It has been a busy few weeks so long story short....

After our Covid quarantine period, Tyler improved enough to be discharged home and continue his cares as an outpatient! He continues dialysis and paracentesis appointments in Fargo at this time. He is next on the waitlist for dialysis in Jamestown. Finally starting this Friday he can start going to JRMC for his paracentesis appointments. We travel to Fargo 5 days a week at this point so it'll be nice to cut that down to 3 days soon!
The day after we were discharged, we came back to Fargo for an appointment with a Liver doctor from U of M. We were told once a month a doctor from there travels to Fargo to see outpatients for liver transplants. Both of us, personally, thought that was pointless to see this person as they already told us that he had to be 6 months sober for an evaluation for transplant and they wrote him off...but Dr. Hunt, here in Fargo, thought it would be good to get another doctor to see him now, we said we'd play their little game but in the end, when we are for sure going to Houston or Sioux Falls...we'll be telling U of M to shove it! 😁 

Fast forward to present...Tyler's blood pressures have not been doing very well. Between paracentesis 2 days a week and dialysis 3 days a week, it has been too much fluid removed from his body. After we got home from his paracentesis last Monday, he was feeling super dizzy and weak and said his stomach was hurting really bad. After he collapsed on his walker I took his blood pressure. It was VERY low. I called an ambulance to come get him. After arriving at JRMC ER- they did labs and his lactic acid was elevated pointing to an infection and the scans showed fluid in his lungs. They got him started on antibiotics and got him in an ambulance back to Fargo hospital on Broadway. The next morning they told us the infection entered his blood and he was in septic shock. My heart just sank...I NEVER wanted to hear those words EVER! It sucked to see him hooked up to all the machines again. He had 2 pressers hooked up for his blood pressure again, fluids and a couple of antibiotics. It felt like we had taken a hundred steps backwards. Once the cultures came back from lab, they were able to pinpoint what the bacteria it was and target it with a specific antibiotic. The bacteria was from the paracentesis. He started improving quickly once the antibiotics started kicking in!We were told it was good I acted quickly and got him in, this could have been a different outcome had we waited to go in until the next day. I'm so glad I listened to my gut! 
Saturday he was moved out of ICU and we're discharged now!! So back to outpatient status again! We're so happy he's getting stronger! He fought even harder after being back in the hospital this time around. That little bit of freedom made him want it again! He will continue his antibiotics at home as he still has paracentesis appointments every week. 
We have our last paracentesis appointment in Fargo this afternoon and then will start having them done in Jamestown. I'm extremely nervous for this appointment today but will keep an even closer eye on him.
Wednesday we will travel to Fargo for a fistula surgery to be done since he is now considered to be a long-term dialysis patient. He's nervous about this new dialysis but knows it will be better in the long run and less risk for infection.

Lots of changes constantly! Continued prayers, please!! 🙏 😊 

Still keeping the mentality...one day at a time.