Kate’s Story

Site created on April 9, 2012

My current diagnosis is Acute disseminated encephalomyelitis (ADEM) and CNS demyelination. These are autoimmune disease/disorders.

Not sure when or how this all began.  The first MRI showed the lesions in brain had been firing for a while. Kate spent the last couple of months with minor headaches that progressed to severe pain and vomiting. She was admitted to Good Shepherd in Longview to treat mastoiditis that was revealed on CT scan.  However she continued to get worse.  She made lots of blood donations and two lumbar punctures, endured without meds...she's a tough cookie!  Kate was transported to Children's Medical Center in Dallas for more testing and treatment.

Kate's treatment involves extremely high doses of steroids.  We must all be understanding if Sweet Sunshine Kate isn't as sweet for a while. If she does well at home, we will return to Dallas for MRI in July and meet with the "Neurololgy Team". We are trying to keep her stresses to a minimum and allow her to resume as many activities as she can...she is anxious to go, just not sure if her body will cooperate.

We ask for continued prayers as this is a lifelong diagnosis...





Newest Update

Journal entry by John Durden

Friday was another long day.  Kate had a lot of anxiety, but she only showed courage and kindness.  The first doctor and two nurses met with us to go over her chart/history etc. After reviewing records, doc glanced over at Kate and quietly said, "you know you have a walking miracle sitting there, some medical explanations are from prayer."  He shook his head and kept reading her chart, then said, "kids with this many lesions, size and location, don't just walk out of here, and don't look like that..."   The power of prayer! Thank You everyone! 

It was wonderful to be reminded of our miracle.  However, it was an emotional reminder of how bad things were and how she still has health issues.  Next, it was time for the needles.  The nurse was gentle, the IV went pretty well.   The MRI results were good.  However, still some concerns, we must have another MRI in four months.  Kate will be on the four month schedule, we had hoped to be on the six month testing. If her headaches increase we will go to ER. The optic nerve damage is not healing, her vision will be closely monitored.  

Her lungs are not clearing up and she has had some chest pains.  After the tube down the throat she has once again begun the non stop coughing.  Fever has set in this evening.  We will be with Longview doctors tomorrow.  She is upset about missing school, again.  Kate is frustrated about being sick, she wants to be healthy!
Please keep praying for Kate, and the many, many sick or hurting children, so many need love and prayers.   
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