Taylar’s Story

Site created on October 3, 2023

Welcome to Taylar’s CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Taylar’s story is in the first post. She was recently diagnosed with Chiari 1 Malformation. We will be having the Chiari decompression surgery on October 11th, 2023. She will be monitored for inter-cranial pressure for a few days after the surgery to make sure this is the only thing to be concerned about or to mediate. Her optic nerves are being tested and monitored as well as this is how we came to find her diagnosis. Any questions let us know. Thank you for visiting.

Newest Update

Good News All Around!

Journal entry by Amanda Kiefer —

We had Taylar’s check in with her Neuro surgeon today. I cannot say enough about how amazing he is! You can barely find her incision area and her hair is growing back so good!! 
She has had a spine MRI a Brain MRI and her eye tests in the last few days. 
Her brain is showing very good decompression! I tried to point it out in the pictures the best I could. 
She still has a cyst in her spinal cord, we asked if that is still a concern and Dr Ahn said it most likely will not go away completely but the size is definitely less than it was before and that’s so good. We will be monitoring that though to be sure. 
Repeat MRI in October and a visit with Dr Ahn again. 
Tay has been having eye pain and headaches and we were a bit worried the pressure was coming back up. Good news that no swelling/pressure increase and the her optic nerves look good. Rechecks on eyes in 6months. 
We will be checking in with ENT on a mucus cyst that was seen on the MRI and see if the sinuses could be a cause of headaches and eye pain. 
Best news for Tay is that she is released to go back to dance!!! 
Hopefully this chapter of health stuff for her is closed (with monitoring of course). 
We cannot THANK YOU ALL enough. The support that our friends, family and community gave has been amazing. Blessings and love to you all! 
Read More of the journal titled "Good News All Around! "
Patients and caregivers love hearing from you; add a comment to show your support.
Help Taylar Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Taylar's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Leave a comment of support for Taylar

Did you know? A quick comment, no matter the situation (positive or negative), can boost morale by 28.2%.

Comments Hide comments

Load more comments
Read More Journal Entries

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Requests
Go to Ways to Help
SVG_Icons_Back_To_Top
Top