Susan’s Story

Site created on November 15, 2020





UPDATE:  We are asking for donations through venmo: @susan-kim-133 and zelle: sskseattle@gmail.com. The gofundme link is also still active, if you feel as though you'd like to give anonymously, please use that link. Any tribute through caring bridge goes to the service site and NOT go Susan. If you would like to give using a different method please reach out to Deanne.liu@gmail.com with subject line SUSAN. 

UPDATE TWO (JUNE 24, 2022): New website updates are going here: https://susansquad.wordpress.com/
Please follow us at that website for more engagement, drop by with notes and photos, and we'll be backlogging posts from here as well. We've decided Susan needs a dedicated site. That's just how much we love her! ---
 Thanks for supporting Susan through yet another chapter of healing. 

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. (Be sure to click below to read more about our dear friend, sister, daughter, momo, imo...)

If you know Susan, you will recognize her incredibly infectious laughter and joy; her easy support of others and encouragement to everyone around her to become themselves. Susan's work as a counselor and through the Allender Center has opened people's lives to be shared authentically, trauma to be healed, and has shown God's love for others through her selfless service in mental health. Susan holds many stories for others in her life, and today we invite you to share in holding Susan's story that has just come to light. 

Over the summer, Susan's friends and family noticed there was something different with Susan. She started to forget periods of time, grasped for words, and exhibited general malaise. It was not our veritable Susan. As the days progressed, Susan seemed to get a little worse, i.e., acting unlike herself, shuffled while walking, recognizing people and stories, but unable to speak the words out. After visiting the doctor and getting some labs done, Susan was encouraged to continue to find the malady that was occurring which resulted in a visit from her mom and sister in early November. It is important to note here that Susan's regression was incredibly sudden and severe. Those of us who were able to be with her have felt helpless and fearful for Susan. Susan, being the optimist and also suffering from acute memory loss, did not really understand the gravity of what others were seeing and experiencing of her.

During the week her family came to help, Susan felt very tired and could not walk without needing support. That afternoon, she was sent to urgent care and an MRI was performed which found a very large tumor pressing upon the left side of Susan's brain. 

At first glance, the doctors believe the tumor to be a meningioma, which is generally benign. The size of the tumor is  larger than two inches (6.8 cm) and the doctors believe this is the issue that is mostly to blame for the Susan's current physical and mental status. Twenty-five years ago, Susan was diagnosed with Leukemia at the beginning of her collegiate experience. She underwent severe chemo and radiation, including radiation to her brain to keep the Leukemia from spreading. Likely, this tumor is a result of the radiation and the Neurosurgeon believes this tumor will be benign, but we will not know until surgery is done and samples are taken for testing. At this same appointment, it was found that this tumor is worse than they originally thought and because of that, Susan was admitted to the hospital that very same day. 

As the COVID-19 surge continues on in the state of Washington, the governor has issued new regulations for "strongly encouraged" quarantine and hospitals are bracing for more beds to be taken up by more severe cases. With this happening, Susan's admittance to the hospital will be very strict, allowing only one designated person to visit daily. Susan's mom, Grace, has volunteered/chosen as tribute (hehe). And due to the restrictions of the hospital, Mama Kim will only be able to visit during visiting hours. Today, Monday, November 16, 2020 - Susan has begun her hospital stay. While the hospital starts to make COVID-19 changes, her impending surgery will be on Wednesday rather than Tuesday, in case any emergent cases come to surface. We are very hopeful that Susan's surgery will stay on schedule for that date (11/18/20). We will post updates as time gets closer. 

We have been bolstered by the ways in which Susan's community has responded with prayers and offers of support. Please continue to pray for her Neurosurgeon (Dr. Lee) and the facilities at Swedish Cherry Hill - the last thing we need is the pandemic to reach Susan as well. 

We see hope around every corner, from the medications that's been prescribed that have had a very immediate effect, as well as the availability of a bed for Susan to be admitted during this surge in the pandemic. We know God is with Susan and we know it because we can feel the community support around her and the Kim family. 

We will use this site to keep everyone up to date on what is happening and will ask for tangible support of Mama Kim and Susan as she recovers and convalesces. We also ask that you refrain from visits to Susan when she returns home given the pandemic surge, her level of energy and need for rest, and the hope of quiet that makes healing possible. 

Thank you everyone. Sending you a big generous warm hug from Susan. 

Newest Update

Journal entry by Susan Kim

March 19, 2023

It’s been several months since my last post, and I have thought for some time of how to transition and end posting here though my/our journey continues.  Caringbridge has offered a space to express what sometimes I didn’t even know was within me, just needing the emptiness of the page to hold what I often wasn’t expecting to lay down.  It has brought relief and gratitude to write and to feel joined with you reading and remembering me in your thoughts and prayers with a God who sees and hears.  My last MRI in January seemed to indicate the radiation was successful in that there was no new growth of the meningioma. There were a couple of new non-meningioma “spots” on the thalamus portion of my brain.  It is the relay portion of the brain that controls motor, verbal, cognitive, memory, etc. functions of the body, with no clarity of what the spots are.  I ask for prayer that those spots don’t change or bring negative symptoms as they are in an inoperable portion of the brain, and radiation is also not an option. As I said the journey continues, with my next MRI scheduled for July and then another one and another one and another one… after that. I am grateful for how  healing can be witnessed in the large ways of getting through brains surgeries and radiation, and continue to ask for prayers for those, but also ask for the comfort to come for the daily and common labors to remember, to understand, to be kind to adaptations to what my life now needs.  And in the midst of that I have been given a reassurance of seeing how the situations of my life have changed, but what has called my heart to life has been with me since the beginning.

I think an email address celebratinglife4susan@gmail.com was created for me, for any updates.  

Thank you all

susan

 
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