Tim’s Story

Site created on August 11, 2022

On Wednesday July 20th, my husband, Tim, went into the ER after months of abdominal pain, and was admitted within hours with a diagnosis of Intussusception of the Bowel. The way the nurse described this to us, is "Imagine opening a condom, and how it's rolled into itself, well that's what your colon did..." Apparently this is very rarely seen in adults (fewer than 20,000 cases per year). He was immediately put on a clear liquid diet, would "bowel prep" (kind of like what they have you do leading up to a colonoscopy) the following day, and would have laparoscopic surgery on Friday, July 22nd to remove a foot long portion of his colon.

When they began laparoscopically on Friday, they found his colon to be hardened, therefore they ended up having to open his abdomen enough for the surgeon to fit his fist into his stomach to remove the now 2 foot long part of his colon, as well as taking the surrounding lymph nodes. They found a 4 cm tumor inside the colon, which they believe led to the intussusception .

Fast forward a week to his post op appointment. We were happy to have this behind us at this point, but little did we know this nightmare was just beginning.

On Thursday, July 28th when we went in for this appointment, his surgeon told us the full pathology report wasn't back yet, but he received a call from the pathologist prior to our arrival.  He was told that they were running additional tests, but that Tim does have Colon Cancer. At this point, he scheduled us to come back in [yet another] week, for full pathology report.

No on, EVER wants to hear the big C word, little on not having any formal prognosis yet, right? At this point, he said stage one was ruled out, so we were hoping and praying for anything news indicating it had not spread to any other organs. That's best case scenario at that point.

On Thursday, August 4th, we made the trek back over to his surgeons' office for the full pathology report. The second the surgeon told us it WAS found in the surrounding lymph nodes that were removed during surgery, my heart dropped down to my toes.  So now both stage one and stage two have been ruled out officially.

So he was going to send over the referral to meet with an oncologist. Before we left his office (it's 3pm by now) with raw emotions, they told us that if we don't hear from the oncologists' office to get scheduled by Monday morning, to call them back and they'll contact them to speed it up.

To see all updates click on journal at the top

Newest Update

Journal entry by Amy Walsh

Hey All -

Thought i'd post an update this morning for y'all that are following along.

As you know, Tim finished his treatment up three months ago.

He went in last week for his first follow up, and all his bloodwork came back exactly how we'd hoped, and all the bloodwork indicates remission

Next step is another PET Scan in mid-September!

Thank you all for the outpour of love and support during this past year! Now it's time to finally explore and enjoy our new surroundings

XOXO

Patients and caregivers love hearing from you; add a comment to show your support.
Help Tim Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Tim's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top