Zachary’s Story

Site created on May 8, 2019


Hello everyone!

For those who don't know me, my name is Zachary Kenaston and I am a 23 year old heart patient from Huntington Beach, California!

I was born in 1996 with  a congenital heart defect, basically, I  had an under-developed right ventricle.  I had to undergo three open heart surgeries by the time  I was 3 years old  to temporarily fix the problem . These surgeries included a Glenn Shunt, and a Fontan Procedure.  Unfortunately, as explained to my parents, they were only a temporary fix to extend my life but would not guarantee me a long life. I have been on blood thinner medicine my entire life, but that did not keep me from danger. I have also suffered and survived two strokes.  I received my first pacemaker when I was only 18 years old while still in high school, and later received another pacemaker as a replacement in 2018. All in all, these surgeries have  given me somewhat of a normal life and I am thankful. Unfortunately, my heart started backing up blood into my liver and I was diagnosed with cirrhosis in 2018.


Since then, heart failure has caused my abdominal, legs and feet to swell up with liquid and I was told by doctors that I will be needing both a heart and liver transplant if I am to live a full life expectancy.


So I've started this page to post updates, fuel support, and raise funds for my medical endeavors in the future. I've also started the hashtag #zachlives on Facebook for anyone who wants to send good vibes my way and post supportive messages.


I've also set up a GoFundMe account for any and all donations to help me overcome medical costs after the transplant. I will need 24 hour care for 3 months in a home close to the hospital after surgery, so any funds donated is greatly appreciated!  Visit the Ways To Help tab to view my GoFundMe. Every little bit helps!


Thank you everyone for your support and I will keep you posted!

Newest Update

August 1, 2019

Journal entry by Zachary Kenaston —

WOW! UPDATE TIME!!! sorry I haven't updated in so long, Ive been enjoying life OUTSIDE OF THE HOSPITAL! Thats right, Ive been a free man for a few weeks and man am I feeling strong! Ive been walking around a lot and going to physical therapy, I have A LOT of meds to keep track of including steroids, anti rejection and essentially a artificial immune system. IM ON TOP OF IT THO! absolutely killn it like always! I have to get a biopsy every week but I think its going down to every 2 weeks soon. I wear a cool little portable heart monitor on my chest that makes me feel like Iron Man. I have a place close to the hospital and its easy to get from place to place. Living the good life! Thabk you to everyone who supported #zachlives and donated. Im closing the Gofundme because it went OVER its goal which is incredible! Ill post occasionally as my recovery speeds up. Feeling great!
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