Because music is my only therapy right now ....

🎶When the silence isn't quiet

And it feels like it's getting hard to breathe

And I know you feel like dying

But I promise we'll take the world to its feet

And move mountains

We'll take it to its feet

And move mountains

And I'll rise up

I'll rise like the day

I'll rise up

I'll rise unafraid

I'll rise up

And I'll do it a thousand times again

For You🎶

We are home!!!!! What an incredible little fighter we have on our hands! I couldn’t put into words if I tried how hard this has been. To watch your child go through all that she went through is something I could not simply describe. It has been the most painful, heartbreaking experience to not be able to protect my daughter from this. To have her scream and cry and get angry with me because I’m not stopping the hurt...well I haven’t experienced anything more traumatizing.  

But I couldn’t be more thankful to everyone out there who has been praying, because our God truly gave us the strength to get through this. Every moment when I thought that I was too broken and I couldn’t keep helping her fight and that I wanted to completely fall apart....He gave me that extra fight. So thank you to everyone who cried out in prayer for us! There are also so many people who reached out to me with encouraging words and support and told me what a good job I was doing... at times I felt like I was completely failing and those texts meant more to me than you will ever know... even if I was unable to respond to you all...please know how truly grateful I am for all your kind words! To our incredible family who helped take such great care of our boys...I have no idea what we’d do without you! We are beyond blessed! To our work families who have done nothing but support us from day 1 of her diagnosis, THANK YOU will never be enough!!! To my bestie who was able to give me a pep talk through text every time I felt like I couldn’t keep going.... I love you so much Aunt Sarah 😘🤗 and to my husband who has ALWAYS been my rock... I don’t know what I would do without him! We did it!!!! 🎉🎉 🙏🏻🙏🏻🙌🏻🙌🏻

We have some additional follow ups to get through still, but I am optimistic that all will look well. Please continue to keep Sophia in your prayers. She doesn’t have an ounce of fat left on her....so prayers for her appetite and overall recovery...both physical and mental. It’s hard to see her so frail right now... but I know she will pull through, because she is the strongest person I know!!! So much love and thanks to everyone out there following our little girl’s journey and keeping our family in your continual thoughts and prayers. #sophiastrong #mydaughter=myhero