Van’s Story

Site created on September 26, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Blann Lutken

Discharge Day!

Van is going home today! He completed his IV meds last night for his treatment of PANS/PANDAS, and the nurses took all his IVs out!  Van has shown much improvement with this medication!  Van will continue steroids orally at home for 50 days.  Doctors have warned them that the effects of this medication may take longer (weeks / months) to see actual improvement, and that is normal.  He will be followed closely by his current team of doctors with routine checkups.  He has a great team of therapists (PT, OT, ST, play therapy) in Oxford waiting to evaluation him and start therapy to get him back to his old self!

Emily and Hamilton would like to give a special thanks to the following people who have gone over and beyond to help them during this difficult time.
1. Gay Gay & BB and Bana & Pop
2. Emily's work family - Leah Tullos, Ashleigh P, Jenny Kate Karr, Heather Card, Brittany Tolbert, Miss McIntyre.
3. Everyone who has signed up for the Meal Train

How you can help:
1. Continue to pray for Van and for his continued improvement with overall health.
2. Sign up to take them a meal; here is the link: https://mealtrain.com/9m9785
3. Continue to give Emily and Hamilton privacy while they get home and settled with Van. 

 

Philippians 4:13

"I can do all things through Him who strengths me"

 

Continued prayers, Blann Lutken on behalf of the Frey Family. 

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