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Apr 28-May 04

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Hi All:  Well, it's been about 3 months since I wrote an update, so I'm overdue !  The good news is that I am doing great.  I have been off all of the immunosuppresion drugs for 3 months.  They tell me that my immune system is almost back to normal.  All of my lab tests are normal. 

About the only lingering issue I have is mild GVHD (graft vs host disease) of the skin, which I've had since September.   Fortunately, I'm managing this with topical cream.  

I will see the OHSU transplant doctor in July, then on my 1 year transplant anniversary in August I'll have another bone marrow biopsy and receive a huge list of vaccines.   I no longer have my original immune system, I have the immune system of the newborn baby donors.  That means that I start over getting all vaccines.  After August I'll be followed by my original hematologist, and just be seen every 6 months at OHSU until I hit the 2 year mark.

I'm walking, golfing, and  put my boat in the water this week !  I've also been getting together with friends and family that are vaccinated, and that has been pure joy !

Hope all of you are healthy and enjoying the beginning of summer.

Love to all,

Susan

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