A couple of weeks ago, Tristan’s diaper rash came back, and with a vengeance. It seemed liked nothing was helping. We took him in to the pediatrician who said the rash was so bad it resembled a burn. We were given a new prescription that helped, but the rash never went away. Poor guy had to have been in a lot of pain. But he is such a strong boy. His big smile and loud laughs gave us some reassurance.

Thankfully our trip to Cincinnati Children’s was right around the corner. We got to meet with his new team and understand Tristan’s long term care. It was also the first time we’ve had X-rays since all his surgeries. Everything healed perfectly! However, the doc pointed out there was a lot of gas in his colon. We weren’t surprised that there was gas, but we were surprised how much! No wonder he was uncomfortable! 

His new doctor evaluated his diaper rash. She kept asking if we had tried this and tried that, and every time it was “Tried it…doesn’t do much.” This when they instructed us that we’ll need to start doing daily irrigations. As tumultuous as they can be (and chaotic), they are working! We’ve been diaper rash free for almost a week now. He’s no longer in constant pain and he can finally have normal BMs without pain. He’s also sleeping better because of the irrigations! He’s managed to give us a few full nights’ sleep (which have been absolutely lovely!) 

All in all, he’s doing well. We’re not out of the woods yet but at least things are going in the right direction! We appreciate all the prayers!