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May 26-Jun 01

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 Here’s a repeat of my recent post on LUNGevity’s Forum. Bottom line, feeling much better. 

So things seem to be going OK this week. I go for my next infusion tomorrow morning--feeling much less anxious with my daughter here to help with mobility, etc. It's a quick infusion--only about half an hour in the chair, so should be home early.

@Rower MichelleYou will be happy to hear the medical marijuana is the one thing that has helped my appetite--it was like magic! I'm in the process of getting my card but for now had a friend donate some honey, sugar, and plant (which my daughter cooked down to butter, which we've been masking with blackberry preserves). It hasn't helped that much with nausea, which is the only thing kinda still bothering me. For that I'm taking meds.

Virtually no coughing going on. It's hard to judge shortness of breath. I'm on O2 at home and for now I'm happy with that. I'm not walking further than the end of the hallway. Home health came out today and gave me a bath/shampoo, which felt really good. They, as well as PT and OT, will be out a couple of times a week. 

I'm so glad I came home when I did--we are getting our routines adjusted here (mine and Steph's) and so far, it's going well.

I'm also at least functional enough to do a bit of techy stuff (set up new Apple Watch), which is also encouraging.

Probably not gonna have a chance to catch up with everyone's situation but hope you are all doing well! I'll check in as I can--it's just so great to be feeling stronger.

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