First surgery helped, but the second one really made the world of difference. Wells went from 50-100 seizures a day to only about 7 in a 12 hour period. And we have only seen about 5 today. The more days that pass they could potentially get even better once swelling goes down.

After the last two surgeries, we even had a discussion to stay and do another embolism bc the neuro surgeon was confident he could embolize the one small area that seems to be where this new activity is coming from. We definitely want the best for Wells and our family, but we needed a break and time to decide if we wanted to do another embolism so close to his hemispherotomy come May. If he has another embolism, there was talk to postpone his hemispherotomy to when he’s a little older. But, we also have the fear of “what if it still doesn’t help eliminate his seizures and we put him through another risky surgery for not much difference?” Or, “what if he remains seizure free for a few months and then they come back in vengeance and we need to get onto the books again for OR time?” Let’s be real….we all know how hard it is to get OR time! We will have a tele-health call Tuesday to discuss all options. So many decisions and options to think about. And BIG decisions that could effect Wells quality of life. So please keep us (again) in your thoughts and prayers and may the Lord grant us the wisdom and strength to make the right choice for our sweet boy!

On a side note, during his stay, he was able to meet his cousin Eric for the first time! We are so thankful he made the trip over to meet him and visit with us! Aunt Sissy and Uncle Bill were definitely there in spirit with us all ❤️