Tausha’s Story

Site created on November 26, 2018


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I am officially on the list for a heart transplant.  My heart journey began in October 2008 when they found a blood clot in my heart.  This is also when they discovered that I had a blood clotting disorder called Factor V Liden which makes me more susceptible for getting clots.  This incident did cause some slight damage to my heart and that point I was told I had beginning stages of heart failure.  My doctors told me not to worry as heart failure is a very broad term and I could still maintain an active lifestyle.  In May 2009, I had my first incident of VT (Ventricular Tachycardia) - this is a very dangerous arrhythmia.  They shocked me to get my heart back in rhythm and a couple days later implanted an ICD (Implantable Cardioverter-Defibrillator).  This device was there to protect me if this heart rhythm was to happen again.  This incident again put a little wear on my heart but I was still feeling good.  I went for many years on medicines that controlled my heart rhythms effectively.  On May 5, 2018, I had a cardiac arrest.  My family was told that I wasn't going to make it.  That is until the most amazing group of doctors and surgeons at the University of Minnesota Hospital got me hooked up on the ECMO machine which saved my life.  It was honestly a miracle!!  I was out of the hospital in 12 days.  I was very tired but overall feeling good.  As you can imagine, my heart took a big hit with this one.  I started Cardiac Rehab and successfully completed that in September 2018.  On the evening of October 6, 2018 - I had an episode of VT and landed me in a hospital bed for 4 nights.  Following that, I had 3 more hospital stays - one that included an ablation that was not successful and one that we thought was but I ended up back in the hospital a few days later.  By this time, I really wasn't feeling good overall and had days that I could barely walk from room to room. In November, I went it for a Right Heart Catheterization and the results were not good and they wouldn't let me leave the hospital.  My heart was pumping at less than 50% of what it should be.  They got me on an IV with some medicine that helped open up the vessels so I would start feeling a bit better.  It was on this hospital visit that my team of doctors/surgeons atthe U of M decided that my heart failure was at the point that we needed to look at transplant.  They completed the entire workup and evaluation while I was there.  And, that brings us to now while I wait for the call that a heart become available.  It could be 2 weeks, 5 months or a year.  There is so much that goes into matching a donor with a recipient so they never know exactly where you are in line.  When a heart becomes available for me - I will need to be at the U of M Hospital within a couple hours for surgery, so no traveling for me for awhile.  I can't tell you how blessed I am with the most amazing Transplant Team.  Please know that if I have any updates - we will always put them on this site.  I will continue to work until the transplant as I am blessed to be able to do that from home.  I need to stay as healthy as possible until the surgery so I likely won't be out and about much unless it is for a doctor appointment, church or something to support Natalie.  Please feel free to come and visit (unless your sick :)) and know that I am okay talking about "normal" people stuff and not just my health.   Please pray for my medical team, the family of the donor whose heart I will receive, my family and of course, ME!!

Newest Update

Journal entry by Tausha Martinson

God is good, always! ❤️
Thank you for all of the prayers and good wishes!  
 
Recap of the day of my 5 year check-up:
  • First stop, labs! The tech got me on the first poke and that NEVER happens AND she got all 12 tubes from the same vein which doesn't always happen. WOO HOO - the day was off to a great start!
  • Next stop, cardiac MRI! My nurse (Betsy) was a doll! She read in my chart that I was not an easy on to get an IV in so she said, "I am good at it, but not great so I am giving up before I even start and calling the IV Team". Another win for me because they normally always want to try once before them call the IV Team but they ALWAYS and I mean ALWAYS miss. I have had the same MRI Tech since my transplant (Heidi) - she is a riot and I love seeing her! I was so excited to eat when my MRI was over because I had been fasting since 8:00pm  the night before that once they took out my IV and I got dressed, I tore off my wristband and I was ready to ditch out. 
  • However, I forgot that I had to get a chest x-ray and they caught me before I escaped and had to go through the rigmarole of printing a new wristband for a 3 minute chest x-ray. 😂 OOPS!
  • After a break for lunch, I saw my Dr. Alexy in the afternoon. I wish every single one of you could meet my Dr. Alexy - he is not only an amazing doctor but an amazing human! I love that he spends time each year checking up on my life, what I have been up to, asks about the kids and genuinely cares about me not only as a patient but as a person. He looked at my several times throughout the visit and said, "I just can't get over how good you look.".  He told me that my story, recovery and progress is so inspiring and makes the whole cardiac team there so happy and proud! Between my time at the U of M hospital following my cardiac arrest in 2018 and my transplant in 2019 - pretty much every doctor on the cardiac team has cared for me to some extent even though I don't remember some of them. I am so blessed that God put me in the care of these amazing physician's! 
  • Now for the results: my labs were GREAT! Everything was within normal range which NEVER happens. My kidney numbers are always a bit high but that is due to the hit my kidneys took following my cardiac arrest. They actually bounced back quite nicely after that but not all the way. The anti-rejection meds can also affect the kidneys a bit but obviously I have to take those. My MRI was perfect - no change from 2 years ago! My check x-ray was good as well - that they are checking for there is too make sure that my wires are still intact from the surgery. Dr. says, I don't know what you are doing, but keep in doing it because it's working amazingly!
  • It was a great day!

Moving forward, I will have labs every 6 months and continue my annual visits in January. I will need to visit the cath lab every other year for an angiogram moving forward. 

Thank you for continuing to be a part of my journey!  I am blessed with the best supporters and prayer warriors.  Much love to each and every one of you and wishing you a 20243 full of blessings and good health! 
 
Love & Hugs!
Tausha
 
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