Daddy/daughter date for this week’s infusion. Wide awake until the final 10 minutes! 

 

Taylor’s last blood work was back and everything looked good there. Dr Goker will discuss her BAER hearing test results next week when Ashley is there with us. She also wants to go on and get another swallowing test done soon. Fingers crossed that this test will still show she has no issues swallowing! Although we see see no signs of it, it’s still a huge concern with little guys with Gaucher!