Steven’s Story

Site created on June 11, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.



Steven was diagnosed with ALS (also known as Lou Gehrig's disease) on April 30th. He had been having symptoms for about year, but testing previous was negative. His symptoms since diagnosis have progressed pretty rapidly. He is very weak (requiring help for dressing & eating), in a lot of discomfort due to spasms in his arms & legs and is having difficulty swallowing and talking at times.  


There is no cure for ALS and his type is aggressive. The neurologist thinks he might have 1-3 years left, but that will also depend on if he decides on if he wants a tracheotomy and to be on a ventilator. There are are a lot of decisions left to be made.


Right now, he & Chisa are going to the Rocky Mountain ALS clinic which is run by Dr. Deitz (neurologist) and Dr. Fenton (pulmonologist). It is a team concept with respiratory, physical, occupational & speech therapies and a social worker. They are helping him with daily activities (eating, drinking, dressing, bathing, swallowing). 


Steven & Chisa have tremendous faith in God and that provides them a lot of comfort in this journey. Liana and Daniel are doing well and are being kept busy by our parents and other friends. 


Please, consider a donation to help them out. Steven will most likely not be returning to work in August and Chisa will be staying home to help care for him.


https://www.gofundme.com/manage/steven039s-journey

Or checks can be made out to Steve Martin and sent directly to him;

10427 Strasburg Way
Parker, Co 80134

Newest Update

Journal entry by Steven Martin

Monday was the one year anniversary of Steven passing away. I actually had a really good day! Thank you everyone for praying. 

“Everyone who drinks this water will be thirsty again, but whoever drinks the water I give them will never thirst. Indeed, the water I give them will become in them a spring of water welling up to eternal life.” (John 4:13-14)

Cassandra, who was in Israel that day, sent me a picture of Ein Gedi on the morning of March 21. My first thought was “living water!” The next word that came to my mind was “unspeakable joy” and I felt filled with joy from the Lord. It was an unexplainable joy and peace, because who would feel joyful on the day your husband died, one year ago?

“To comfort  all who mourn, and provide for those who grieve in Zion— to bestow on them a crown of beauty instead of ashes, the oil of joy instead of mourning, and a garment of praise instead of a spirit of despair.” ( Isaiah 61:1-2)

I felt  joy because God healed Steven and he is suffering free.

I felt joy because I have so much to be thankful for God in my life.

I felt joy because my kids and I will join Steven someday where there are no more tears and no more sufferings!  Wow, what joy and what hope we have in Jesus! 

Our day was really good. The kids and I went to Panera, Steven’s favorite breakfast place. I ate what he would have eaten, a cinnamon crunch bagel and coffee. ( I am not a sweets lover and I normally don’t drink coffee but I did!)

I spent time reading God’s word and shared what He spoke to me with the kids. 

We watched some family videos and laughed. (They wanted to skip all the videos from the past four years when Steven was sick but they loved to watch healthy Daddy being goofy.)

We went to Bad Daddy's Burger with Grandma and Grandpa to honor Steven by eating burgers and milkshakes. (He loved burgers and milkshakes.)

We had a worship night with close church family friends. Stephen led worship for us and Liana played a few songs by my request. (or by my order?) Praising God was soooo good! 

Cassandra brought us birthday cake pops from Starbucks one year ago on March 21 to celebrate Steven’s birthday in heaven, and Mayuri graciously gifted us cake pop maker after seeing a post about it, so we made birthday cake pops and celebrated Steven’s healing in heaven after the worship. 

Overall our first anniversary went so well and was filled with joy. I almost want to do it again! But now back to the reality of life…

Patients and caregivers love hearing from you; add a comment to show your support.
Help Steven Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Steven's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top