Journal entry by Andrea Sumits —
UPDATE from Stephanie!:
Well, it's been a busy few months since Walt's come home. He has improved so much! Here's a video message from him: https://youtu.be/ApErz797ICY?si=yddzpPc53CFv_Flf.
He is still in a wheelchair, he's not able to walk yet. He can move his legs and is getting stronger with physical therapy. He has some confusion but still has his great sense of humor that you all know well.
Eli and I modified the bathroom sink so he can roll in to shave and brush his teeth. That felt really good for him to be able to do that. We'll need to change the shower into curbless as well down the road. Right now it's a bath/shower combo that he's not able to navigate.
I've been Walt's main caretaker with some hired help when I needed to work. It was pretty exhausting. Apologies for not updating the Caring Bridge site. I was trying to keep everything going here. Walt's as stubborn as he used to be. We have almost daily arguments about him trying to stand up on his own. We're hoping that will be the case, but his legs won't hold him up yet.
I have found a used wheelchair van that would immensely change our lives. I had held off going in that direction to see if Walt might be able to transfer into a regular car seat ie my van. That looks like it won't be anytime soon. The van would allow me to take him to outpatient PT where they have the standing frames and other equipment that isn't accessible in a home environment. It also would give him the chance to get out of the house on little day trips. The van is $16,000. The link to our GoFundMe is here: https://gofund.me/e12e4c36
If you are interested in contributing any amount towards it I would be very grateful. Walt's CA disability has ended so he is receiving only SS disability right now.
Stay tuned for information on a gallery show with Walt's photography work. You may not have seen his Instagram: https://www.instagram.com/woodacre_walt?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==
I promise to update this site more. Life is getting into a little more of a routine and I'm not as exhausted.
Lots of love,
Stephanie
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