Journal entry by Cristina Buss —
So after 11 days in the hospital Greg did come home. We still don't have ALL the answers but we are getting there. Looks like his wonky blood work is due to membranous nephropathy, which research is showing, is a common(ish) side effect of GVH in stem cell transplant patients. His kidney (yes, he only has one) is putting all the protein and albumin in his urine and basically little to none in his blood. So his urineanalysis #'s are bananas and through the roof and his blood work is bottomed out. Mind you, no one has officially told us that, my neurotic self is in the portal and read his biopsy results. We go in today to officially be told. There is no cure for it but they seem to be able to manage it with some chemo infusions.
I don't think they can write all his symptoms off to his kidney malfunction but I suppose we will wait and see what they say.
In the meantime, life rolls on. We are making some fun summer plans and getting to see some of our favorites again next week (including our church family ) and later this month. Thank you guys for the prayers and reaching out. Through this whole crazy journey we really have discovered who are true people are. Some of you surprised us from out of no where and always check in on us and some of you surprised us from out of no where and disappeared...and that's ok too. Life is crazy and it all gets sorted anyway. So, we trust in God's plan and we know this world is not our home, and we keep looking forward to our eternal home down the road.
I don't think they can write all his symptoms off to his kidney malfunction but I suppose we will wait and see what they say.
In the meantime, life rolls on. We are making some fun summer plans and getting to see some of our favorites again next week (including our church family ) and later this month. Thank you guys for the prayers and reaching out. Through this whole crazy journey we really have discovered who are true people are. Some of you surprised us from out of no where and always check in on us and some of you surprised us from out of no where and disappeared...and that's ok too. Life is crazy and it all gets sorted anyway. So, we trust in God's plan and we know this world is not our home, and we keep looking forward to our eternal home down the road.
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