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May 19-25

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It was one year ago today, I went to the ER since I hadn’t been feeling for a couple of weeks. I had a fever that would come and go along with body aches. Of course I was being stubborn thinking it would pass, saving my sick time to trade in for vacation time. My coworker covered my shift for me without me asking and told me to go in, I wasn’t looking too good. I figured it was Eli’s first day of kindergarten, I have some time before the boys get home, I’ll go in to be seen. Well, it wasn’t that simple. I had a fever of 108 degrees, the ER staff was in disbelief. Of course I was admitted immediately. They performed a spinal tap on me and a barrage of other tests that night. We didn’t get many answers for several days, I was a mystery. I was given high doses of antibiotics  through an IV right away. I didn’t eat for almost three weeks, bedsides a cup of yogurt that my friend Marielle fed to me at one point. It took just over a week to get my diagnosis of HLH and was transferred to the ICU at Mayo Clinic. I was experiencing organ failure, tachycardia, and had sepsis. I don’t remember much during that time.  I do remember all of the staff at OMC and Mayo that acted quickly and took such good care of me. I remember so many friends, family, and acquaintances that helped me and my family get through this difficult time. I’m so thankful for all of you.
One year later and so much has changed. I’m feeling more back to myself. Still on a lot of medication, but slowly tapering from some. I’ve stayed healthy through the pandemic with the help of my medications. I was diagnosed with rheumatoid arthritis earlier in the year which made my doctors go back and reevaluate. They’ve now determined that the trigger to my HLH was Stills disease, which is an autoimmune disease that often goes hand in hand with RA. This diagnosis makes managing my HLH easier since my Stills is being controlled by a daily injection, my HLH should stay in remission. 
It’s been a long time since I’ve updated. I’m still processing my new diagnosis and treatment. Also managing life during a pandemic. Once again, I really can’t thank everyone enough for the love my family has received over this past year. 

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