Journal entry by Rachel Loyed —
Sophia had a fun Easter!
I thought I would give you an update. I'm sitting with Sophia in the hospital. She is going to be inpatient every 3rd week. That seemed to work the last time. She didn't have an emergency trip back to the hospital the next week. She has the option of taking a horse pill or having the medication given through the iv. And she's too young for the horse pill. It's too much.
She is doing well overall. But she is walking on her tip toes of the foot that has cancer we think it is from when she had sores from radiation on her foot. Hopefully some stretching will be help. The physical therapist said it looked like her legs were the same size. Which was a potential side effect.
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