This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 28-May 04

This Week

Nothing Planned This Week
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

Stone is five today—he flashes a whole hand to show his age now—and he’s thriving.  I’m just so grateful he’s alive.  Is that a morbid thought, and will I have it on his birthday for the rest of my life?  Thanks to countless supporters (including all of you!) and millions in medical care, we didn’t lose him when he was two.  

Instead he dressed himself this morning, he chose his own birthday theme, and he let me put gel in his hair.  He has hair!  It’s brown now, not the blond he had before, but it’s thick with two cowlicks in the back and my mom kissed them today as he slid off her lap to run play with his new toys.  Even though he and Jack have their own beds now they still snuggled up together tonight, listening to thunder, their new light sabers rolling out of their dimpled hands only when they passed out, exhausted from so much fun.  Every day, every season, every year is a gift, as is every minute of health and hospital-free air.

We may not always have whole hearts, but we can wholly embrace living and loving. Stone does.  

Read the latest Journal Entry

15 Hearts • 12 Comments

SVG_Icons_Back_To_Top
Top