Theodore’s Story

Site created on August 27, 2023

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Kaitlyn Moone

We were thrilled to finally get a warm, sunny (and not insanely windy!) day. The boys had a blast hanging out on the patio, blowing and popping bubbles, and taking in some fresh air. Jackson parked his car right behind Theodore so they could play and load the trunk with rocks. 😂 Theodore gave an emphatic “yes” sign every time I asked if he was happy to be outside. 💙

We’ve been swamped with appointments lately, which has somewhat exhausted us all, and we’ve got a few more weeks of a heavier than normal schedule before things hopefully slow down (and boy, are we ready for them to slow down!). But while we continue to work on getting Theodore’s seizure medications right in hopes of better managing the frequency of his episodes, he’s regularly been more himself again, which has been so wonderful to see (more alert, more sassy, more responsive, and working really hard in therapy). 

Thank you for your continued prayers and support of our entire family! We’re grateful every day for the huge community of family and friends that have surrounded us to cheer us on during Theodore’s recovery. 


Ways you can help: pray, share, donate if able.

To donate funds to immediately help with current life expenses, such as bills, mortgage, and any other everyday expenses for Kaitlyn, Andy, Theodore and Jackson, please Venmo Kaitlyn directly at @kaitlynmoone. (Donations to this site are not part of the proceeds that they will receive.)
 
Thank you all so much 💙
 
#FightforTheodore #ANEawareness #ANEandus #AcuteNecrotizingEncephalopathy

Patients and caregivers love hearing from you; add a comment to show your support.
Help Theodore Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Theodore's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top