Journal entry by Tami Zakoski —
Hi Everyone! I figured it was time to give an update on how I am doing. So far so good. I have completed the first cycle of my maintenance oral chemo, 10mg of Lenalidomide (generic for Revlimid) taking it for 21 days on with 7 days off. I am now on day 7 of the second cycle. I had to have weekly blood labs the first 3 weeks and all my numbers have stayed normal which is wonderful because this drug can cause my numbers to drop.
The side effects are frustrating but manageable. I have found that as each week progresses, I get more side effects. These include fatigue, constipation, dry flaky skin especially on my eyelids, nightsweats, shortness of breath, a rash and brain fog. I think the hardest part is going from feeling so well to now having these issues. However, I am hopeful that my body will adjust and they won't become a problem.
I have a follow up appointment next Tuesday, April 9, with my oncologist Dr. Basu. We will discuss how maintenance is going and I will also get my 2nd infusion of Zometa, a bone strengthener. Last time I felt like I had a mild cold for 3 days after so we will see if that happens again. Fingers crossed it doesn't.
Otherwise, I've been enjoying life. We have been anxiously watching our new home being built, celebrated our granddaughter Lizzy's 1st Birthday and received the exciting news that we are going to be grandparents again with Taylor & Jacob due in October.
Throughout this past year, I have had time to focus on what really matters in life and learned to soak in the little moments and celebrate the big ones. I am truly blessed and will not let living with cancer define me.
Have a wonderful weekend!
Tami
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