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Apr 28-May 04

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So much has been going on lately, I thought it was time to gather our team to pray. Jake came off of steroids about 4 weeks ago. Shortly after he began throwing up 1-3 times a day, completely lost his appetite (we have to make him eat 1-2 saltines twice a day to take meds) and is very tired all the time (sleeping 18-20 hours a day most days). The doctors have ran all kinds of tests and all of his blood work is normal, so they are thinking it may be GVHD in his gut. They ordered a consult with the GI doctor and a scope but the soonest appointment is August 30th! Jake cannot wait this long. We are hoping at today’s appointment they will admit him and get things taken care of inpatient. As much as we hate to see him in the hospital, he really needs nutrition and some answers. He also had an appointment with his orthopedic doctor last week. Unfortunately, the avascular necrosis is worse than he had expected. Surgery to correct the damage would mean removing Jake’s talus bone and fusing his foot and leg together then running a metal rod up Jake’s leg to reinforce. This would be tricky because Jake has a large cyst right where the rod would go. This would also mean no flexibility in his ankles. The other option is physical therapy but that won’t correct the necrosis, just help Jake get stronger. This may mean Jake will never play baseball again. I say “may” because if you know Jake, you know he is going to fight with everything he has to get back on the field. He has already said that if that doesn’t happen, you can catch him on the golf course. This has been a hard realization but we know that no matter what, Jake will make the best of the life he has been given. He always does. As always, we are so grateful for everyone’s prayers and support. I will update again when we have more answers. 💚🎗

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