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May 12-18

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Blood levels are checked/monitored every clinic day (2x/week).  Unfortunately Ty needed a platelet transfusion before the LP and blood before going home.  Due to needing all of this, he was at clinic much longer than expected.  (Nothing to eat and drink before the LP either).  

LP#2  out of 22 - Tyler did really well with this one!  The doctor was very impressed with his success and will look at trying the next one with oral meds, so he can eat that morning.  While he was laying flat for the 30 min. after it, lunch was on the way.  Moe's queso for the win!

Ty ate lunch during his blood transfusion and chemo before going home.  He was very surprised how much the blood transfusion helped his shortness of breath the next day!  We are told the transfusions will continue to be needed at times throughout the rest of his journey.

Clinic visits will continue until Day 29 with PT weekly, OT, doctor/nurse visits, nutritionist, and other staff.  So far he has done well overall with just some shortness of breath, occasional headaches, some nausea, a little tired, and the normal prednisone effects.  The doctors and nurses are so impressed with his exceeding the step goal and still remaining active when he can.  He was even able to start back to school on days when not at clinic on Wednesday, 1/17 (thanks for the 2 hour delay this made the transition a little easier!), and Thursday 1/18.  We will update again at the end of Induction.  Ty is hoping to continue with school during this phase.  

Pictures are the LP room, clinic room, and infusion.

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