Sue’s Story

Site created on May 13, 2023

I took my first trip to cancerland in 2010. The lung cancer diagnosis was a total surprise- I had never smoked - and did not have a great prognosis. Who knew that 20% of women with lung cancer have never smoked? After being blasted with radiation and chemotherapy, I was incredibly fortunate to recover fully and enjoy astoundingly good health for the past 13 years. Heck, to the best of my knowledge, I’ve never had Covid!

Several weeks ago my voice became quite hoarse and the hoarseness persisted to a point where I saw my primary care doc and then an ENT doc. I was treated for a variety of potential causes of persistent hoarseness: allergies, a bacterial infection, acid reflux. None of the treatments for those potential causes seemed to have any impact. I am blessed to have a couple of close friends who are also super-smart physicians. One of my “personal physicians” thought there was another potential explanation for the hoarseness and he ordered a chest CT scan. Alas, his concerns were borne out by the results. I have a tumor in my chest that is pressing on a nerve to my larynx.

Scans confirmed a tumor in the middle of my chest - the same location where the 2010 tumor was identified - as well as a second tumor in the muscles along the spine in my lower back. A biopsy of the back tumor (which was easy to access and virtually certain to be the same cancer as the chest tumor) confirmed the return of the same 2010 cancer.

There are a number of good luck moments in this story thus far. I am fortunate that the chest tumor is in a place that generated a symptom that prompted investigation. And I am also incredibly lucky to have smart physician friends who keep watch over my health.I have reconnected with the same doctors I worked with in 2010 which is very helpful as well.

I will use this site to keep everyone up-to-date with all the news and specify ways in which family and friends can be helpful. 



Newest Update

Journal entry by Sue Scott

Hi all - Today was a Mayo day where I had a CT scan in the morning and treatment in the afternoon. Cheryl and I met with Ailsa, my marvelous physicians assistant, to get the scoop on the scan and the next steps for treatment. I have learned from experience to only hear scan results from a medical professional rather than reading the report as soon as it is released in my portal. Today was a good day to have followed that advice. Ailsa opened today’s conversation with “I have good news AND…” 

So the good news is my principle tumors - the one in the middle of my chest - the mediastinum - and the one in the muscles along my spine - paraspinal muscles - are stable. There is even some reduction in the size of the chest tumor. All good. 

The “and” is the CT scan showed an enlarged lymph node under my left collarbone that looks suspicious. A biopsy will confirm if there are cancer cells in the lymph node and scans will look for any additional signs the cancer has spread. Cancer likes to travel through the lymph system so it is never good to find cancer cells in a lymph node. 

So I now have a collection of tests coming up: PET scan, brain MRI, and a biopsy of the lymph node. Fortunately, the lymph node should be easy to access under local anesthetic. If they find cancer cells in the lymph node they would likely zap it with a course of radiation. 

I am less than excited about this news and the collection of tests and potential treatment it precipitates. I just need to be patient because there is a lot to learn before the next steps come into focus. For the past couple of months my schedule has not had to entirely revolve around medical appointments and that has been a bit of normal life I have really enjoyed. I just need to keep moving forward.

On a lighter note, I have been watching the construction of a very cool Mayo building over this past 6 months or so. This new research facility is now complete. Today’s photo is of this building with its unique scrim facade. Here is a link with more info about its construction: Mayo research building

 

 

 

 

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