

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Hi Tami and Amber, thanks for signing Princess Kalair's guestbook! We hope you guys can get the tummy issues resolved soon, they are NO fun! We tried a farrel bag some years ago and it didn't work for us, but hopefully you can get one soon and see if it will work for Amber. Oh, two thoughts on the venting thing and messes (we have fed the bed, couch, etc. our share of times, LOL!)...now I put the bolus syringe inside a ziploc bag when we are venting Kalair and push the tip of the syringe through a corner of the ziploc before attaching it to the gtube extension. Then if the tube overflows, it goes into the ziploc bag instead of everywhere, also I know how much food/residuals Kalair has lost that way since it is in the bag instead of all over the bed. I hope this makes some kind of sense, I wish I could draw you a picture, but email me if you have questions. Oh, my other idea was, could you velcro her tube to her clothes so she can move around easier? We haven't had to do this, because Kalair only needs to be vented at night time and she can't move around as much as Amber does because it is hard for her to breathe in many positions, but that was just a thought... We will be praying that you guys can get everything resolved and that your trip to Texas will help you guys know better how to help your little princess. Next week we are taking Kalair's little brother, Arturo, to Utah for his third trip in a drug trial and Miracle Flights is helping us as well. Oh, and speaking of Arturo, that reminds me, I read you entry about swimming and I'd really like to get some of those ankle weights for him too. Did you order them online, or could you tell me where I could get some? Whew, what a long guestbook entry, LOL! We will be keeping Princess Amber in our thoughts and prayers...

Sincerely,
Liz, Tim, Shay, Princess Kalair and Prince Arturo
Liz Dutzy <kalairsmom@yahoo.com>
Olathe, KS USA - Saturday, July 22, 2006 9:19 PM CDT

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Hello Amber and Family,
So glad you all had a good weekend of swimming and staying cool. I hope that all your appointments in Houston go well and you find some answers to everything that you are concerned about regarding Amber. I will be checking back in soon.
If you want to visit my page, the link is below, just copy and paste it into the browser window.
www.caringbridge.org/pa/amandafeld/
Amanda Feld <mags11788@comcast.net>
West Chester , PA US - Friday, July 21, 2006 5:14 PM CDT

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Hi all just coming by to check in on you all. I am so glad to hear that uping the meds has helped. Have a good week.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, July 18, 2006 11:40 AM CDT

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Hi Amber!
I love the photo of you! :) Glad to hear that the increase in meds is helping you feel better.

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, July 17, 2006 1:00 AM CDT

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Hi Tami and Amber
Amber you are such a little cutie!
I'm so glad you figured things our with the GI doc and Dr. Nagel. Hopefully she keeps having her happy days and stops seizing. She's beautiful. I hope you're doing well
Love
Sami
Sami Lloyd-Miller Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, July 14, 2006 6:28 PM CDT

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Hi, Amber. Wow, two days of no crying and you got rid of your big sister, Haley, for a night. How fun was that! Haley told me Mariah's been at it again with the scissors. You think you could teach her to leave the haircuts to the hair stylist? Just between you and me, Mariah doesn't do a very good job on her own hair! Keep smiling, Amber. You're so cute.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Friday, July 14, 2006 2:58 PM CDT

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Tami, I am praying for you and Amber. My heart goes out to you.


Stacey
Toledo, OH USA - Thursday, July 13, 2006 12:38 AM CDT

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Hey Amber and Mom,
I read your update. I think maybe you should try contacting Angel Flights they fly families to medical appointments. I hope all is going well and that you will get some answers at your next appointments. I will be back to check in soon.

www.caringbridge.org/pa/amandafeld/
Amanda Feld <mags11788@comcast.net>
W. Chester, Pa US - Saturday, July 8, 2006 8:42 PM CDT

---

Hi Amber

Hannah the birthday girl has just dropped in to say Hi

Jo Hannah, Rebecca and Rachel

Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, July 5, 2006 6:54 PM CDT

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Hey Amber,
Its good to hear that the venting helps you feel better. Take care!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, July 4, 2006 1:41 AM CDT

---

Happy 4th of July

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, July 3, 2006 1:41 PM CDT

---

Just coming by to say hello. I hope you feel better real soon.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, June 27, 2006 9:08 PM CDT

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Hi Amber!
I hope that your tummy will start feeling better really soon! Hope you will have fun on your trip.

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, June 27, 2006 2:27 AM CDT

---

I hope that works to keep it open all the time. You will have to keep us updated. Your link doesn't work on Skylar's site for some reason. Maybe its just my computer.
Have fun on your camping trip. Hopefully the tube will be better. I will check on you again real soon.

Shannon & Alyssa 4 RS
www.caringbridge.org/ks/alyssadarrah

shannon <shaystoiber@sbcglobal.net >
Leawood , KS usa - Friday, June 23, 2006 11:05 PM CDT

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Hey,
I am sooo glad you figured things out! Hopefully you can figure something more out at the Rett Clinic in Texas. I haven't been feeling that great...sinus problems! grrr...I took down my page because of bad comments..so I hope we can still keep in contact. Anyway, I will be praying for you lots, that you'll have better days and you can get things figured out soon. I understand what you mean by not wanting to leave Amber when she is crying and in pain. And the fact that you know Amber the best. I felt the same way with my rett angel. I was her best friend...her mom understood her and all that, but I felt I could talk to her and she could tell me how she felt even without talking. I hope you have a wonderful week!
Love,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, June 21, 2006 5:43 PM CDT

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Hey Tami and Amber, Praise God! He's provided an answer to your problem!! Earth is hard, but it's not forever! Focus on Him, for He cares for you. Martha
Martha Neeper <Neeper6@sbcglobal.net>
Toledo, OH USA - Monday, June 19, 2006 9:45 AM CDT

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Hey Amber!
Its so good to hear that leaving the g-tube open helps you loads! But hope there's another better solution soon!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, June 18, 2006 8:43 PM CDT

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hi amber!

i'm so sorry i haven't signed your guestbook in so long! i've been thinking of you and your whole family, though! You are so precious! Did anyone ever tell you you are a beautiful girl? Well..i'm sure EVERYONE has told you that! And I can tell you are beautiful inside and out! I am so glad you are feeling better (knock on wood)! I hope you can figure out something so maybe you could just see the horses and not ride on them...hmm. I"m sure your mom has it all under control, though! And i'm so glad you finally found some good doctors who actually care about you, and not about how many patients they see or how much money they make! And having the nurse make appointments for you is SUCH a lifesaver!!! making appointments eats up so much time and energy and then they book way out so u have to call the doc anyway to try and get back in sooner...so it's just great when the dr.'s offices make the appts for you! okay, i'm done rambling! but i really hope this upswing continues! sending big hugs and lots of love your way!! :)
HUGS,
Tara :)
Tara Jones http://www.caringbridge.org/visit/tarabara
Kensington, CA United States - Sunday, June 18, 2006 4:39 PM CDT

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Amber, You are such a beautiful child. You are in my thoughts and prayers.
Tammi Lonsway (Kristin Koester's cousin) <Agenttiptoe@aol.com>
Maple Hts., oh Cuyahoga - Tuesday, June 13, 2006 11:04 PM CDT

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(((HUGS))) to Amber! And to you too. I'm sorry Amber's tummy is causing so much distress. I hope the new meds help some. I don't know if this would help much, but we use a heated teddy bear (from grampa's garden, they have a website) on Emma's tummy when she has bad gas (venting too). She also takes Levsin for it (although too much of that worsens the constipation--of course!). I don't know if the docs would want Amber on L-Carnitor, or if she is already, but it is helping Emma's bowels a lot. It's a supplement, with not side effects other than a fishy smell & diarrhea. We have her dose just right now so that she has a bm every day (usually) & is only on miralax as needed. The L-Carnitor has helped her constipation more than anything else!! Praying for Amber to get some relief. Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Tuesday, June 13, 2006 5:11 PM CDT

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Hi Amber,
I hope you start getting a lot better REAL soon! I'm praying for you lots.
Love,
Sami
Sami www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, June 13, 2006 4:23 PM CDT

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Amber & family, you are in my prayers. I hope you start feeling better soon.
Kari VanCuren (Kristin Koester's sister) <litlbear72@aol.com>
Toledo, OH - Tuesday, June 13, 2006 12:26 AM CDT

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Amber and your family are in my prayers.
Rosey Lonsway
(Kristin Koester's aunt)
Rosey Lonsway <fifi542@aol.com>
toledo, oh lucas - Tuesday, June 13, 2006 11:49 AM CDT

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Hi Amber,
I'm sorry to hear that you're in so much pain. Hope that you'll start feeling better and that the doctors will be able to help you!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, June 12, 2006 2:58 AM CDT

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Oh you poor girl!
I can't believe you're going through so much. Good thing the Rett Clinic in Houston may be able to help. I remember so much about BMs with Ash. She would cry and cry and I remember her stomach would be rock hard. She didn't have a tube, so I couldn't "vent" her. It's heartbreaking. I hope you get better soon sweetie!
Love,
Sami
Sami www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, June 9, 2006 2:46 PM CDT

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Hey there,Amber!!! Just wanted to say hi!! Can't wait to see you at Pokagon!! Madie is excited,too! oxox-Jackie
Jackie White <jackie.white3059@sbcglobal.net>
- Thursday, June 8, 2006 4:27 PM CDT

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Hi Amber!
Sweet girl, I'm glad you're finally starting to feel better! I think it's so cool how kids are coming up to Amber and playing with her. That is just awesome. I understand what you mean by "I wonder where they get the sensitivity". It's not you thinking too much! It's just that you are interested in knowing. Hope you have a wonderful week!
Love,
Sami
Sami www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, June 8, 2006 4:15 PM CDT

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Just coming by to say hello. You are all in our thoughts and prayers. Have a wonderful weekend.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, June 7, 2006 10:10 PM CDT

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Hi Amber. Tell your mom it's almost time start counting 'down' until your next birthday! Yea! I hope you'll feel good to go camping in a couple of weeks.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Monday, June 5, 2006 6:37 PM CDT

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Tami and Amber,
I am so sorry that Amber is not doing well. I remember when my Rett angel would have her crying spells, I can't tell you how much it broke my heart. I understand your problem, I have been having some kind of problem like that with digesting food and it is a pain! I hope she gets some relief soon! Poor baby! Stay with your mama instinct, if you don't think something is right then go with your gut. Don't let anyone stand in your way. Mom telepathy is amazing. I always trust moms when they have a feeling something is wrong with their child. That instinct is a strong one. Nothing is stronger than the bond between a mother and her child. Praying hard for better days.
Sami
Sami www.caringbridge.org/visit/samimiller, www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, June 3, 2006 10:21 PM CDT

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Hello, little lady. I know your tummy is hurting and I am sending you a prayer all the way from Iraq that you get that poo out. My daughter goes through the same thing sometimes and I am sure that you will get through this just as easy as she does. Just drink you some prune juice and you will be fine. And I absolutely love your page. You have me jealous with your pretty self. Take care of your self and your mommy lil' one. Us mommies need you to take care of us sometimes too.
sherrell jones mom to Pnut <sherrell.jones@krab.centaf.af.mil>
Kirkuk, IRAQ - Thursday, June 1, 2006 8:34 PM CDT

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Can't believe it's been so long since I've sent you a message. I think it's great that you and Amber were able to meet Sarina. Too bad she was crying though. I'm glad she's a bit happier than she was before. Praying for you always
Sami
Sami www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, May 27, 2006 5:28 PM CDT

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Amber - I don't always have time to sign your guestbook, but I check on you often. I wish your pains would go away. I pray for you often.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Friday, May 26, 2006 4:23 PM CDT

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Just coming by to say hello. Have a wonderful weekend.



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, May 25, 2006 8:58 PM CDT

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Hi Guys,
Just checking in...that's weird about the rash. Anyway, hope today went well. I'll see you guys tomorrow evening.
:) Kristin
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Tuesday, May 23, 2006 8:42 PM CDT

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Amber,
I hope you get happy really soon! I'm so sorry to hear you're grumpy girls! No fun! I'll be praying for you
Love, hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, May 22, 2006 6:00 PM CDT

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www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, May 16, 2006 8:53 PM CDT

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LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS.love the picture's
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON ,ALBERTA, - Friday, May 12, 2006 10:48 AM CDT

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What wonderful pictures of all the beautiful Rett angels you met. Their eyes tell so many stories. Glad to hear what a good time you had, & the information you received. While we are no longer on the "Rett path," I can tell you I will never forget all I learned about RS & the families living with it everyday. What's interesting, as we learn more about mito--there are many similarities between it & RS. There are several girls who, like Emma, were thought to have Rett, but then go on to have a mito dx. We go on 5/25 for Emma's muscle biopsy, I will keep you posted. Thank you for all your support throughout this journey! I love coming by & reading about Amber & seeing her precious pictures! Hope you have a good weekend. Take care. (((HUGS)))
Lauren & Emma www.caringbridge.org/tx/emmabyrne <markhamfamily@msn.com>
- Thursday, May 11, 2006 3:40 PM CDT

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Hi Amber ~ Sounds like your get together was alot of fun! We love all the pictures of everyone you met! Lots of hugs.. Daphni Jo and Jerimarie

www.caringbridge.com/wa/daphnijo/





Jerimarie and Daphni Irby <irbys@nwinfo.net>
Cle Elum, WA - Wednesday, May 10, 2006 3:23 PM CDT

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Hi Amber,
My name is Jenna and I came across your website. You are an inspiration and a fighter. You are a beautiful little girl. You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Tuesday, May 9, 2006 0:44 AM CDT

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Hi Amber and Tami!
Your rett gathering looks like it was a blast! I understand how it can be encouraging and discouraging at the same time. Rett Syndrome is hard to see someone go through, especially someone you love. I don't have much time but I just wanted to let you know that I am thinking of you and praying for you always!
Love, hugs, and blessings,

www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, May 5, 2006 5:45 PM CDT

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I love the pictures! I wish I was little more dressed, me and Sky! LOL! Just got out of the pool. I understand what you mean about encouraging, but yet discouraging too. I'm always nervous about meeting new girls, but excited too. See ya soon!
www.caringbridge.org/oh/skylarbaker

nikki, skylar <nd6780@netzero.net>
- Wednesday, May 3, 2006 5:04 PM CDT

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Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, May 2, 2006 11:01 PM CDT

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Hi Amber!!! You are such a doll! I love your new family picture. What a cute idea with the shirts and hats, I may have to copy off of you next winter!
My Amber loved getting your message. I hope all is well there. Big hugs!
www.caringbridge.org/visit/ambergant
Jackie (Amber Gant's mom) <jacklyngant@coastalnow.net>
Richmond Hill , GA USA - Monday, May 1, 2006 8:22 PM CDT

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Hey, Amber and family! Hope you're doing better this afternoon! I miss you!!!!!!!!!
Jackie White <jackie.white3059@sbcglobal.net>
- Thursday, April 27, 2006 11:38 AM CDT

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Hi Amber! Great new pictures, cutie pie!! I think the forgetfullness comes from sleep deprivation--I fear I'm losing my mind some days! Hope your tummy gets to feeling better SOON. You are in our prayers, sweet Amber. Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Wednesday, April 26, 2006 7:43 PM CDT

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Just coming by to say hello. Hope all is well. Have a blessed week.

www.caringbridge.org/fl/joseph

Elizabeth <michael_shipley@bellsouth.net>
- Sunday, April 23, 2006 10:22 PM CDT

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Have a Happy Easter! God bless and *warm hugs* ><>†<><

*Jennifer C* from Angels on Earth <coopsie78@gmail.com>
Eugene, OR USA - Friday, April 14, 2006 5:25 PM CDT

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I love this update. Let me know if you get in to Extreme Home Makover so I can watch, it would be nice to see someone I know get their dream home. How wonderful for your church to care about you so much! That's how my church is, my friend Aleia will be getting a Habitat Home and the church is supporting them and helping them out with it. I am doing as much as I possibly can. I know and can relate with certain disabilities and wanting to get a new home that is more accesible to Amber's needs. I have to tell you, I understand about the breath-holding. When I did see my friend with RS, she used to turn blue and hold her breath, sometimes she just did it and would gasp after a while, other times it meant a seizure. But, if Amber doesn't have those kind of seizures I wouldn't worry. Seeing Amber and hearing about her brings back a lot of wonderful memories for me. Thank you, by the way, for your message on my guestbook. I really appreciate it. Please know that you are always in my thoughts and prayers.
Love, hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, April 14, 2006 3:47 PM CDT

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That is SO exciting to hear about the home makeover. What a wonderful church-that is very special. I actually somebody this week that is friends with Ty-the main guy. Let me know if it goes so I can watch it. That is my dream too. That show always makes me cry(happy tears). Glad to hear amber is doing well. One of days i'd love to meet you and Nikki and get the girls together. Thanks for checking on alyssa-it had been a while.lol I am no good at it either. lol Keep us updated.
Shannon, alyssa's mom
www.caringbridge.org/ks/alyssadarrah
shannon stoiber <shaystoiber@sbcglobal.net >
leawood , ks usa - Friday, April 14, 2006 0:05 AM CDT

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Hi Amber!
I love that picture! :)Hope you're having a great day!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, April 11, 2006 8:12 AM CDT

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Hannah and Rebecca just wanted to drop by and tell you that they have a new baby
Sister Rachel Emily born on 6th April 2006 weighing in at 9lb

Jo Hannahand Rebecca

Jo <yarnall@blueyonder.co.uk>
England , UK - Monday, April 10, 2006 3:14 PM CDT

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Hi Amber & family! Sending hugs from Emma!!
Lauren & Emma <markhamfamily@msn.com>
- Monday, April 10, 2006 8:47 AM CDT

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Keeping you in my thoughts and in my prayer's always.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca ~THE PRAYER BEARS~>
EDMONTON , - Tuesday, March 28, 2006 8:34 PM CST

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Hi, Heiss family. It's always great to log on and find that everything is good with your family. Congratulations to Jay and Hayley. I know you both studied super hard and Jay will continue studying hard for regionals. We'll probably be there to watch! Have fun at the Retts Retreat.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Tuesday, March 28, 2006 7:49 PM CST

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Hey there, Tami and family. I am sending my very first e-mail ever. I hope it goes thru. I miss you all. The pictures of Amber are too cute. Makes me cry! I sooo wish I was there to see you in person. Wish I could see Amber in Rainbows. I miss her smile and laugh! Tami you are an insperation. You're an awsome mom and deserve an award.Miss you tons! God bless, Jackie
jackie white <jackie.white3059@sbcglobal.net>
Plainfield, IL USA - Monday, March 27, 2006 10:21 AM CST

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Have a great weekend!
Love & Bunny Kisses, Emma
The Markham Family <markhamfamily@msn.com>
- Friday, March 24, 2006 4:58 PM CST

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Glad that you are standing better! Way to go for Amber!!!
Thanks for all the encouraging words with the g-tube. I thought of amber and her weight gain and then it happened to alyssa. So I thank you for praying for her.
I love the car seat-cool kido!! lol
Check back alittle later. Tell Nikki and the girls we said hello and give them hugs from us. Keep up the hard work.
www.caringbridge.org/ks/alyssadarrah
Shannon-alyssa darrah's mommy
shannon <shaystoiber@sbcglobal.net >
Leawood, ks - Tuesday, March 21, 2006 11:04 PM CST

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Amber, you look so great in your new car seat. You should have a much more comfortable ride to Junior Bible Quiz this weekend. Remember to cheer on Jay and Hayley! See you there.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Wednesday, March 15, 2006 8:26 PM CST

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Happy St. Patrick's Day! Love, Emma

Precious pictures of all your beautiful girls. Glad to hear things are going well. Emma loves those middle of the night wake-up calls too...wish I could have that much energy at 3 am!! Yey about Amber lifting her legs--how wonderful! We keep y'all in our prayers. Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Wednesday, March 15, 2006 6:07 PM CST

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Have a Happy St. Patrick's Day!! God bless and *warm hugs*

*Jennifer C* from Angels on Earth <coopsie78@gmail.com>
Eugene, OR USA - Wednesday, March 15, 2006 3:56 PM CST

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Just stopping by to let you know that you are in my thoughts and in my prayer's always.
Sorry it's been awhile since I have been here.Have a good day and I will be back again really soon.

HAPPY ST.PATRICKS DAY



LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, March 14, 2006 7:21 PM CST

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Hi Amber!
I used to grind my teeth a lot too, but i did it when I was sleeping. :)

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, March 9, 2006 10:22 AM CST

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Wonderful to hear about the giggles! Hope that keeps up, & her tummy doesn't give her troubles this week. Emma too has been (over) regular lately...nice change! More smiles, for sure! Glad to hear Amber's dentist appt went well--I was so nervous about Emma's! Her dentist sees a lot of special needs kids too (several Rett girls too, which is why we chose her), & they were incredible with Em! Hope the therapies go well! You are in our prayers!! Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Tuesday, March 7, 2006 3:45 PM CST

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Hope all is going well. Have a blessed weekend

www.caringbridge.org/fl/jsoeph
Elizabeth <michael_shipley@bellsouth.net>
- Saturday, March 4, 2006 11:40 PM CST

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Just swinging on by to say Hi

HI Amber

sorry you have not had a good day. Hannah has those sort of days too, we wish it could be easier and I hate to see her in pain

We have the purpose driven life book, its such a brilliant book isn't it

give Amber a great big hug from us

sending our love and best wishes

Jo Hannahand Rebecca
Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, March 1, 2006 3:42 PM CST

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Hey Amber...
Praying for you and your family at this time!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, March 1, 2006 11:15 AM CST

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Our thoughts & prayers are with you all. Take care. (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Monday, February 27, 2006 9:07 PM CST

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THE PRAYER BEARS
LOVE ALWAYS BRENDAMY LOVING DAD <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Monday, February 27, 2006 9:02 AM CST

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Hi Amber!
Praying you have a better day!
Love, hugs, and blessings,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, February 25, 2006 4:12 PM CST

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Amber sorry that you had such a sad day. I hope that tomorrow is better for you. Have a good weekend


www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, February 23, 2006 11:43 PM CST

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Hello my wonderful friends!
Amber sweetheart, I am so happy that you are doing well. You are such a beautiful little girl...such a pretty Rett Angel. I miss Ashley, but it helps to see that you are doing well...it gives me some hope for Ashley. Gah..I miss her so much. But, anyway..sweetie I am so happy that you are well. The GI doctor sound really nice...hope you have a wonderful visit with him in the future.
Love, hugs, and blessings,
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, February 21, 2006 12:57 AM CST

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Hi Honey ~ Sorry to hear your not feeling well. Daphni is feeling the same way. Hope you get better soon ~ Love The Irbys

www.caringbridge.org/wa/daphnijo
Jerimarie Irby <irbys@nwinfo.net>
Cle Elum, WA USA - Tuesday, February 21, 2006 0:18 AM CST

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To a sweet, sweet friend...

Love & Bear Hugs too, Emma xoxo

Oh my goodness--what a story! At least Amber found it funny! Love the pictures. Hope you have a good week! (((HUGS)))
Lauren & Emma <markhamfamily@msn.com>
- Tuesday, February 14, 2006 4:36 PM CST

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Hey there! Happy Valentine’s Day!! Sorry about the mess at the hair salon...but I just KNOW that this is one of those stories you’ll laugh about years from now. And don’t worry, when we meet in Toledo you don’t need to care about anything happening in front of me! Speaking of that, I just want to let you know that I’ll be there May 21st- 24th.

About the songs, there are waaaay too many to give you a list, but really, tell me anything you want and I’ll put it on your page. Hope you’re having a great week– I’ll check back soon!!

*~Sarina~* <sarinadee@gmail.com>
Philadelphia, PA - Tuesday, February 14, 2006 1:53 PM CST

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I will keep Amber in my prayers and hope that she continues progressing. She is a beautiful girl and lucky to have a wonderful family. Your Faith will continue to carry you and Amber.
Judy Cooper <judylloydcooper2@Yahoo.com>
Cape Coral, Florida USA - Tuesday, February 14, 2006 12:06 AM CST

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LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, February 14, 2006 0:44 AM CST

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Hi Tammy , Glad to hear you made it thru the haircut.I'm gonna pray God will be with you always. You are such a great person . give everyone all our love......
Judy Best <Judybest59@aol.com>
Swanton, Ohio USA - Monday, February 13, 2006 7:55 PM CST

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The Prayer Bears
Hailee
happy valentines day
melissa <angels4hailee@Cox.net>
cavecreek, az usa - Monday, February 13, 2006 5:39 PM CST

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Thinking of you today! Love, Emma
I hope the GI doc can help Amber & the new med relieves her tummy troubles. You're in our thoughts & prayers. Take care. (((HUGS)))
Lauren & Emma (2 weeks since MECP2...waiting patiently!) <markhamfamily@msn.com>
- Thursday, February 9, 2006 1:42 PM CST

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Hi Amber and family. Another incident to add to the scrapbook, Mariah's haircut. I'll bet Amber had a good laugh about that! I bet Mom didn't, though. Hope you're having a good week. The name of the IBS medicine is Zelnorm. Hope the GI doc can help you feel better, Amber.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Wednesday, February 8, 2006 4:21 PM CST

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Hugs & Love from Emma
Lauren & Emma <markhamfamily@msn.com>
- Tuesday, February 7, 2006 10:20 PM CST

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Hi Amber ~ We are sorry to hear about your loss! You and your family are in our thoughts and prayers. Love, The Irbys

www.caringbridge.org/wa/daphnijo/
Jerimarie Irby <irbys@nwinfo.net>
cle Elum, WA USA - Tuesday, February 7, 2006 10:00 PM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, February 7, 2006 9:45 AM CST

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Coming by to give Amber big hugs from Joseph!!!! Have a great week


www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, February 7, 2006 0:05 AM CST

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Dear Amber,
Your Aunt Barb was a friend of mine, so I know all about you. She loved you very much and was proud of all that you are and all you are able to do. Aunt Barb and I worked together. I am a music therapist, and have met many wonderful young girls who also have Rett Syndrome. Therefore, I was pleased to be able to make a contribution in memory of your Aunt Barb. She taught so many of us how to live, and also how to accept death with grace and faith. I miss her very much but know the world is a better place because she walked upon it.
Best regards to you and your family,
Marcia
Marcia Humpal <mehumpal@ameritech.net>
Olmsted Falls, OH USA - Monday, February 6, 2006 8:53 PM CST

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What a beautiful family photo! I love it. I love when Emily only wants me, and wants to cuddle. It makes it all worth while, eh? :) Thanks for checking in on Emily all the time!
Sara, Emily's mommy <waffle13@comcast.net>
- Sunday, February 5, 2006 9:12 AM CST

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Sounds like you guys have had quite a week. :) Never a dull moment.
Kristin <tintin7t@aol.com>
Toledo, OH - Saturday, February 4, 2006 7:47 PM CST

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LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Saturday, February 4, 2006 1:17 AM CST

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Hello
Glad to hear Amber is doing so well! That is such a blessings. However, not good to hear that she didn't have a good day! :( So sorry to hear about your loss, your Aunt Barb was a wonderful person. She is someone I admire. God wanted her with him to do things in heaven, and by what you said she has done more than her part in the world. Thank you for being so supportive.
Love, hugs, and blessings to you!
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, January 31, 2006 6:51 PM CST

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www.caringbridge.org/fl/joseph

Come by Joseph's site and add yourself to his map we would love to have you on there. Take care sweet heart



Elizabeth <michael_shipley@bellsouth.net>
- Monday, January 30, 2006 11:32 PM CST

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Just checking in on you guys. I think when you have a special needs child God gives your strength in places you never knew you had....that is one of the reasons why you are coping so well now. Keeping you in my thoughts and prayers.

The Caldwells
Allen, Trish and Little Makily
http://www2.caringbridge.org/fl/makilyangel/

Trish <patyrish237@aol.com>
Ocala, FL USA - Friday, January 27, 2006 10:46 PM CST

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ww.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, January 26, 2006 11:37 PM CST

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Hi there!

It's been a while since I've stopped by, and I am so, so, sorry to hear about your aunt. It sounds like she was such a wonderful person, and I know that she will be very missed. It does seem like she touched lots of lives and made a real impact in this world.

About your page- I think it's been 3 years since you asked about it (sorry!). If you have the song, would you mind emailing it to me? If not, I'll find a copy and just put it on, if that's ok.

Well, I really hope that Amber is feeling well, and that haha you have the poop issues under control. I can't believe about her doctor! Makes you remember how precious life is. Well, have a great weekend and, again, condolences about your aunt.

~*Sarina*~ <sarinadee@gmail.com>
Philadelphia, PA - Thursday, January 26, 2006 11:14 PM CST

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I am sorry to hear about your Aunt's passing. I think the picture of her with Amber is priceless. And wow, look at Amber getting up on all fours! She is amazing. I hope to be able to post a picture of Emily doing the same thing one day. ((hugs))
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Tuesday, January 24, 2006 8:44 PM CST

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The Prayer Bears
Hailee


what a little cutie, you will be in our prayers
melissa <angels4hailee@Cox.net>
cavecreek, az usa - Saturday, January 21, 2006 6:40 PM CST

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Hi, Amber and Family. I am sooo sorry to hear about Aunt Barb! She sounded like such an incredibly warm, giving, and generous person. Just know that she is flying free know and she is no longer in pain. My best to you during this extremely difficult time. On a more positive note, you go Amber! You're doing great ! As I mentioned in my previous posts, Amber, I am blind which means I can't see. I wish I could see your pictures. However, I know you're beautiful just from your mommy writes about you. You Aunt Barb was just as beautiful! I hope your mommy reads this to you. Feel to write me anytime! Hugs, kiddo! love, Beka
Rebeka <rebeka@pmpmail.com>
Rochester, NY USA - Saturday, January 21, 2006 10:54 AM CST

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I found Amber through little Joseph's site and I have to say that your outlook is amazing. I will save your site in my favorites and keep up with your journey. You have a beautiful family. I am so sorry for your recent loss, I will be praying for your family.

The Caldwells
Allen, Trish and little Makily
http://www2.caringbridge.org/fl/makilyangel/

Trish <patyrish237@aol.com>
Ocala, FL USA - Friday, January 20, 2006 1:48 AM CST

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This is my first time to Ambers site. She is so cute. You have a beautiful family. My Thoughts and prayers are with all of you and Aunt Barbs family as well. She sounds like she was an incredible lady. Take Care. Debbie
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, Ca USA - Thursday, January 19, 2006 11:27 PM CST

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Sorry to hear about Aunt Barb..... Please give amber big hugs from us. Have a good weekend. take care



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, January 19, 2006 10:39 PM CST

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Amber,
You are doing so well and I can't tell you how great that is. It's good to be able to hear some positive news. I hope you're doing well honey.
Love,
Sami
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, January 19, 2006 11:32 AM CST

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Oh, I'm so sorry to hear that Aunt Barb has now passed away, but how wonderful for her to be with Jesus and pain free finally! I prayed and thought about your family often through all of this. What a blessing that you were able to see her one last time here on earth. It's great to know that you will see her again in heaven and she will look terrific. Just think . . . Amber will be able to walk up to her Aunt Barb and talk to her! Isn't that cool. I'll continue to pray this week as you prepare for the funeral.

Amber looks terrific in her walker. She's making remarkable progress. You go girl!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Wednesday, January 18, 2006 10:19 PM CST

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Amber looks great in that walker! Can she get around good in it? Oh man, popcorn in the ear huh. I have to say (knock on wood) that with all the trips to the ER with our kids, we've never had a normal kid thing like something in the ear or nose. LOL I hope that Amber has a better day, no more seizures!
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Tuesday, January 17, 2006 9:11 PM CST

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Hi Amber,
Thats a cute walker! Praying for yah!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, January 17, 2006 3:32 AM CST

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Hi Amber and Family!

Just wanted to say how beautiful Amber is!!! I have a little girl with Autism and found your page through the guestbook of a friends page. I will keep Amber and your family in my prayers!!! Love, Hugs and Blessings!!!

Love,
Mary Templeton
www.caringbridge.org/fl/caitlin
Mary Templeton <mary.templeton@gmail.com>
Citrus Springs, FL - Monday, January 16, 2006 4:44 PM CST

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Hi amber just coming by to say hello. Joseph sends you big hugs. Take care



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, January 16, 2006 0:18 AM CST

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Just wanted you to know hat I am praying for you. Amber, you are truly a gift from God.

Anne
England, - Sunday, January 15, 2006 1:11 AM CST

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LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, January 11, 2006 8:22 PM CST

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Awww I just love seeing pictures of Amber. It's great to read how accepted and loved she is! What an amazing girl. :)
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Tuesday, January 10, 2006 8:01 AM CST

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That picture of Amber and Sabrina (that's right, isn't it?) is AWESOME! I just love it. See you Wednesday.
Kristin Koester <tintin7t@aol.com>
Toledo, OH - Monday, January 9, 2006 9:20 PM CST

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Hi guys!
I am happy to hear that Amber is doing well. That's my girl! Anyway, I hope you are doing well and prayers go to your aunt barb.
Love, hugs, and blessings,
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, January 9, 2006 4:35 PM CST

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www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Sunday, January 8, 2006 11:48 PM CST

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Hey Amber!
I'm glad you enjoyed build a bear. I LOVE that place!! :) Cookie monster is looking good!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~




Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, January 8, 2006 6:31 AM CST

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Hi Amber and Family just dropping by to say hello. I hope you have a wonderful weekend. Take care



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Friday, January 6, 2006 0:15 AM CST

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Hey there! Happy New Year (or is it too late to still be saying that?)!! I am so, so sorry that I’ve been out of touch recently. I do think about you guys, especially Amber, all the time. Also so sorry that I never responded to your email– I’m still getting caught up with them, but expect an email from me in the next couple days. I am, though, glad to hear that Amber is doing well and had fun at Build A Bear. This is a funny question, but what mall did you go to? When I was in Toledo, I made a bear at the Franklin Park Mall. Hope you all are feeling and doing well. Have a great weekend!

*~Sarina~* <sarinadee@gmail.com>
Philadelphia, PA - Thursday, January 5, 2006 4:06 PM CST

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It's nice to read that Amber's doing well. The Cookie Monster bear is so cute, no wonder she picked him out. I hope she continues to do well.
Denise Ward <deniward@shaw.ca>
Winnipeg, Canada - Thursday, January 5, 2006 1:19 PM CST

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Stopping by to let you know that I am thinking of you.

Mandy (Angels on Earth)
mamatooryan
- Thursday, January 5, 2006 10:53 AM CST

---

Glad to hear that Amber is doing so good. Heather has the same Cookie Monster and loves it. He makes a good friend. :) I hope you all have a Happy and Healthy New Year!

I have this site for shoes that fit great with AFO's~
http://www.hatchbacksfootwear.com/elites.html


Angela~ www.caringbridge.org/ma/heathergrace <alisonheathersmama@gmail.com>
Natick, Ma - Thursday, January 5, 2006 9:37 AM CST

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Hey guys!
I'm glad to hear Amber is doing well. I could use some good news right now. Better get some stuff done! Thanks for signing my guestbook!
Love, hugs, and blessings,
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, January 4, 2006 7:29 PM CST

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Diana <Diana893@gmail.com>
Dallas, TX - Saturday, December 31, 2005 2:15 PM CST

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Dear Amber,

May 2006 be a blessed year for you and your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Friday, December 30, 2005 7:30 PM CST

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We found your site through another one. We love to make new caring bridge friends. Please have a safe and wonderful New Years



www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, December 29, 2005 11:56 PM CST

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Hi guys!
I am soo happy that Amber TALKED!!! Lately I have been thinking a lot about Ashley and it makes me happy to hear that someone with Rett Syndrome can talk. That is just awesome and I am so proud of you Amber! You go girl! Sorry to hear that Amber was throwing up. Unforunately, a lot of girls with RS do not like lots of people. Can't say I blame them, I have never been one for crowds myself. Anyway, I am really happy that things are going well. Dr. Miller sounds absolutely amazing. She seems to know a lot about RS and that is good. I don't think a lot of Ashley's caregivers and teachers actually knew what she had. Lucky for her, her best friend Sami figured some things out. ;) Please pray that I will be able to see Ashey again soon. I miss her very much and if I could get her page back up I would be SOO HAPPY! Thanks for visiting my page and signing the guestbook. I hope you have a wonderful New Year. God bless you all, I am always thinking of you and praying for you.
Love, hugs, and blessings,
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, December 29, 2005 10:37 PM CST

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I am so glad to hear that Amber is doing good! The switch for the computer sounds great. I want to get Emily some switch toys after the new year. :) I hope you all are having a WONDERFUL Christmas!!
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Sunday, December 25, 2005 2:18 PM CST

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Merry Christmas, Amber and Family. Way to go Mariah. At least you waited until AFTER the family Christmas pictures! Hope you're all having a blessed and peaceful day. Prayers are still going up for Aunt Barb.
Linda <lindakeller@sbcglobal.net>
- Sunday, December 25, 2005 1:33 PM CST

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Hi guys!
Merry Christmas! I'm so glad to hear amber is doing well. Great to hear. She can have a peaceful Christmas. I'm also glad she was able to see The Narnia movie. My friend Aleia's family was able to see it last night while Mommy, Aleia, and I hung out. We had a really good visit. Anyway, I'm wishing you all the best during the holiday.
Love, hugs, and blessings,
Sami <samibabi@hickorytech.net>
Mankato, Minneosta United States - Saturday, December 24, 2005 1:53 PM CST

---

Sami <samibabi@hickorytech.net>
Mankato, Minneosta United States - Friday, December 23, 2005 5:06 PM CST

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LOVE ALWAYS BRENDA MY CHRISTMAS ANGEL <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Friday, December 23, 2005 11:36 AM CST

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Hope you all have a Merry Christmas! Just found out that alyssa has to have the feeding tube put in. I am nervous but I know that it is best for her and her health. I love the family pics. Check on you later.
www.caringbridge.org/ks/alyssadarrah
shannon and Alyssa

shannon stoiber <shaystoiber@sbcglobal.net >
Leawood , ks usa - Wednesday, December 21, 2005 11:30 PM CST

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Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, December 21, 2005 10:08 PM CST

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Amber, You have such a nice website! Thanks for letting me see it and be apart of your life! You are such a beautiful girl and I can't wait to see what God does through your life!!
Stacey Plaisance
Toledo, OH USA - Wednesday, December 21, 2005 6:52 PM CST

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Hi there Amber, we are dropping in now as we are going to be really busy in the week up to christmas just to wish you a merry christmas and a happy new year

We have to say we just LOVE your family photo, what a beautiful family you have.
Take care

Jo Hannah and Rebecca
Jo <yarnall@blueyonder.co.uk>
England, UK - Monday, December 19, 2005 5:55 PM CST

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Tami-

I so understand what you mean about watching your 2 year old and marveling at all she can do. I am that exact way with Levi (Even though he can be a lil monster.LOL.)
I remember what Savannah used to be able to do and now what she cannot. It hurts to remember but they are still cherished memories.
I am glad Amber is doing better. As you do we celebrate every "poop" event.
Merry Christmas to you and your whole family.
That picture is beatuiful!!



www.caringbridhe.org/va/savannahsmile
Frances <Dragonbluedreams@AOL.com>
Remington, VA USA - Sunday, December 18, 2005 7:29 AM CST

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Hi guys!
I love your familiy picture..you have a beautiful family. I am still very glad to hear that Amber is doing well again. Wishing you guys a very Merry Christmas. Praying for you always!

Love, hugs, and blessings to you all!
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, December 16, 2005 7:40 PM CST

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I love your family picture! I'm so jealous. We haven't had family pictures taken for several years. Amanda's last picture was when she was 12 and she's graduating this year! That's terrible. Tami, just keep reminding yourself that it was worth any hassle you went through. Have a wonderful Christmas. (stay out of the cookies : )
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Thursday, December 15, 2005 9:59 PM CST

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Hi, Amber! It's Rebeka from Rochester NY. I wrote a note to you a few months ago, but I don't know if your mommy read it to you. I'm glad to hear your potty problems are finally clearing up! You seem to have been going through a lot lately. I'm glad to hear your doing better. You and your mommy can email me anytime. My email is rebeka@pmpmail.com. Keep smiling cutie! Have a merry xmas! Love, beka
rebeka <rebeka@pmpmail.com>
rochester, ny usa - Thursday, December 15, 2005 1:44 PM CST

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I'm glad to hear that Amber is doing good. I hate those stool sample tests. LOL I know what you mean about being frustrated and happy that she can grab the tube. Emily does that every time I try to put meds through her g-tube. She grabs at the tube. On one hand I am THRILLED that she can coordinate that action! On the other hand, it certainly makes my job harder! :)
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Wednesday, December 14, 2005 11:32 AM CST

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Hi!
YEAH! Amber is doing good! I'm so happy to hear that. I have a page for myself now, had to take Ashley's page down. If you want to know more, e-mail me. Praying for you always!
Love, hugs, and blessings,
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, December 13, 2005 6:28 PM CST

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I'm so, so sorry to hear about your Aunt Barb. I know she's a very special lady to your family. You're family has been a wonderful witness to her and you can now rest knowing that she will safely be in Jesus' arms when He's ready for her. I will be sure to keep her in my prayers.

I'm glad that the GI doc is giving you a few answers. Maybe the tests will show something that will give you further guidance.

Get ready to have a wonderful holiday!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH - Wednesday, December 7, 2005 6:12 PM CST

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Oh my gosh, I LOVE the family photos in your album. You have such a beautiful family. :) I'm glad that Amber is doing well. It sounds like she and Emily are in a similar place with their poop issues. Ick!!
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Tuesday, December 6, 2005 6:53 PM CST

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I know it's been like forever since I've visited you.
I have just been so busy.
But I think of you always.
LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Tuesday, December 6, 2005 0:28 AM CST

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Hello Friend...

Sending You Bear Hugs from Emma!

Lauren & Emma <markhamfamily@msn.com>
- Monday, December 5, 2005 9:29 PM CST

---

Amber was so pretty in church on Sunday. She sure did laugh when I imitated her riding the horse. I love it when she laughs. Can't wait for Christmas.

I hope she feels better and doesn't cry. Love, Grandma Bonnie
Bonnie Ferguson <bferguson@meduohio.edu>
Holland, OH USA - Monday, December 5, 2005 5:00 PM CST

---

Hi Amber!
I'll be praying for those tests of yours... hope they find out whats wrong with your tummy really soon!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, December 5, 2005 11:09 AM CST

---

Doctors can be so frustrating at times. I am glad however he took the time to listen to your concerns and is doing something about it.

Reflux is a real problem, my daughter Aleia is also on the soluable tablets, they are wonderful, I just wish she could tell me where it hurt and when it hurt so I know we are treating her for the right thing. With all the medications she takes for her seizures I am pretty sure it is reflux though.

You are a very pretty girl and have a wonderful and amazingly large family. Nice to know you have so many family members to look after you.

Mom, I will pray for your strentgh! I too am faced with a sick child right now and a terminal Father-In-Law. It is just a matter of days right now. The VA hospital transported him home via ambulance because that is where he wants to die. It is killing my ex-husband to see this happen to his Dad. It is killing me because I know when he is gone my children will be so upset and I don't know if I will be stong enough to help them through the grieving. What can we do other then pray for God's help and strength. I will pray for you tonight and that your Aunt passes painfree. Love and hugs to you!


Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Sunday, December 4, 2005 9:43 PM CST

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Hey there! I’m glad to hear that the GI appointment went well– it’s sounds like he’s doing the best to help. I SO wish that I could have met you guys when I was in Toledo. There actually are quite a few people that I had wanted to get together with, but things got a bit crazy right before we left. I’ll be going back in about six months, though, so hopefully we’ll be able to figure something out then. Hope you all have a good week!
<sarinadee@gmail.com>
Philadelphia, PA - Saturday, December 3, 2005 5:43 PM CST

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Hi guys!
I'm so glad to hear Amber is doing better! She deserves it! I know what you mean about GI Drs. I've heard bad things too. But it will be okay, maybe he will figure out what's wrong with Amber. Great also, to hear that you have the RettNet Support System. I love it too! Thanks for your support. You guys are in my thoughts and prayers!
Love, hugs, and blessings,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Mn United States - Sunday, November 27, 2005 4:55 PM CST

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Happy Thanksgiving. Can't wait to see you guys next week.
:) Kristin
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Thursday, November 24, 2005 4:51 PM CST

---

Just want to say Happy Thanksgiving to all the Heiss Family and too Tami's Family. Hope you allhave a great Thanksgiving and we send our blessings out to all of you. We will be at Pam's sister's house but will be thinking of you. I hope this is one of Amber's GOOOOD! days, Love Always
Grandma Heiss, Pam and of couse Korky <plrtkh@AOL.com>
Toledo, OH USA - Thursday, November 24, 2005 9:47 AM CST

---

Hi Amber

sorry to hear about the constipation, we are right there with you on that as Hannah suffers from it too. Only today we were in Cosco and we had a crying fit and spent half an hour in the bathroom trying to do a poop.

YOu just feel so helpless

I hope you got a better night sleeps and things have improved now


sending you our warmest wishes

Jo Hannah and Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, November 23, 2005 5:05 PM CST

---

Sending your family Thanksgiving wishes. Have a great holiday! Thinking of you today & always.
Love, The Markham Family

Praying that you & Amber have better days ahead, and that her tummy gets to feeling better. Emma has had horrible GI issues since she was born--everyone used to say it was just colic. She is milk & soy protein intolerant (also intolerant of corn, nuts), had a fundo for her reflux, and also a mic-key button. She is on Neocate Jr., and that has helped her tummy troubles immensely (except for the constipation...). Do they think Amber is having any problems with digesting her foods? It can be very painful & cause mucus in stools. Anyway, not sure what Amber is dealing with, but hope she gets some relief SOON! Take care.
Lauren & Emma <markhamfamily@msn.com>
- Wednesday, November 23, 2005 4:19 PM CST

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Hi Amber! I should've known you weren't feeling well when I saw your mom Saturday. I could just tell by the look on her face at Junior Bible Quiz. Haley wasn't herself either. You are so very special to your family, and they worry so much when you're feeling yucky. I sure hope you're feeling better today. You need to get up and running for all that yummy turkey and stuffing. Have a super happy Thanksgiving.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Tuesday, November 22, 2005 10:21 PM CST

---

Hi Amber!!
Sorry to hear about the stuff thats been happening! YOu take care and feel better!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, November 21, 2005 9:44 AM CST

---

awww Amber has a boyfriend! That's SO CUTE! lol Glad to hear Amber is doing so well!! I wish Ashley could talk and things like that, but I think she is too far regressed. Anyway, I am delighted with Amber's progress just within the past week! She went from being sick to talking, that's just awesome!!! From what I have heard, Ashley is doing pretty good. She has been at school almost every day. Earlier she did have a double ear infection, but she snapped out of it pretty quickly. Yeah! Here's hoping you are doing well, and are happy and healthy. Amber is such a beautiful Rett Angel, she deserves the very best!
Love and hugs,
Sami and Rett Angel Ashley
www.freewebs.com/ashleyrett
www.caringbridge.org/visit/ashleyrett
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
Minneosta United States - Friday, November 18, 2005 8:24 PM CST

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I LOVE checking in on you AMBER!!!! I am so happy you are feeling better. And sooooooooooo impressed on what you have been doing!! Have a GREAT Thanksgiving, and we will check in on you again soon. Love, The Irbys
www.caringbridge.org/wa/daphnijo/


Jerimarie Irby <irbys@nwinfo.net>
Cle Elum, WA USA - Thursday, November 17, 2005 11:14 PM CST

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Amber had another great day at school. We really missed her Thursday. Every day she amazes us at something she does. Today she took it easy for a while - falling asleep in the beanbag chair in the reading center. She looked so comfy laying there with her legs crossed. She woke up and participated in circle time and snack. She hits the "more please" button consistently! We went out on the playground and she really enjoyed sitting on the climbing things with the other kids. I hope her appointment goes well tomorrow and she makes it to class!
Cathie France <wcesc_cf@nwoca.org>
Sylvania, OH USA - Monday, November 14, 2005 6:58 PM CST

---

Hi guys!
Sorry to hear that Amber isn't feeling well, that sure sucks! You guys are in my thoughts and prayers.
Love and hugs,
Sami and Rett Angel Ashley
www.caringbridge.org/visit/ashleyrett
www.freewebs.com/ashleyrett
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
Minnesota United States - Saturday, November 12, 2005 9:17 PM CST

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Hey Amber and family! I am finally back online and able to check in on you all after SO long offline! I have missed hearing all you are doing. I love the positive outlook in your post. You HAVE to believe that Amber will walk one day. Just like I HAVE to believe that Emily will. It's the only way! ((hugs)) Hang in there, and I am glad to be back online reading up on dear Amber. :)
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net>
Florida, - Saturday, November 12, 2005 2:53 PM CST

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Hi Amber. Wow. You got to go to Fall Festival and Treat or Treating. If you got as much candy as my kids, you'll be eating it for a very long time! Hope you keep feeling great. Get ready for some turkey and mashed potatoes.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Thursday, November 10, 2005 1:09 PM CST

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Hi Amber,

Just stopping by to say hi and check up on you. Hope you are continuing to do well. May God bless and watch over you sweetie!

Love,

Susan & Jordan
Jordan <Susan2956@yahoo.com>
Covington, LA - Monday, November 7, 2005 7:52 PM CST

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Hi Amber!! Happy Late Halloween!! You looked soooooo cute in your bunny outfit! Daphni Jo got to trick or treat this year too and was a bumble bee!! Glad to hear you are doing so well! Will check in on you again real soon! Love The Irbys

www.caringbridge.org/wa/daphnijo/

Jerimarie Irby <irbys@nwinfo.net>
Cle elum, WA USA - Saturday, November 5, 2005 1:45 AM CST

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Hi guys!
You know, someday I keep thinking...why doesn't Ashley meet some fellow Rett Angels? Well...the only problem is that there is only one in our town other than her, and the fact that I am having a heck of a time getting ahold of her mommy. Anyway, glad to hear Amber is doing so well. The Baby Einstein movies and CDs can be LIFESAVERS! But, it's great that Amber was able to grab at things and able to tell you what she wanted. That picture of her and Skylar is SO CUTE! I love knowing that Amber has a friend with RS! Someday I wish I could find a Rett Angel that Ashley could have as a friend. Oh well, it's an on-going project. Thanks for your help and support, my thoughts and prayers are with you!
Love and hugs,
Sami and Rett Angel Ashley
www.freewebs.com/ashleyrett
www.caringbridge.org/visit/ashleyrett
Sami and Rett Angel Ashley <sambabi@hickorytech.net>
Minnesota United States - Friday, November 4, 2005 12:34 AM CST

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Hi Amber!
Wow... sure looks like you enjoyed your halloween! :) Love the pictures!!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
singapore, Singapore - Friday, November 4, 2005 8:13 AM CST

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Hello amber,
You look SOOO beautiful in your new picture. Savannah has been having alot of medical issues lately, but even though we have been quiet online, you are always in our thoughts and prayers.

You know, Ohio is not far away----when things settle down for everyone, we would love to actually meet you and you friend skylar!! That would be so cool.

Have a great day sweet girl!
Love ya,
Frances, Savannah and all the boys!!
www.caringbridge.org/va/savannahsmile

The Nichols Family <Dragonbluedreams@AOL.com>
Remington, VA USA - Monday, October 31, 2005 8:02 PM CST

---

Hi Amber!
Hope your tests will all be ok! Praying for yah!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, October 30, 2005 10:36 AM CST

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For the first time in a while I checked out the pictures...what neat family pictures! That's so neat to see all of you together. Very cute!
Kristin <tintin7t@aol.com>
Toledo, OH - Wednesday, October 26, 2005 8:51 PM CDT

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Hi Amber and family!
Glad to hear you are doing so well, Amber! I love good updates! I wish I lived closer so I could have a cup of tea in honor of Amber, but I'm stuck here in MN. Oh well. Still haven't heard anything about Ashley, I miss her a lot. Haven't seen her for more than a month. But, if I find anything out, you will be one of the first to know! Thanks for all of your love and support, it means the world to me!
Love and hugs,
Sami and Rett Angel Ashley
www.freewebs.com/ashleyrett
www.caringbridge.org/visit/ashleyrett
ashleyrett.bravehost.com
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
MN United States - Friday, October 21, 2005 12:15 AM CDT

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Hello from Emma!

We're thinking of Amber today & hoping you all are doing well. Take care.
Lauren & Emma <markhamfamily@msn.com>
- Thursday, October 20, 2005 8:24 PM CDT

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I think you've done such a great job on amber's website! It's informational as well as beautiful! I'm sure you have many trying days and I agree with something you had written (the scripture)...I'm sure God has placed amber in a great home filled with love. I know my son's Jacob (last year) remember meeting in the playroom at st.v's? ..Jacob had his tonsils taken out and refused to drink?! and Trevor (this year) enjoy Amber very much. She's a beautiful little girl! your family are in our thoughts and prayers and thank you for the opportunity to learn more about rhett syndrome.
Sincerely,
Mrs. Wendy Knisely
Wendy Knisely <Wknizze@peoplepc.com>
Northwood, OH USA - Thursday, October 20, 2005 7:41 PM CDT

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Hi Amber and family,

This is my first time to your site! Just thought I'd let you know I stopped by. Amber you are so pretty, and yes, like your mom said, such a "special gift".

I have a son who had many developmental problems, and still have not found out why. He's 20 now. He also has a brain tumor. I'm also the mom of 5 kids too!!

So, just want you to know I will be praying for Amber and your whole family.

May God continue to watch over you,

Susan & Jordan
Jordan <Susan2956@yahoo.com>
Covington, LA - Tuesday, October 18, 2005 8:35 PM CDT

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Hi Amber. I love the new picture. You're getting so big! I hope you are starting to feel better. Can you do me a favor and take an extra nap for me today? Give your mom a great big hug and enjoy the kittens!
Maren <mkurtz@toledocalvary.org>
Toledo, Oh - Tuesday, October 18, 2005 9:29 AM CDT

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What a beautiful little girl you are. Looks like you have a bunch of brothers and sisters who are able to help Mom and Dad take care of you. How Nice!! My daughter Aleia is supplemented via G-tube. At one point in her life she was strictly fed via G-tube, then one day I was holding her eating a ham sandwich, she hooked her arm around mine, brought the sandwich to her mouth and took a huge bite. I was thinking in a few minutes I would have a soggy mess to clean up but lo and behold, she grabbed my sandwich again and took a huge bite. This of course at the time was bad because she was on a very strict diet (The keto-genic diet) for epilepsy. The carbohydrates from the bread caused a huge seizure the next day. OOPPPSSSS!! She eats really well now, except on bad seizure days. We also keep the G-tube because she can't swallow liquids. She has a delay which causes her to choke on fluids. We are working on it though by introducing small amounts at a time.

Having a child with a cold can really be a bummer but when it is a child that also has special needs it just seems to be such a bigger deal. You know thas especially with seizures, the slightest temperature can make them have so many more seizures. Even a slight cold can put Aleia in the hospital. Luckily she stays pretty healthy as far as bad colds are concerned.

We took Aleia Horse back riding once, she didn't really react to it like I wish she would have. So I really don't know if she enjoyed it or not. I hear it can be very good therapy!

I will keep you and your family in my prayers. Get rid of that nasty cold and I hope you get to enjoy the horses again.


Rhonda, Kelvin, Drew & Aleia <Rhondadettmer@charter.net>
Fairmont, MN - Monday, October 17, 2005 10:00 PM CDT

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Great Family Photo, enjoy keeping up with Amber's progress,enjoyed the riding pictures too!!!!
Grandma Heiss, Pam and of Course Korky
Pam Rupp <plrtkh@aol.com>
Toledo, Ohio USA - Monday, October 17, 2005 8:36 PM CDT

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Hugs from Emma!!
Have a great day!!

Just letting you know we're thinking of you & praying for Amber. Take care.
Lauren & Emma <markhamfamily@msn.com>
- Monday, October 17, 2005 8:27 PM CDT

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I loved swinging Amber in the hammock on Saturday. She kept laughing. It's neat to see her laugh.
Grandma Bonnie <bferguson@meduohio.edu>
Holland, OH - Monday, October 17, 2005 12:38 AM CDT

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Sorry to hear about Amber's little bug. It stinks, but Ashley doesn't have a G-tube so she always throws up from her mouth. It's horrible...not like when a regular person does...I hate it! But at least Amber has her G-tube..they help a lot with Rett Cases, so you guys are real lucky! My prayers are with you always!
Love and hugs,
Sami and Rett Angel Ashley
www.freewebs.com/ashleyrett
www.caringbridge.org/visit/ashleyrett
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
- Sunday, October 16, 2005 6:43 PM CDT

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Hope you feel better soon. Sky's fighting something too. Hope to see you soon.
Nikki, Mikaela, and Skylar B <nd6780@peoplepc.com>
toledo, o - Thursday, October 13, 2005 9:02 PM CDT

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Have faith in your dreams and someday
Your rainbow will come shining through.
No matter how your heart is grieving ,
If you keep believing,
The dream that you wish will come true.
--Cinderella
Hi from Emma's Big Sis Madi!!
Madi & Lauren <markhamfamily@msn.com>
- Thursday, October 13, 2005 4:26 PM CDT

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Hi Amber!
Horse rising sure looks like lots of fun! Sorry to hear that you're not feeling well, hope you get all better really soon!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, October 13, 2005 12:35 AM CDT

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Hi, Just checking in to say hello! I check on you often to see whats going on in your world. You are so cute, and your mom does a wonderful job on your website! Hugs and Kisses, Daphni Jo and Family

www.caringbridge.org/wa/daphnijo


Jerimaire Irby <irbys@nwinfo.net>
Cle Elum, WA USA - Thursday, October 13, 2005 1:46 AM CDT

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Hey!

I’ve been thinking about you guys all day– I had a neuro appointment yestruday and all over the waiting room were these huge posters about “Rett Syndrome Awareness Month”. They also had a bunch of posters with Julia Roberts on them, and brochures explaining what Rett Syndrome was. So I just had to tell you about it :D.

I’m sorry to hear that you guys are both sick. It seems like everyone has a cold right now! The riding place definitely looks fun, though. And your kittens are so cute. I’m sure that they’re a handful, but aww they’re adorable.

To answer your question, I mostly read fiction/novels, but I’m definitely an eclectic reader, and will read anything. I actually just finished the book Savage Inequalities by Jonathan Kozol which was really interesting. Especially now that I’m home so much I read all the time– everything from The Basic Writings of Sigmund Freud to Harry Potter to Wuthering Heights. Lol!

Anyway, I hope that you’re feeling better, and are having a good week. I’ll check back soon!

*~Sarina~* <sarina_d@yahoo.com>
Philadelphia, PA - Tuesday, October 11, 2005 5:49 PM CDT

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Great to hear about Amber's weight. That's AWESOME!! Sorry to hear she isn't feeling good...Ashley has those ephisodes too, it stinks. But, prayers are with you always!
Love and hugs,
Sami and Rett Angel Ashley
www.freewebs.com/ashleyrett
www.caringbridge.org/visit/ashleyrett
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
- Tuesday, October 11, 2005 3:54 PM CDT

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Awww little kitties! I wish I lived closer, I'd take one! :) I'm glad that Amber likes her horse therapy. Good luck deciding which place to take her to. 38 pounds, wow! :)
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Tuesday, October 11, 2005 12:48 AM CDT

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LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, October 10, 2005 11:32 PM CDT

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I hate to laugh, but your story is funny. I can just see them trying to feed Amber and the balloon popping .. and your insurance guy trying not to laugh as you tell him what happened! Our insurance also approves only 3 buttons a year I think, but if they break they break - they HAVE to give you another. :)
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Friday, October 7, 2005 11:04 PM CDT

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Hi guys! Great to hear Amber is doing so well. Ashley laughs when thing like that happen too but she doesnt have a g-tube. She DEFINITLEY gets enough to eat! Don't worry about all of the insurance problems, it will all work out in the end! HAPPY RETT SYNDROME AWARNESS MONTH!!!
Love and hugs,
Sami and Rett Angel Ashley
Sami and Rett Angel Ashley <samibabi@hickorytech.net>
- Friday, October 7, 2005 8:43 PM CDT

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Amber,
You always make me laugh when I think about you laughing at others. Do you really think that was hilarious that your dad almost fell on his butt? (I'll bet you do!). I probably would've laughed too. I hope you always keep that great sense of humor.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Friday, October 7, 2005 11:34 AM CDT

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Happy Fall Y'all

Love, Emma

Lauren & Emma <markhamfamily@msn.com>
- Sunday, October 2, 2005 6:20 PM CDT

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Hi Amber!
You look so sweet dancing out there! Hope you had lots of fun.

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
- Sunday, October 2, 2005 10:52 AM CDT

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Hi Amber! My name is Rebeka! You're such a cutie! I have an interest in RS and any disability because I have cp myself. I have been reading your journal for quite a while but my darn puter has been giving me trouble. Anyway you sound like you have a great family and you have lots of fun with them! Anyway, you and your mommy write back to me, ok? My email is rebeka@pmpmail.com. Take it easy sweetie! Keep smiling! Love Beka
Rebeka <rebeka@pmpmail.com>
Rochester, NY usa - Saturday, October 1, 2005 6:25 PM CDT

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HAPPY ANNIVERSARY!!!!

15 years– wow!! That is so awesome!! Next year will be my parent’s 20th anniversary, and it’s so weird to think about. To me, that amount of time seems like an eternity. Congrats, though! I’m really glad to hear that Amber is doing well, and I hope that the walker stuff is worked out soon. By the way, I do live in Philly, and it would be awesome to meet you if you ever come to visit.

Have a great rest of the week!

*~Sarina~* <sarina_d@yahoo.com>
Philadelphia, PA - Tuesday, September 27, 2005 11:32 PM CDT

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Hi, Amber. I haven't been able to check on you in quite a while. Lots has been happening around your house. I will be praying that your mom and dad get paid SOON! That is a huge strain on everyone. I'll also be praying that the equipment company gets you the right walker without any extra money. How frustrating. Keep smiling and laughing and making your mom and dad smile. Love and prayers,
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, September 26, 2005 8:49 PM CDT

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Glad to hear Amber is doing well. I am looking forward to next Wed. already. Have a good weekend.
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Saturday, September 24, 2005 9:05 AM CDT

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Hi Amber and Family!
Thank you so much for stopping by my site! It really meant the world to me! I will be checkin up on you regularly! You are in my thoughts and prayers! Take care!
hugs,
tara :)
tara www.caringbridge.org/visit/tarabara
kensington, CA - Wednesday, September 21, 2005 12:01 AM CDT

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I love all the new pictures of Amber. She is so beautiful. That new walker is huge, how do they expect that to work? I hate companies sometimes. I hope that things get cleared up and fixed soon.
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Tuesday, September 20, 2005 10:45 AM CDT

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Love Always My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, September 19, 2005 9:02 PM CDT

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Hi Amber and family! It is great to hear that Amber is doing so well. I love to hear that Amber is making friends! They are such a blessing, all Rett Angels need them, but most don't have them. That's the sad part of our world, no one takes the chance to get to know someone different than the rest of us. It's great to hear that kids at such a young age are taking such an interest in Amber! You and your family are in my daily prayers, may god bless you and keep you safe, dear Amber.
Love,
Sami and Ashley
www.caringbridge.org/visit/ashleyrett
www.freewebs.com/ashleyrett
Sami <samibabi@hickorytech.net>
Mankato, Mn United States - Sunday, September 18, 2005 6:45 PM CDT

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Hey!

I’m sorry to hear that things have been so stressful. All the walker business sounds like such a mess, and I hope that Amber gets what she needs soon. And wow– everything going on with your business! No wonder you’re breaking down; that’s just crazy! I hope that Amber continues to do well, and I’ll be thinking lots about you both.

By the way, I’m sorry that I didn’t get back to you about putting music on your page. Once you have the song you want, you need to upload it just like you do with an image. I personally like to use geocities. If you need any help with that or getting the song, just let me know. When we have the song online I can give you the actual html code to put it on your page.

Lots of love,

*~Sarina~* <sarina_d@yahoo.com>
Philadelphia, PA - Thursday, September 15, 2005 8:23 PM CDT

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I feel ur frustration. Ur life sounds alot like mine right now. Hang in there. Glad that amber is doing good.
www.caringbridge.org/ks/alyssadarrah
shannon <shaystoiber@sbcglobal.net>
leawood , ks usa - Wednesday, September 14, 2005 5:59 PM CDT

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You sure have a lot going on! How frustrating that walker situation must be. I hate insurance companies sometimes. Grrr. I hope that things calm down soon. Sorry I haven't checked in on Amber in a while, my laptop was busted. I am glad to be back and see that she's doing okay!
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Wednesday, September 14, 2005 12:44 AM CDT

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Must be a full moon tonight(or this entire week!) I've had a couple of difficult days, too. Thinking of you. Signed, Chicken Little (aka mom to Linae)
Kelly-Ann Larson <kwarren@visi.com>
Richfield, MN - Tuesday, September 13, 2005 10:08 PM CDT

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Hi Amber, I was just checking to see how you were. I just love your page! Your mama cares a lot about you and takes a lot of care in your web page. You are such an inspiration to me because Ashley has RS too, and I know from you that everything's gonna be alright. Thanks for checking out my angel's page!
Sami www.caringbridge.org/ashleyrett <samibabi@hickorytech.net>
Mankato, MN United States - Friday, September 9, 2005 9:16 PM CDT

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Hi Amber and Family... WOW.. we just love your webpage! You sure look like your having fun in your pictures... and we are very happy your mom can adjust your current walker until you get a new one. We will stop by again and say hello. Love Daphni Jo, Jerimarie and Family.

www.caringbridge.org/wa/daphnijo

Jerimarie Irby <irbys@nwinfo.net>
Cle Elum, WA USA - Friday, September 9, 2005 3:09 PM CDT

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Love the new pictures! It looks like Amber loves school. :) Hope you get to bring her new walker home and that it helps her move around easily.
Angela -HEATHER GRACE

<alisonheathersmama@gmail.com>
natick, ma - Friday, September 9, 2005 11:06 AM CDT

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Hi Amber!
I love your new photos! Sure looks like you were having fun!


~Simply Joanne~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~


Joanne <joanne173@gmail.com>
- Friday, September 9, 2005 0:23 AM CDT

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It is so neat to hear how Tori connects with Amber. When I babysit and hang out with them, it always amazes me how much they do to help Amber. I can't wait for our pajamma party on Friday. It's fun being their grandmother. Love, Grandma Bonnie
Bonnie Ferguson <bferguson@meduohio.edu>
Holland, OH USA - Thursday, September 8, 2005 10:57 AM CDT

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Wow! I'm so glad I visited Amber's website. It is very informative and inspiring. I am just beginning to get to know Amber, but I already love her (who wouldn't?). I can't wait to see Amber at school this week, to see what surprises she has in store for us. Her smile always brightens my day.
Cathie France <cfrance@northwood.k12.oh.us>
Sylvania, OH USA - Monday, September 5, 2005 9:16 PM CDT

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BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, September 5, 2005 8:53 PM CDT

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Hi everyone..just wanted to drop a little note to say I am tuning in for my daily fix of Amber...(Just in case that hint hint was for me??) Congrats to Jay on his accomplishment with Royal Ranger Camp..Great job Jay!!!!
Love Aunt Terri
Terri Pool <tlpool321@yahoo.com>
Holland, Oh usa - Friday, September 2, 2005 12:59 AM CDT

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AJ
Galloway (Outside of Atlantic City), nj usa - Thursday, September 1, 2005 7:56 PM CDT

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Hi: Looking forward to seeing you tmr. Amber has beautiful eyes and will turn and look directly in your face when we talk to her. She brings joy to our family. Love, Aunt Barb
Barbara Disch <Bookey47@aol.com>
Westlake, OH USA - Thursday, September 1, 2005 11:09 AM CDT

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What a sweet set of sisters! :) It's amazing how good older siblings can be. Jacob is AMAZING with Emily. He loves her so much .. and she clearly loves him more than anyone else. It's amazing. :)
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Monday, August 29, 2005 8:43 PM CDT

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Just checking in on you guys. Mikaela is the same way with Skylar, it's so amazing to see the connection.
www.caringbridge.org/oh/skylarbaker

Nikki, Mikaela, and Skylar B <nd6780@peoplepc.com>
toledo, oh usa - Monday, August 29, 2005 5:15 PM CDT

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Hi guys! Just checking in on your family again. Thanks for sharing Haley with us last night. She is always a pleasure to have. I hope Amber didn't miss her too much. See you soon.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, August 29, 2005 3:58 PM CDT

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Tami, I just want to say how moved I was with the article about Tori's attention to Amber. I myself have noticed how she seems to know what Amber wants and needs, and wants to "Mother" her. You do such a great job of keeping everyone informed on what's going on. This web page has been my way of keeping track of the family without bothering you when I know you have sooooo much to do. I love you ALL!! Grandma Heiss
Theresa Heiss <plrtkh@AOL.com>
Toledo, OH USA - Monday, August 29, 2005 9:02 AM CDT

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, August 28, 2005 10:17 PM CDT

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Hey Amber! I found your site from another guestbook and thought I would drop in and say hello! You are so beautiful and it sounds like you're doing really well! You're in our prayers!
Renee & Kennedy
Renee Garcia <CAmommy2KJ@aol.com>
Clarksville, TN - Sunday, August 28, 2005 8:48 PM CDT

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Hi Amber!
I just wanted to drop by your site and say hi! I'm 20 years old and my name is Brit. You're such a pretty girl and I'm glad to have stopped by your page!
www.caringbridge.org/visit/brit
Brit <orangebubblez7@yahoo.com>
Bloomsburg, PA United States - Friday, August 26, 2005 5:43 PM CDT

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Hi Amber!
Wow! I think your new toys look totally cool! :) And I think the velcro is a terrific idea.


~Simply Joanne~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, August 24, 2005 12:53 AM CDT

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Hello Amber, what a BEAUTIFUL child you are. I got your site addy from Ashley's website, after Sami had visited my grand-daughter Vanessa's web page. I can see my wee girl's eyes in you darling, and what beautiful eyes they are!!! If you would like to visit Vanessa, her addy is www.geocities.com/jane_doe1956/Vanessa_and_RettSyndrome.html
Jane Le Breton <jane_doe1956@hotmail.com>
Oka, Qc. , Canada - Wednesday, August 24, 2005 9:33 AM CDT

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Hi Amber, I am glad i stopped at your page. It sure is cute! My friend Ashley has rett syndrome, too. Visit her pages www.freewebs.com/ashleyrett and www.caringbridge.org/visit/ashleyrett
Sami <samibabi@yahoo.com>
- Tuesday, August 23, 2005 0:56 AM CDT

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Just checking in. I am not surprised that that young guy has found a connection with Amber...she's a special little girl. Glad things are going well.
Kristin <tintin7t@aol.com>
Toledo, oh USA - Sunday, August 21, 2005 9:14 PM CDT

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Stopping by to let you know we are thinking of you. Love the new pics! Hope school goes good.
Angela *angels on earth* -HEATHER GRACE


natick, ma - Sunday, August 21, 2005 3:12 PM CDT

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BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, August 17, 2005 12:28 AM CDT

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WTG JAY - GLAD TO HEAR YOU STUCK OUT CAMP, CONGRATULATIONS!!! ON YOUR BADGES
GRANDMA HEISS AND PAM
Pam Rupp <plrtkh@aol.com>
Toledo, Ohio USA - Monday, August 15, 2005 5:45 PM CDT

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Hi,

Was so much fun to watch Amber and Mariah open their Birthday presents - Also glad to hear you are going to get to see Dr. Fay Have a great day all of you!!!
Grandma Heiss And Pam <plrtkh@aol.com>
Toledo, OH USA - Friday, August 12, 2005 8:01 AM CDT

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Im glad you had a great birthday!! I love the pictures. :)
Angela~Angels On Earth~ www.caringbridge.org/ma/heathergrace
natick, ma - Thursday, August 11, 2005 10:24 AM CDT

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Thanks Tami! I appreciate it.
Nikki, Mikaela, and Skylar B <nd6780@peoplepc.com>
toledo, oh usa - Wednesday, August 10, 2005 6:36 PM CDT

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HAPPY BIRTHDAY AMBER!!! You are a beautiful, amazing girl. :) I think it's neat that you saw someone at the store with RS also. It must have been very uplifting to see her walk so good. :)
Sara http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Monday, August 8, 2005 3:37 PM CDT

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Happy Birthday Amber! I hope it's a great day for you. Hugs
Kristin <tintint7@aol.com>
Toledo, OH USA - Monday, August 8, 2005 12:08 AM CDT

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HAPPY BIRTHDAY, AMBER!!! Hard to believe you're a great big 4-year-old today. I hope you have a wonderful birthday and are feeling great. You've been 'not sick' for too long, so I'll pray that you'll feel wonderful on your special day. Eat some chocolate cake for me!
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH Lucas - Monday, August 8, 2005 10:38 AM CDT

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Amber is such a cutie- 4 years old- time goes so quickly. Thank you for visiting our site! Just wanted to say hi http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=kailamaclaury
Shirley and Kaila <kksmom@twcny.rr.com>
Liverpool, NY 13090 - Sunday, August 7, 2005 8:49 PM CDT

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Hi Amber and her family

We just thought we'd send you a photo of our latest vacation.

Its great to hear that Amber is doing well and we certainly know what you mean about how our children open our eyes up to a different world

I know you read Hannah's birthday message and I really think it amazing the new friends we have made because of our children that we would never have made before. They really do make us better mom's, better friends and better people. Our children definitely show us the world as it is meant to be seen

Hope you have a great day

Sending you our warmest wishes

Jo Hannah and Rebecca
Jo <yarnall@blueyonder.co.uk>
England, UK - Monday, August 1, 2005 11:29 AM CDT

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Hi Amber (and Tami)!
Thanks SO much for signing my guestbook! It's so funny that you mentioned that about Katie Holmes. When I told a friend from Toledo that I had met her, she said "So? I've seen Katie Holmes at Target." So much for my exciting LA moment ;). I just want to say that Amber looks SO cute in those swing pictures! I hope that you guys made it to the zoo-- that sounds like a lot of fun! Anyway, I'll be sure to check back in. Have a great week!

Sarina <sarina_d@yahoo.com>
- Sunday, July 31, 2005 3:09 AM CDT

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Hi Heiss Family: I am so glad that Amber is having an extensive amount of time without any problems. We are celebrating Amber's birthday on Monday, Aug 8. It is so much fun to be together with all the family. Love, Great Aunt Barb and Great Uncle Jim
Barbara Disch <Bookey47@aol.com>
Westlake, Oh Cuyahoga - Saturday, July 30, 2005 2:59 PM CDT

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Sending prayers your way for a great weekend.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, July 29, 2005 11:35 PM CDT

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HI Amber and Family,
My name is Jenna and I came across your website. You are an inspiration to all. Your a real fighter, and your in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, July 28, 2005 7:19 PM CDT

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Stopping by to see how you all are. I hope you are having a good summer and Amber is doing well.
Angela -HEATHER GRACE

<alisonheathersmama@gmail.com>
natick, ma - Wednesday, July 27, 2005 8:18 PM CDT

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Have a good weekend.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Saturday, July 23, 2005 12:29 AM CDT

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It's always good when doc appts are uneventful. Glad to hear she's doing so good. Just checking in.
Nikki, mikaela, skylar <nd6780@peoplepc.com>
toledo, oh usa - Tuesday, July 19, 2005 6:48 PM CDT

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I'm glad to hear that you got to leave the dang apnea monitor at the office! Wahoo for that. Sounds like good appointments all the way around. I love the new pictures, it looks like Amber loved the water!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Tuesday, July 19, 2005 2:03 PM CDT

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Oh, Amber! How funny that you like to laugh at Jay, Haley, Torey and Mariah getting in trouble! That sounds just like our house. It's so much fun when someone ELSE is getting in trouble, isn't it! How awesome that you are helping your mom in the kitchen. I love your pictures. I will be praying that God will send you an awesome new teacher just like Miss Kristin. He already has the perfect teacher in mind for you. Keep up the great work.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, July 18, 2005 11:43 AM CDT

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I see Amber being more active and alert than ever. Swimming with her and watching her go on the jet ski with her dad was especially exciting.

Keep up the good work, Amber.
Grandma Bonnie <bferguson@meduohio.edu>
- Monday, July 18, 2005 10:42 AM CDT

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Those pictures of Amber outside are awesome. How neat to see her having such a good time! That is also very exciting about the speech therapy sessions. Yippee!
Kristin <tintin7t@aol.com>
Toledo, OH USA - Friday, July 15, 2005 8:32 AM CDT

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I'm glad to hear that Amber is doing well! Too bad about her teacher leaving, that's no fun. I know that when we find a GOOD person that helps Emily, it stinks to lose them. I hope the new teacher will help her as much as this one.
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Tuesday, July 12, 2005 4:45 PM CDT

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Stopping by to let you know we are thinking of you. I hope your appointments go well.

Angela ~Angels on Earth *- -HEATHER GRACE

<alisonheathersmama@gmail.com>
natick, Ma - Tuesday, July 12, 2005 3:16 PM CDT

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Hi Amber. Just checking in to see if you're feeling better. Glad to see that things are much better for you. I love your haircut! How cute. After reading some of your other guests' entries, I can see how you and your family have been a testimony to so many people already. That's wonderful! Keep it up.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, July 11, 2005 9:55 AM CDT

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sorry to hear she was so sad. Hope it gets better soon. The pictures are so cute and hair cut. Alyssa has the same arm braces. She does very well with them. Well I was checking back in with you. Thanks for checking up on us.

www.caringbridge.org/ks/alyssadarrah


shannon stoiber <shaystoiber@sbcglobal.net>
leawood , ks usa - Monday, July 11, 2005 0:50 AM CDT

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Hi Amber,
I hope you are having a wonderful weekend.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, July 10, 2005 1:39 PM CDT

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Hello Amber!!
It has been awhile since we signed your GB, but we wanted to let you know that we always check in on you to see how you are doing.

Sorry about the tummy problems...Savannah has been going through the same thing here..I hope it keeps getting better!

Take care Tami, Amber and family!



((((HUGGS))))
From the Nichols family
www.caringbridge.org/va/savannahsmile
Savannah, Frances and all of the boys <DRAGONBLUEDREAMS@aol.COM>
Remington, va USA - Friday, July 8, 2005 9:04 PM CDT

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Amber you look so big sitting up in that chair for your haircut! I'm glad you are getting new AFO's ... they should definately help you walk!!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Thursday, July 7, 2005 2:22 PM CDT

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AMBER THE STARTING OF YOUR NEW HAIR CUT LOOKS VERY VERY CUTE,KEEP UP THAT SMILE AND LOOK FORWARD TO SEEING YOU WALK
GRANDMA HEISS, PAM AND KORKY TOO
Pam <plrtkh@aol.com>
Toledo, Oh USA - Wednesday, July 6, 2005 8:34 PM CDT

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Happy 4th of July!
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, July 3, 2005 9:33 AM CDT

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Amber you are a very lovely young lady! I am so sorry to hear things have been rough lately.
I feel your frustration with the medical field, we've had the same problems. I just wanted to let you know that you guys will be in our prayers. Take Care!
Dalisa & Alyse (7 on 7/8!) Iversen <martydalisa@hotmail.com>
Entiat, WA USA - Saturday, July 2, 2005 8:22 PM CDT

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Wow! You are so right. When we try to be in control and do not reach out to the Lord, that is when we feel the worst and lose confidence. This is Aunt Barb and we all just love Amber so much. My husband has such a special love for Amber and always goes to her when he sees her. Amber brings us such joy and strength. You see when I see Amber, her brother, sisters, mother, father, I know everything is going to be alright because they all have such a faith in the Lord and because of the Heiss family I have come to know the Lord. I have Stage 4 Ovarian Cancer and have been fighting my battle going on 6-1/2 years. Amber and her family have made me a better person.
Barbara Disch <Bookey47@aol.com>
Westlake, OH USA - Saturday, July 2, 2005 11:51 AM CDT

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We are sorry Amber is having a tough time of it at the moment

and what a day you had the other day when you went past your turning on the road. I drove for an hour once in the total opposite direction to the way I should of being going. I am there with you on your frustration

Hang in there we are all praying for you

We want to see some smiles on our little Ambers face really soon

Just know you have got people that care for you all

Hannah had to feed through an NG tube too, when she was younger.

sending you love and prayers your way

Jo Hannahand Rebecca
Jo <yarnall@blueyonder.co.uk>
England, UK - Saturday, July 2, 2005 10:12 AM CDT

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I'm sorry that Amber is having such a rough time. It is SO HARD to not be able to know what is bothering these little ones. That's the worst part of Emily's screaming fits. I hope that the GI appt tomorrow and the button change helps her out. I agree, Reglan is not a nice drug. If they say she needs a motility drug after the test results are in, ask them about Eurythromiacin instead ... :) Hang in there, I am thinking about you all the time!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Thursday, June 30, 2005 11:29 AM CDT

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Oh, Amber. How we wish things could calm down for you and your family for just a little while! We are praying for you, as always, and hope the doctors (or Mom) can find the source of your pain soon. You need to learn to use your communication board quickly so you can give your mom directions in the car! : )
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Thursday, June 30, 2005 11:28 AM CDT

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Your latest journal entry brought back a flood of memories from the days when RachelJoy had a gtube. I knew she was in pain, but had to guess at the cause. My prayers are with you.
Your daughter's are adorable!
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, June 29, 2005 6:44 PM CDT

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Hi Tami & Amber, I so enjoy checking in to see what God's been doing. Your family is such an example (especially as we enjoyed your company at the campground this weekend.) Thanks for being so real, Tami; and, Amber, we look forward to seeing you getting around the church hallways in your walker real soon! :) Lots of Love!
Cher Goeder
Toledo, OH USA - Tuesday, June 28, 2005 8:07 AM CDT

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I'm sorry to hear that Amber isn't her normal happy self. I hope the surgeon has an answer for you. How GREAT that she is doing good with the walker! That's amazing news. :) I remember how horribly annoying the apnea monitor was when Emily had one. It always went off in stores and such. It is the LOUDEST damn thing ever!!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Tuesday, June 21, 2005 6:05 PM CDT

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Great Job, Tami. We're always praying for you and your family--especially Amber. Always remember that "God is bigger."
Shari Grayczyk <joy4godsgirl@wmconnect.com>
Oregon, OH USA - Saturday, June 11, 2005 10:18 PM CDT

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I just wanted to say hello I just found amber's site.
www.caringbridge.org/nc/ashleyr
Ashley Reber <alrhm@dnet.net>
Cullowhee, NC USA - Friday, June 10, 2005 7:09 PM CDT

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I am glad that things are going okay. What a brave, helpful big brother to vent Amber for you! The gait trainer sounds great, I wish we had a loaner place like that around here.
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Thursday, June 9, 2005 5:47 PM CDT

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This is alyssa's mom, shannon. Good luck on the comm. boards. I was just checking up. Also glad to hear she is doing well. Alyssa has had a bit of problems with seizures in the last few weeks. Her firsts. I am hanging in there. That poem is great, I just sent it to all the people in my address book. I will keep in touch.
shannon and alyssa darrah <shaystoiber@sbcglobal.net/caringbridge.org/ks/alyssadarrah >
leawood , ks johnson - Wednesday, June 8, 2005 11:14 PM CDT

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Hi Amber

I'm glad that you are going so well
Whish you and your family the best
kisses from Portugal
ana paula neves <p.neves@jfhillebrand.com>
matosinhos, portugal - Tuesday, June 7, 2005 6:41 AM CDT

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Tami, Disch and Barb were at our house last weekend and we talked about all of my new friends because of the shawl we knitted together. I went on and on about you and how thoughtful you are and your care and concern for Barb. They shared with me everything about your daughter Amber, I had no idea. Jim emailed this web site to me and what a wonderful way to share your story and love. I am so happy to be included. I will keep you in my prayers and I hope to meet you all soon.
Christy Poorman <clpoorman@hotmail.com>
Rocky River, OH USA - Monday, June 6, 2005 9:36 PM CDT

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Hi Amber

glad you are having some good days, we have been praying that you will be seizure free, so we feel God is answering those prayers

We love the poem that your mom has put on your page, wow it really hits home to us, that Hannah is just that sort of person that is in that poem.

thanks for sharing it

Hi Mom

Meant to ask you, did you enjoy the film with Rosie O'Donnel, riding the bus or something like that. We haven't seen it here in the UK , not sure if its even been released, but we have heard our US friends tell us how good it was.

Sending all the family,our warmest wishes your way

Jo Hannahand Rebecca
Jo <yarnall@blueyonder.co.uk>
England, UK - Saturday, June 4, 2005 7:13 PM CDT

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Hi Amber! Glad you're feeling better again. Have fun working on your communication board. I'm sure you'll learn lots over the summer.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH Lucas - Saturday, June 4, 2005 4:36 PM CDT

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What a GREAT update on Amber! I am so happy that the surgery was such a success for her. It sounds like she's doing amazing. That poem was very touching. Thanks for posting it. :)
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Saturday, June 4, 2005 9:51 AM CDT

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Hi Tami, Hi Amber. Hope you're doing better. Just checking up on you now that my computers fixed. We'll see you tomorrow at PPC.
Nikki and Skylar <nd6780@peoplepc.com>
toledo, oh usa - Wednesday, June 1, 2005 5:47 PM CDT

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Hi Tami & Amber: This is Grandma Heiss and I just want to let you know that I do read this (almost) everyday. I am so happy that Amber is starting to settle down. let's hope the trip last week to the hospital will be the last for a long, longgggg time. And I'm glad she did not have to stay there this time, But I will watch the kids anytime that you need me. Love to the whole family
Grandma Heiss, Pam & of couse....Korky <plrtkh@AOL.com>
Toledo, OH Lucas - Wednesday, June 1, 2005 4:12 PM CDT

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How great that Amber's friend will be able to visit her this summer. That is wonderful! She sounds like such a joy. :) I talked to Emily's neurologist today about the possibility of Rett Syndrome for Emily. He is going to take blood to test for something (MECP or something?) to rule it out. Also he is ordering a spinal tap to rule in/out cerebral folate deficiency (which when googled, sounds very similar to Rett Syndrome). Anyway, the reason I asked the neuro about Rett is because Emily is so similar to Amber. Crossing my fingers that we'll have an answer, any answer, soon. Hang in there, I hope you have a GREAT weekend!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Saturday, May 28, 2005 10:08 PM CDT

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I've been hearing that people can't get into my guestbook I think I fixed it now I hope.Thinking of you always.


My Number 1 Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Friday, May 27, 2005 9:27 PM CDT

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Hi Amber

We just want to say what a cutee you are and I love the photo of you and your sisters, you are all so cute together


MOM

Just want to say, WOW I read the journal and what a fright it must be for you with all these seisures, we are certainly keeping you and your family in our thoughts and prayers

Jo Hannahand Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Thursday, May 26, 2005 6:29 PM CDT

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I am so glad that both of you were able to sleep at home last night. Wow, what a day for you guys. I'll certainly miss seeing you....guess I'll just have to wait until August...bummer. Although, like I said Tami if you come up with any boards you make by next Thursday let me know and we can get them take care of getting them covered. Take care.
Kristin <tintin7t@aol.com>
Toledo, OH - Thursday, May 26, 2005 10:12 AM CDT

---

My Number 1 Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, May 25, 2005 2:38 AM CDT

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Hi Amber. So glad to hear GREAT news for a change. I'm glad you're feeling much better and gaining weight again. I'm excited that you have your sound board to work on. I'm sorry your mommy's making you do 'school' over the summer. : ) Have fun with your new board.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Tuesday, May 24, 2005 11:01 AM CDT

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Hi amber i found your page from another persons site and just wanted to see how you were doing and to say hi!!I will keep my prayers with you always!
Luv,Kayla
http://www2.caringbridge.org/il/kaylamc/
Kayla McClarren <Kam95@comcast.net>
Bristol, il United states - Saturday, May 21, 2005 4:00 PM CDT

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Hi Tami and Amber: This is Aunt Barb and I am excited to know you have a communication board. I know this will open the door to your ability to communicate your needs. I had sooooooo much fun at your house. I like your teacher at Northwood and your pediatric nursery. I will see you soon. I am so glad you have gain your weight back. During my visit, you were so happy and we all love your smiles. You are so beautiful.
Barbara Disch <Bookey47@aol.com>
Westlake, OH USA - Saturday, May 21, 2005 0:22 AM CDT

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Beautiful Amber, I am so happy that you are doing well! A full tummy sure feels nice, doesn't it. You are going to be communicating with your family in no time. I am so excited for you. :)
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Friday, May 20, 2005 3:11 PM CDT

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What a little cutie you are.

My Number 1 Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Thursday, May 19, 2005 1:28 AM CDT

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Hello Tami, Wow Amber looks great! I just got done going through the whole website, what an inspiration! You have blessed me by your strength as a mother and a wife. I wish I could be there to give you a helping hand sometimes. Im so glad you are doing better Amber, a big hug and a kiss from me! Blessings to your whole family! We will continue to pray. Love and Kisses, Beth
Beth Dailey <steve.dailey@agmd.org>
Manila, Philippines - Monday, May 16, 2005 9:02 AM CDT

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Hope you are feeling better, sweetie! Please know you are in our thoughts and prayers.

Angela -HEATHER GRACE

<angembal@yahoo.com>
Natick, ma - Sunday, May 15, 2005 1:48 PM CDT

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Hi Amber,
I hope you are feeling better.

Happy Mothers Day!
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, May 8, 2005 3:53 PM CDT

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It sounds like Amber is doing okay! The days will get better .. although to be honest you will have days like that occasionally. The ability to vent the tummy is SO great though, isn't it! That sound is amazing, the force that the air and stuff can come into the syringe with is strong. I'm glad you're getting used to the pump. As for not getting the amount of formula into her for the day .. we often don't get the total amount in each day. I figure as long as we are close, it's better than before. Before the g-tube Emily ate only 10 oz a day. Now we try for 800 cc's a day. As long as I get 600 in her, I feel okay. :) Happy Mother's Day!!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Friday, May 6, 2005 4:59 PM CDT

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Hi Amber (and your family too)!! Glad to hear you are home and doing better. I told your mom I am sorry I haven't kept in touch as much. I have been busy working on taking Kylie to Baylor and looking for a job. Hopefully we can get together soon now the the weather is getting nicer. You haven't had a chance to meet Kylie yet but I have the feeling you two are going to get along just fine!! Hugs and kisses from your friends in Lansing, Michigan.
Kristen and Kylie Hawkins <khawk195@comcast.net>
Lansing, MI - Tuesday, May 3, 2005 9:47 PM CDT

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Dear Amber,
I'm thankful that your surgery is over. We are continuing to pray for you and your family.
Stephanie & RachelJoym <mom2rj@comcast.net>
- Tuesday, May 3, 2005 6:55 PM CDT

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WELCOME HOME!!! I'm sure that once you get settled and bathed and rested Amber will feel a lot better. Hang in there, and know that I've been thinking of you all week!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Tuesday, May 3, 2005 9:52 AM CDT

---

Welcome home!
Kristin <tintin7t@aol.com>
Toledo, OH - Tuesday, May 3, 2005 6:27 AM CDT

---

Your family is an inspiration to us all...
Bill McGinnis <billmcginnis@toledocalvary.org>
Toledo, OH USA - Monday, May 2, 2005 4:06 PM CDT

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Amber, you're so beautiful! What a blessing you and your family are to so many people!
Maren Kurtz <mkurtz@toledocalvary.org>
Toledo, OH Lucas - Monday, May 2, 2005 2:58 PM CDT

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Tami! I've been sick for a while and haven't checked on any of our CB friends .. I had no idea Amber was even scheduled for surgery! I am SO glad that it went well and she is recovering smoothly. I know how scared you were of both the fundo and the g-tube. It'll be second nature to you in no time. I know it seems gross and weird and icky right now. It will get better. ((hugs)) Hang in there, and PLEASE feel free to email me if you have ANY questions about this stuff!! AMBER - You keep doing awesome and getting better. Here's a huge hug from Emily and I!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Friday, April 29, 2005 10:32 PM CDT

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Amber, Grandma Heiss and Pam Just read what your Mommy has written in your journal, such good news that you are doing so well, hope you are home soon to join your brother and sisters and Mommy and Daddy, Your a trooper!!!!!!!!!!!
Pam <plrtkh@aol.com>
Toledo, OH USA - Friday, April 29, 2005 8:33 PM CDT

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Amber,
How great to hear that your surgery went well and you're doing so good! I knew you would. We're still praying for you and hope you're home real soon.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Friday, April 29, 2005 4:25 PM CDT

---

Glad to hear that everything went well. Let us know if there's anything we can do to help out. It was weird at school yesterday without her...Sandy felt the same way. :)
Kristin <tintin7t@aol.com>
Toledo, OH - Friday, April 29, 2005 3:02 PM CDT

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Praying that all went well with the surgery and that you all will be home from the hospital soon.
Jennifer from the prayer bears <charay913@yahoo.com>
Wichita Falls, Texas - Friday, April 29, 2005 0:12 AM CDT

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Hi Amber,
You are in our thoughts and prayers.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Thursday, April 28, 2005 7:17 PM CDT

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Amber, I am an old friend of your Grandma Heiss'. I am adding you to my prayers and will keep up with your progress through Grandma Heiss and Auntie Pam. GOD BLESS
Irene Ball
Toledo, OH USA - Thursday, April 28, 2005 12:27 AM CDT

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Hi Amber!
Praying for you today!!


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Thursday, April 28, 2005 11:54 AM CDT

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Hey, Amber it's Grandma Heiss and Pam, wishing you good luck on your surgery. Love Ya, Keep that great smile!!!!!!!!!
Theresa K Heiss <plrtkh@aol.com>
Toledo, OH USA - Wednesday, April 27, 2005 6:39 PM CDT

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Hi guys! Hope everything goes good with the surgery, keep me posted!

Nikki, mikaela, skylar <nd6780@peoplepc.com>
toledo, oh usa - Tuesday, April 26, 2005 6:42 PM CDT

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Hi, Amber. I love you new picture. You are so adorable! I will be praying for you Thursday when you have your surgery. I know once it's over, you're going to feel much better. Your mom and dad sure work hard at finding the very best for you. You're a lucky little girl. God has really blessed your whole family, and I'm sure He is using your life to bless many, many other people. I'll be checking in on Thursday to see how you're doing.

Love and prayers,
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH Lucas - Monday, April 25, 2005 9:04 PM CDT

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My prayers and thoughts are with you.

I'll be thinking about all of you on Thursday, April 28th

Love,
Anita
Anita Kemsley <Akem123@sbcglobal.net>
Livonia, Mi USA - Monday, April 25, 2005 8:10 AM CDT

---

Just checking in. Hope it was a good weekend. :)
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Sunday, April 24, 2005 3:45 PM CDT

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Hi Amber: Every time I see you you seem responsive to my interactions. You smile and laugh. I know in time you will need a G-tube and in the long run will be the best thing for you.
Aunt Barbara Disch <Bookey47@aol.com>
Westlake, Oh USA - Tuesday, April 19, 2005 7:57 PM CDT

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hey guys its nikki''s sister, hope things get better for you. see you saturday at the walk.
Kristi <kitina128@aol.com>
toledo, oh usa - Tuesday, April 19, 2005 6:30 PM CDT

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Hey Amber!
I'm glad that you were in a good mood! :) Hope the stuff gets sorted out with the doctor. Hate that you hafta get stuff done, but I hope it'll really help you!


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Tuesday, April 19, 2005 11:00 AM CDT

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I'm glad you had a good appointment! I know what you mean about "ack'ing" over the number of sticks for an IV. On Friday, Emily was poked 7 times before I made them stop and say no more. It's so sad for these little ones. I hope you have had a chance to look around the website I emailed you. It's a REALLY good place. :) What you were told was right .. most times a g-tube without a fundo will lead to even more reflux. It's just not a good idea usually. I hope you will come to a decision you are comfortable with. Hang in there, you're doing great! :)
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Monday, April 18, 2005 6:30 PM CDT

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Hi Amber,
I just wanted to say hi. I hope you are having a nice weekend.
Jaime www.caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, April 17, 2005 4:11 PM CDT

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Stopping by to check on Amber. I hope the Drs can give you some answers to help Amber. I love looking at her pictures, she is so beautiful.
Angela- -HEATHER GRACE

<angembal@yahoo.com>
Natick, MA - Friday, April 15, 2005 9:35 PM CDT

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Hello,

This is my very first visit to Amber's page but wanted to let you know that I will be checking daily now to see how she is doing. This must be difficult for you, I can only imagine. My daughter Caitlin was diagnosed with autism and epilepsy and underwent extensive genetic testing last year, for everything including Rhetts. The thought was scary for me. You must be very special people since God never gives us more than we can handle! That much I do believe. Amber truly is an inspiration of courage and faith that we should all aspire to. God Bless all of you, you are in my thoughts and prayers.

Love,
Mary
www.caringbridge.com/fl/caitlin





Mary Templeton <mary.templeton@gmail.com>
Citrus Springs, FL USA - Thursday, April 14, 2005 2:07 PM CDT

---

What a beautiful little girl you have! You are such a strong person. You will be in our prayers.
Take care,

Jen and Alyssa Johnson -- http://www2.caringbridge.org/ca/alyssamae/ <jljohnson@ucsd.edu>
El Cajon, CA - Saturday, April 9, 2005 7:03 PM CDT

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Greetings from sunny Florida. We really enjoyed Amber's website and will check in on her periodically to see her progress. What a cutie patootie Amber is!! I am so blessed for "knowing" so many special families. I am so touched by your love and faith. Praying for you daily...for peace, courage and strength. Your family is such an inspiration. Looking forward to getting to know all of you. Feel free to check out Joshua's website. He just turned 3 and brings so much joy into our lives also.

http://www.caringbridge.org/fl/joshuadavid

Take care, and God's blessings always.........
Dawn & Joshua Wingfield <dawnwingfield@yahoo.com>
Amelia Island, FL USA - Thursday, April 7, 2005 10:36 PM CDT

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Amber - Our family prays for your whole family very often. I know your mommy and daddy have lots to handle, but God is always helping them. I love to read your journal and keep updated on what's happening with you. I know God will continue to bless you and your family and guide them in all decisions. I'm so glad you don't have to have a G-tube yet. Maybe never! We love you guys.
Linda Keller <lindakeller@sbcglobal.net>
Holland, OH USA - Thursday, April 7, 2005 10:57 AM CDT

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I am so glad that the GI is getting you in sooner! As you probably know from reading Emily's website, she recently had her second fundo and she has a g-tube. I'm going to send you an email in just a minute, I hope you don't mind. :) Thanks for checking on Emily and signing her guestbook!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Thursday, April 7, 2005 9:41 AM CDT

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Glad to hear that the G-tube is not a necessity. Continuing to lift your family up in prayer.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Wednesday, April 6, 2005 7:50 PM CDT

---

Hi Amber!
Glad that you don't hafta get the g-tube for now!


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, April 6, 2005 8:31 AM CDT

---

Hello~
Amber, you will surely remain in my daily thoughts and prayers!
God Bless,
Alyssa Lewellen, patient at The Children's Hospital of Illinois
www.thestatus.com
ID: Lewellen
password: beauty-kansas
Alyssa Lewellen <Aballerina5678@aol.com>
Peoria, IL USA - Saturday, April 2, 2005 11:02 PM CST

---

I'm glad to hear that Amber has been so alert and happy! Good luck with her upcoming tests. Your website has encouraged me to research Rett Syndrome some .. now I am going to ask our neuro if it could possible be what is the root of my Emily's problems! (Probably not, but at this point I want a diagnosis so bad that almost everything "sounds like her")
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Friday, April 1, 2005 4:32 PM CST

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Hi Amber,
Will be praying for your upcoming tests and stuff. And your doctors should learn that mommy is always right! lol...


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Thursday, March 31, 2005 9:22 AM CST

---

Hi,
I totally agree with you about the family too! Its so sad and I don't understand it 1 bit.


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Sunday, March 27, 2005 8:56 PM CST

---

Tami,
I read your statement regarding T. Schiavo. All I can say is Amen! I feel very helpless & I can't believe I live in a country where this is happening. Laurie/Grandma Bahnsen
Laurie Bahnsen
Oregon, OH Lucas - Saturday, March 26, 2005 7:14 PM CST

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I hope you all have a Happy Easter! I bet the Easter Bunny is bringing you lots of yummy things!

Angela- -HEATHER GRACE

<angembal@yahoo.com>
Mass - Saturday, March 26, 2005 1:49 PM CST

---

I am right there with you Tami. I totally agree with everything you said. My Mom and I are glued to the TV hoping and praying that somebody steps in to help and do the right thing. Give Amber a hug for me.

Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Friday, March 25, 2005 7:57 PM CST

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What a beautiful little girl Amber is! I hope she her belly starts feeling better and her ear infection clears up. Please know that she is in my thoughts and prayers.

Angela- -HEATHER GRACE

<angembal@yahoo.com>
Ma - Thursday, March 24, 2005 1:50 PM CST

---

Praying for you.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Monday, March 21, 2005 12:00 AM CST

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Hi Amber!
Sorry to hear that you're not doing so good. *hugz* Praying that the coughing and throwing up will ease up really soon!


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Monday, March 21, 2005 6:39 AM CST

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Hi Karl, Tami and family. The new little pictures for
Amber are very cute. She is always in my prayers. Keep up the good work w/Amber.
Love,
Grandma Bahnsen
laurie bahnsen
Oregon, OH Lucas - Saturday, March 19, 2005 8:39 AM CST

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Thank you Tami, Amber and the rest of the family for welcoming me into your home. It was a great learning experience! I will keep Amber and the rest of the family in my prayers.
Stacy Buchanan <stacyjb@bgnet.bgsu.edu>
Bowling Green, Ohio - Tuesday, March 15, 2005 8:46 PM CST

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Hi Amber,
We missed you today at school. I almost turned at one point to go and talk to you...then I remembered that you were playing hooky...just teasing. :) See you and your Mom tomorrow.
Kristin
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH - Tuesday, March 15, 2005 6:27 PM CST

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Hi Amber. I check your page often, but I don't sign the guestbook often. I'm so glad you finally got your cool wheelchair. How fun. I love you new pictures. You are so cute and sweet. Keep smiling! I hope your cough is gone soon. I'll pray for you.
Linda <lindakeller@sbcglobal.net>
Holland, OH USA - Monday, March 14, 2005 3:28 PM CST

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Hi Amber!
Cool photos! Wow... I bet your new wheelchair is pretty neat! Bubblegum pink... my fav color! :)


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Monday, March 14, 2005 10:16 AM CST

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Just stopping by to let you know that we are praying for you.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, March 11, 2005 10:01 PM CST

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Hey Amber hope you are feeling better. Big hugs for you and all of your family!!
Leanne <QuEeN_oF_tHe_WoRlD_2005@hotmail.com>
Canada - Friday, March 11, 2005 2:07 PM CST

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Hello,

Thanks for signing Sarina's Guestbook.

It is so hard to see our children have to deal with all the medical stuff. I was also so upset last year when we finally gave in and ordered the special need stroller. I was also so upset to see how much it looked like a wheelchair, but i am over that now. She needs it and it sure does help.

Hope the cough gets better soon.
Heather Sarina's Mom http://www3.caringbridge.org/pa/sarina/ <CloudRaven@verizon.net>
Phila.,, PA USA - Wednesday, March 9, 2005 8:42 PM CST

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Hello. You don't know me but I stumbled across Amber's Web page and it reminded me of a special I saw on discovery health channel a couple of years ago about Rhett's syndrome so I check in as often as I can to see how your family is doing.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Wednesday, March 9, 2005 6:44 AM CST

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Hi Amber,
I hope that nasty cough goes away soon. Hang in there!


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Tuesday, March 8, 2005 0:05 AM CST

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Hey Amber!
Wow! Glad to hear that you're doing good! Your mommy sounds like she's really proud of you. :)


~Joanne’s Corner~


~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, March 2, 2005 10:00 AM CST

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Hi Amber...
Oh my goodness... sorry to hear that you are in so much pain! Here's a big *hug* for you. Hope you feel better soon!


~Joanne’s Corner~


~Bridge of Dreams ~

Joanne <joanne_173@hotmail.com>
- Wednesday, February 23, 2005 9:05 PM CST

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Hi Karl,Tammi and Amber,
My mom gave me your website. Glad to hear Amber is doing better. Cant get over how much she looks like her cousin Keira(Kristin's daughter) Hope she feels better soon. wanted you to know we are here and love you all.
Cheryl Lizcano <CLLIZ62@aol.com>
Toledo, OH Lucas - Wednesday, February 23, 2005 6:31 PM CST

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Hi Amber, Tami and family--

Soooo glad to hear those icky seizures are staying away!! Sorry, Savannah and I had pneumonia and have been so sick, I haven't checked in on you for awhile. I'll have to make sure not to let that happen again.



Take care and talk to you soon.
www.caringbridge.org/va/savannahsmile
Frances <Dragonbluedreams@AOL.com>
Remington, VA USA - Monday, February 21, 2005 1:20 PM CST

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Hi AMber!
Just wondering how you're doing! :)


~Joanne’s Corner~


~Bridge of Dreams ~

Joanne <joanne_173@hotmail.com>
- Thursday, February 17, 2005 11:19 AM CST

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Amber your website is great and cute pictures! I got your website from your best friend Skylar.
Shannon <stoibershannon@hotmail.com>
Leawood , KS USA - Thursday, February 17, 2005 0:01 AM CST

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Hi Amber!
Hope today finds you doing better! :)


~Joanne’s Corner~

Joanne <joanne_173@hotmail.com>
- Sunday, February 13, 2005 8:24 PM CST

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Hi Tami and Karl. Laurie gave me the website to view. I was happy to read your journal and the progress that Amber is making. Your family is always in my thoughts and prayers.
Alan Geha
Whitehouse, Oh Lucas - Monday, February 7, 2005 6:20 AM CST

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Hi Tami, Hi Amber! Hugs and kisses from Nikki, Mikaela, And of course Skylar (maybe a little wet)! See ya soon! Love the website!
Nikki, mikaela, skylar <nd6780@peoplepc.com>
toledo, OH USA - Wednesday, February 2, 2005 7:07 PM CST

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Hi Amber HOWRYA Im Lauren Schuster & I remember you When You Were Little Im Prayin For YA!!! P.S.TAMI my Mom says HI!!(Carol Schuster)

G2G Love you,Lauren Schuster
Lauren Schuster
Rockford, OH USA - Saturday, January 29, 2005 9:26 AM CST

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You are in my prayers - wish I could do more.
Peggy Wellman <pwellman@mco.edu>
Maumee, OH USA - Thursday, January 27, 2005 2:18 PM CST

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Hi Amber!
I'm glad that you're home and I pray that you won't get anymore seizures!


~Joanne’s Corner~

Joanne <joanne_173@hotmail.com>
- Sunday, January 23, 2005 7:58 AM CST

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Hi i got your site off Savannahs. i hope you get better so soon.
Lisa Petrow <Moterkid23@aol.com>
Scotch Plains, NJ 07076 - Friday, January 21, 2005 9:16 AM CST

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Hi Guys,
Sorry to hear about the return to the hospital. That's a bummer. Sure hope they can get it all figured out. Thinking about all of you. Take care. Hope to see you soon Amber.
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, - Monday, January 17, 2005 8:35 AM CST

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Hi...sorry to hear about the hospital stay. I will pray that the meds can be balanced properly so she will not continue to have to go through the seizures!
Ang <aversfamily6@msn.com>
Romeoville, IL US - Sunday, January 16, 2005 6:25 PM CST

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Hi Amber. I just found out you are back in the hospital. It sounds like you are having a good time in the hospital since you are laughing, but wish you would go to sleep so mom could get some sleep. Hope you go home tmr.

Love, Great Aunt Barb
Barbara Disch <Bookey47@aol.com>
Westlake, Oh USA - Sunday, January 16, 2005 2:39 PM CST

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hi amber! this is savannah nichols grammy saying a special good morning to you! hope u are feeling better sweettie...thinking of you and wishing you and mommy a wonderful day..huggs...liz..grammy to savannah
liz moore <MRSBEZLY@AOL.COM>
the plains, va - Tuesday, January 11, 2005 5:58 AM CST

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Hi Amber...It's Kelli, just checking up on you. Sorry I missed you while I was there. You pictures are funny and very cute as always. Good Luck in Texas baby, I'll talk to you soon. Miss you always. Love, Kelli
Kelli <kellijoro@yahoo.com>
West Palm Beach , FL - Thursday, January 6, 2005 8:43 PM CST

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Hi Amber,
I hope you've been enjoying the holidays and the time with your family. Hope you have a safe trip to Texas and your Mom and Dad get lots of good info. We'll see you next week.
Miss you, Miss Kristin
PS--Tami, I hope the flight isn't too awful for you. :)
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH USA - Monday, January 3, 2005 7:14 PM CST

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Hi Amber: This is your Great Aunt Barb. We feel so fortunate to have you as our special child. I know you are going to Texas to see some doctors who are very knowledgeable regarding Rett Syndrome. I will pray for you. I will be taking care of your brother and 2 sisters. I know you are a gift from God. Your mom and dad are special parents and give you such great care and love. Happy Holidays, Great Aunt Barb
Barbara Disch
Westlake, OH USA - Thursday, December 30, 2004 9:14 AM CST

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Great pictures of your little angel.
I understand about the crying,(Screaming for Shelley) Shelley did the same when she was a little gal too. About drives you crazy doesn't it.
It gets better though, I promise.
Now she is pretty quiet most of the time.
Joan <twojhood@cs.com>
Beaverton , OR USA - Monday, December 27, 2004 6:04 PM CST

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Thanks for the web site. My daughter is five yrs old and was diagnosed finally with RS after autism for 3 years. Kathy Burke
Kathy Burke <kozcat1@hotmail.com>
nashua, NH Hills - Saturday, December 25, 2004 8:57 PM CST

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This is a great web site. Amber looks like she is having fun.
Anita Kemsley <Akem123@aol.com>
Livonia, Mi USA - Wednesday, December 22, 2004 1:48 PM CST

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wishing all of you a warm and blessed holiday season.
tiny tom <tinytomxs@yahoo.com>
toledo, ohio usa - Sunday, December 19, 2004 2:21 PM CST

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Hi Amber and Tammy and family, you are such a doll...I bet everyone spoils you, who could help it. My husband and I have two beautiful grandsons and we do a little spoiling too.. I am a friend of Pam and Bresa your grandmother. Pam sent me your site tonight..Keep up the good work Amber and have fun in school...Merry Christmas to you and your family...will keep you in my prayers...Much love, Sharon
Sharon Albrecht
Midland, Mi U.S.A. - Saturday, December 18, 2004 11:38 PM CST

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Hi, Amber!!! I just love your pictures. I remember seeing you in Miss Kristin's classroom a few weeks ago, and I hope to see you there again sometime. I'm Miss Kristin's Mom.
Mary VanCuren <Lons542@aol.com>
Fostoria, OH USA - Monday, December 6, 2004 8:06 PM CST

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Hi Amber! I heard about you and your family on Savannnah's page and I wanted to say hi. You are a doll! Very adorable.
You have touched my heart, as all the angels have. Best wishes to you for the holidays!
Kelly Gray <fairietears@myway.com>
warrenton, va usa - Monday, December 6, 2004 9:12 AM CST

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Hi Amber and Tami,
Very cute picture of Amber....see you in a few weeks!

Love,
Chad
Chad Bahnsen <bchad111@aol.com>
Drexel Hill, PA US - Sunday, December 5, 2004 6:23 PM CST

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Hi Amber!
I saw your link on another page and wanted to stop by to say hi!


~Joanne’s Corner~

Care Mail!

Joanne <joanne_173@hotmail.com>
- Sunday, December 5, 2004 7:42 AM CST

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Hi Amber,
I heard about you from Princess Sammy's mom and wanted to come and say Hi. Have a great day.



Dana Sanford ♥.•:*¨¨*:•.Friends of Allie♥.•:*¨¨*:•. <Aunty.Dana@gmail.com>
Spring Arbor, MI - Saturday, December 4, 2004 9:56 PM CST

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Awesome website!!! Inspires those of us who are less creative and imaginative to get busy!! Maybe Megan and Amber can meet at the next IRSA conference!! Take care.
Rhonda , Megan and JonJon <jonathans1@prodigy.net>
- Saturday, December 4, 2004 7:56 PM CST

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I will keep her in my prayers. I love the poem on the first page, it is so true.
Tina www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Saturday, December 4, 2004 4:42 PM CST

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Hi Amber,
Im just stopping by to say Hello, and to send you some well wishes. Have a great day.
Renee ~*Friends of Allie*~ <renee.lorck@gmail.com>
Somonauk, IL USA - Saturday, December 4, 2004 1:43 PM CST

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Hello Amber! You have a pretty neat site here. I like the pictures of you at school. You make some pretty neat projects. I like to do arts and crafts too. I have a 7 year old girl and a 4 year old boy that like to get all messy making things. That's a lot of fun isn't it?

I hope that your sleep study goes well on the 21st. I'll be thinking of you. Have a fun weekend!
Kari (Friends of Allie) <zfamily00@hotmail.com>
Wauwatosa, WI - Saturday, December 4, 2004 1:23 PM CST

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Hi there, I just found out about your site today..I wanted to come leave you a pretty picture, and also to let you know that there are lots of people thinking about you and praying for you..You take care sweetie, hope you have a nice christmas..
Cathy ^Friends Of Allie^ <sister_2@hotmail.com>
Weatherford, Tx USA - Saturday, December 4, 2004 12:18 AM CST

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Amber it is so nice to meet you I hope that everything goes well. I will keep you in my thoughts and prayers.
Melinda Bogan ~Friends of Allie~ <mkb977@hotmail.com>
west carrollton, oh USA - Saturday, December 4, 2004 10:51 AM CST

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Hi Amber! You certainly are a cute little girl! I love all your pictures. It looks like you get to do lots of fun activities at school! I hope your sleep study goes well. I will be thinking about you!
Ginny **Friends of Allie** <jgdeegan@msn.com>
Mtn. Home AFB, ID USA - Saturday, December 4, 2004 10:27 AM CST

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Hi Amber,

You are a beautiful little girl!

Many hugs to you!

God Bless,
Susan
~Friends of Allie~
Susan Bernhardt <dshszb5@yahoo.com>
Zimmerman, MN - Saturday, December 4, 2004 8:58 AM CST

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hi amber! i am savannah nichols grammy....i love your new website ...you are such a beautiful girlie..just like savannah...i will visit again soon...huggs..
liz moore <mrsbezly@aol.com>
the plains, va usa - Friday, December 3, 2004 9:19 PM CST

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hi amber!! i am savannah nichols grammy. you have a beautiful site. what a lovely young lady you are! i will come back again visit...love and huggs
liz moore <mrsbezly@aol.com>
the plains, va usa - Friday, December 3, 2004 7:57 PM CST

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Hi Amber~
So nice to "meet" you. Your mom has done a great job on your site. You are such a beauty!!
Have a great Christmas!!
We will visit you again soon.

Love,
The Nichols' Family
www.caringbridge.org/va/savannahsmile

Frances Nichols <Dragonbluedreams@AOL.com>
Remington, VA USA - Friday, December 3, 2004 11:45 AM CST

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Hi Tami,
That picture of Amber is just darling. I enjoy having her in our room so much. Have a good weekend.
Kristin
Kristin VanCuren Koester <tintin7t@aol.com>
Toledo, OH USA - Thursday, December 2, 2004 5:29 PM CST

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Hey Tami!~! This is such a very neat thing you are doing. What a special thing.
Laura <beck-08@sbcglobal.net>
Toledo, oh USA - Thursday, December 2, 2004 9:31 AM CST

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This is my granddaughter and she is very special. I have learned a lot from her. Her eyes talk to me all the time and I love her expressions. Her family is very loving and her sisters and brother help out alot. Of course, grandma helps alot too (that's me).
Bonnie Ferguson
Toledo, OH USA - Wednesday, December 1, 2004 1:35 PM CST

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Tami,
This is totally awesome and inspiring. God is truly working miracles in your family and in young Amber's life. I am looking forward to reading with my children about Amber's life. Blessings to you,
Shari Grayczyk <joy4godsgirl@wmconnect.com>
Oregon, OH USA - Wednesday, December 1, 2004 11:03 AM CST

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This is so awesome. Now everyone can keep up to date without you having to repeat the story multiple times.
Keller family <lindakeller@sbcglobal.net>
Holland, OH USA - Wednesday, December 1, 2004 8:04 AM CST

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Tami, this is so exciting. It will be a wonderful way to chart Amber's progress and all the special times you have as a family! It's right up your alley!
Angie <aversfamily6@msn.com>
Romeoville, IL 60446 - Tuesday, November 30, 2004 10:26 PM CST

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Great Aunt Barb loves Amber's website.
Barbara Disch <Bookey47@aol.com>
Cleveland, Oh. USA - Tuesday, November 30, 2004 9:11 PM CST

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Great story!
Nikki and Skylar <nd6780@peoplepc.com>
toledo, OHIO USA - Tuesday, November 30, 2004 8:39 PM CST

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