Most recent update on Steven:

We have been at Yale since last Monday to help get his pain under control and have his follow up MRI. We received the news no parents ever want to hear , that there are new tumors, the radiation was not successful, the cancer is aggressive, it’s terminal. This was told to us on June 13, the 6th anniversary of my mother’s passing. It was as if she was there, letting us know that she will protect him. Steven is aware and his courage , strength and honesty is actually helping us and others. People who are only just meeting him for the 1st time can feel his strength. We are in the process of setting up hospice. We will come home soon until we need to transition back to Yale. He will still need transfusions but our main goal is to keep him pain free. We plan on attending his 8th grade graduation from WMS this week and do some other things he wishes. We are still having some fun and making memories.
#courage #strength #sudellstrong