So my mom has had a few new events recently.

Per my own neurologist's recommendation, I made an appointment with Dr Ravi Kasi at Rush University Medical Center. (Google him, he has an amazing reputation.) He gave us a list  of instructions, near the top of the list was getting mom's head put back together. He seemed shocked that she wasn't  at least wearing a helmet to protect her fragile head.  She will see a neurosurgeon (also at Rush) in the near future to discuss this. 

Mom had a CT scan on 24 Apr for the first time since Sep. We will discuss those results with her doctors at her follow up appointment. 

Mom is definitely aware when she has visitors. She holds our hands, follows simple commands (raise your eyebrows, wiggle your toes, smile, squeeze my hand, etc.) and she loves to listen to music. We have meetings with her care team at Glen Oaks about every other month and we are mostly confident that they are taking good care of her. Her RT is very skilled and will hopefully have her trach out this summer. We did not understand what a slow process this would be.

Once again, mom needs visitors. We fear that she will get lonely and depressed, thus losing hope and giving up on recovery.  With this new doctor, she is in the beginning stages of finally speeding up her recovery and for that, we are grateful.

Again, thank you for your thoughts. Mom is the type of person who would he there for any one of her friends or family in need. Please consider visiting her. I know it's not easy, trust me. But mom loves us all and now it's her turn to benefit from our generosity.