Well this post has been a long time coming, but I keep waiting for the latest news and it seems to be a constant barrage of changes. I have finished whole brain radiation in April to go after many brain tumors throughout And some scattering of micro tumors. My last brain scan showed much improvement but the big test will be The brain MRI coming up shortly. We’re going to try to get in this coming week to have that done. And still taking my anti-seizure medication and I have not had a seizure since the days after our wedding in February.
I qualified for a trial at OHSU which includes pill dosage daily, and Immunotherapy by IV Added once a month. I have not responded to it well and discovered this week that I have more progression.
This weeks scans show tiny lesions on my liver now, I discovered on my own two small tiny lumps at the surface of my skin near my rib cage, A new lump next to my other tumor in my abdomen, the tumor on my backside has grown very slightly, my right lung tumor has grown and a new one present, and my mediastinal nodes have grown as well. That’s an area of many nodes and located between the two lung branches. The main node remains stable somewhat and un changed dramatically but there are two new nodes affected. So we are moving up my brain MRI To next week and no later, to make sure that is still stable, and I’ll be going back to the drawing books are retrying Xeloda. It causes HandFoot syndrome but less major fatigue.
The great fatigue caused by whole brain radiation should be peaking right about now and hopefully I’ll start getting more energy back. I’ve had a lot of nausea and lack of appetite so I’ve lost over 10 pounds in a very very short period of time.
I knew Instinctively that my cancer was progressing but I was also dealing with the struggles of putting my beloved jazzy to sleep and also navigating Byces recent decision to sub-retire, A ton of changes going on in our household right now and it Has become nearly impossible to keep up. Truly hoping to get my energy back soon.
I want to thank those that have been here to help me and my family along the way. My poor Jazzy cat has been such a comfort to me but after 19 years her body was giving up, and her eyes were telling me she was done. I am emotionally broken but the process was peaceful. We tore our bedroom apart yesterday and pulled the carpet up as she has had a few accidents in this last week of her life, so still lots to do and still living in a bit of chaos, and so it goes,,...just life! I am looking forward to this next one week break of no chemo and get my bearings back before we start again. Much love to you all!
