Welcome to Susan’s CaringBridge Site
Sign In to Show Your SupportHi All: Well, it's been about 3 months since I wrote an update, so I'm overdue ! The good news is that I am doing great. I have been off all of the immunosuppresion drugs for 3 months. They tell me that my immune system is almost back to normal. All of my lab tests are normal.
About the only lingering issue I have is mild GVHD (graft vs host disease) of the skin, which I've had since September. Fortunately, I'm managing this with topical cream.
I will see the OHSU transplant doctor in July, then on my 1 year transplant anniversary in August I'll have another bone marrow biopsy and receive a huge list of vaccines. I no longer have my original immune system, I have the immune system of the newborn baby donors. That means that I start over getting all vaccines. After August I'll be followed by my original hematologist, and just be seen every 6 months at OHSU until I hit the 2 year mark.
I'm walking, golfing, and put my boat in the water this week ! I've also been getting together with friends and family that are vaccinated, and that has been pure joy !
Hope all of you are healthy and enjoying the beginning of summer.
Love to all,
Susan
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